RLS - RESTLESS LEG SYNDROME.

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PLEASE HELP, I HAVE THIS MOST NIGHTS AND GET VERY LITTLE SLEEP, CERTAINLY NO QUALITY SLEEP. ANY ON THE SPOT HELP WIIL BE APPRIATED.

THANK YOU 

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  • Posted

    Before starting on dopamine agonists (Ropinorole, Rotigotine etc) your doctor should do checks on your blood. You may be lucky and find it is an iron or magnesium deficiency. He will also need to check it definitely is RLS. You need to examine what makes it worse for you eg. Chocolate, spicy food, tiredness, stress, bed time. Your doctor is unlikely to be an expert and you will need to find out for yourself. There is an RLS forum which is very helpful and I found a book called Restless Legs Syndrome by Buchfuhrer Wayne and Hening very good.

    Good luck!

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  • Posted

    Neurologist prescribed Rotigotine (Neupro) patches for me and I have been almost symptom free for 14 months. I avoid alcohol and all cold remedies as they contain medicine which exacerbates the symptoms. Tiredness is also a trigger for me.
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    • Posted

      I have been on Rotigotine patches for about 1 1/2 months.  Noticing augmentation starting already and must suppliment with Robaxin - a muscle relaxant and norco (opiod pain killer) at night to keep 'jumpies and pain under control.  Patches were very successful with RLS so I put up with headaches.  Without patch my legs go crazy. Big factor for me of patches (1mg only) is a raging headache when I wake up in the morning.  Had same headaches on Requip (which augmented and I had to go off).  Wondering if you have experienced severe headaches on Neupro patches.
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    • Posted

      Yes I had headaches with Ropinorole and Rotigotine and augmented on dopamine agonists. Can no longer take them (including pramipexole). Gabapentin was better for headaches (seemed to avoid them), side effects worse (all sorts!) and then stopped working. Now on Tramadol (opiate) 100mg a day taken about 2-3 hrs before bed and it works well. Was having some bad nights and (can't believe it!) I cut out potatoes in my evening meal and now having superb nights.
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  • Posted

    Try to avoid coffee, tea, and caffeinated drinks as much as possible especially in the evenings. A tablespoon of apple cider vinegar with a half teaspoon baking soda usually relieves it in the evenings before bed. Try to avoid sweets at night as well. Try not to eat after 7:00. Green leafy vegetables helps as well. 
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  • Posted

    I have had this for 5 years and have followed this forum contributing at times.This is my perpective. I think you will find that this disease is life changing and often difficult to deal with but there is help. You do need to find a doctor that knows something about it which may not be easy. Doctors or even a psychiatrist that deal with nerve and movement disorders might be helpful. A good family physician would be the best. For me, I have found that ropinorole works well but I absolutely must take it at the same time every day or I have worse symptoms at night. Also I have had to accept that I do not get enough sleep. Something else may work for you. It is a trial and error process. I would caution against to much medication as I have found it can augment your symptoms. Eat foods that include lots of iron and magnesium. Good luck on your journey with this.
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  • Posted

    I have seen where any kind of Antihistamine, workes against my RLS, making it much worse, so I take those early in the day, I hardly drink coffee, or tea, eat chocolate in binges...I never noticed if the chocolate cause any kind of leg crazies..I have been on reqip for several years..can take 2 times a day if needed, I resist taking twice daily because of the sleepiness, and being sleepy when you can't get to sleep is another kind of hell.
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