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Hi...I have suffered from RLS for around 2 years when reducing on buprenorphine on an opiate detox...once I reduced past 2.8mg I noticed that I was experiencing the typical symptoms of RLS...it took a year for me to find out just what it was that I had,ie,RLS...I also found that when going back up to a dose higher than 2.8mg of buprenorphine that my RLS would stop totally...however,my main aim was to get off of this treatment and I am now at the stepping off to freedom point at 0.4mg of buprenorphine...I have been prescribed Ropinirole for the RLS and although it is somewhat effective (not totally) I do NOT get any sleep at all...since July I have had a pattern of no sleep at all for 4 or 5 days and then maybe,if lucky,I will sleep from sheer exhaustion for a few hours and then back to the same merrygoround...I have only been on Ropinirole for several weeks and although I have had some relief from the kicking/spasms etc I am at the very limit of endurance due to lack of sleep...I returned to my doctor today who told me to increase my dose to 3mg (!!!)...current medical thinking is that 1mg is a maximum...and so here I am at almost 3am trying to while away the hours in distraction techniques...I am going to see my hospital buprenorphine prescriber on Monday coming (9th Nov) and will try to get put back up to the dose of 2.8mg that I KNOW stops my RLS and I also get to go to sleep...I feel as if I have no alternative as "normal" GP`s just don`t listen to patients about what works and are so tied up in not prescribing opiates that patients suffer...what is the difference in prescribing opiates that WORK for RLS sufferers and have less side effects than the dopamine agonists etc that have horrendous side effects and are as addictive as opiates (in terms of not being able to just come off of them) ? ...for RLS sufferers it makes little difference as any medication will be taken daily and for the rest of a sufferers life...I`ve been 7 years free of active opiate use that was brought about by hospital admission for burns sustained in a house fire...I feel as though I am being driven into a corner of getting addicted to opiates again just so I can get the treatment I know works !! ...What a mess our health service has become...it is SO difficult to get an appointment at my surgery that at times I have not bothered calling and I have not actually seen "my" doctor who knows me (for 20 + years) for more than a year now...there is a shiny new combined surgery building in my locality that is great for statistics but of little functionality for the actual users of the service,ie,patients...it`s a bit like a tennis match where you call for an appointment and they call you back to see if you "need" one...you,in turn,then try to serve up a valid reason as to why you want to see the doctor...how about "because I am feeling unwell" ?
Rant over...take care...bye for now...miaperson
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