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Room tilting??

Posted , 4 users are following.

Hayhue
Hayhue

Have any of you experienced the room tilting? 

It happens mostly after I stand up and take a few steps. Like I can take my glasses off to wash my face then put them back on, starting walking, and it tilts from side to side. Or this morning I stood up out of bed and started to walk and it tilted side to side again. 

It's pretty fast when it happens but it's scary, nonetheless. 

Anyone else?? 

0 likes, 9 replies

9 Replies

  • patty818
    patty818 Hayhue

    Posted

    Is the room actually tilted it just you feel like your tilted? I have left side tilt when I walk and sit. It feels like the floor is tilting when I walk. All these crazy symptoms make no sense. I just keep walking and try not to let it get to me.
    • Hayhue
      Hayhue patty818

      Posted

      No it actually tilts from side to side. It has only happened about 4 times within the last 6 months and each time it only lasts for a few seconds, say 1-2. It tilts left, right, left then goes away. It happened this morning when I got out of bed.

      It doesn't go upside down. Just to the side, as if someone picked up whatever was in front of you and placed it on a wall to your side. Almost like a pendulum swinging. And it always goes left, right, and then left again.

      I'm currently being tested for MS and I've had 2 MRIs within the last 5 months of my brain and no lesions were found. So Idk if this is a part of Ménière's disease or something else.

    • patty818
      patty818 Hayhue

      Posted

      I hope they get it figures out. I'm sure that's scarey, I would probably be a wreck, I'm not good at having things wrong and waiting is the worst for me.

      I had an Mir 6 yrs ago and had a white matter lesion on the frontal lobe but they said it wasn't ms and migraine related.

      I hope you fell better

  • Waffalobill
    Waffalobill Hayhue

    Posted

    I had that happen to me before. Feel like if you fall your not sure if you can find the floor. Good thing the hallway to the bathroom in my house is narrow enough I can put my hands on both sides. Was told it was all part of the bppv. I think they had no idea and just blamed it. Why I got more tests done.
    • Hayhue
      Hayhue Waffalobill

      Posted

      The room tilted for you? It's so crazy how all this stuff happens

    • Waffalobill
      Waffalobill Hayhue

      Posted

      The worst was 3 days when things moved. Like a hallucination. Wall paper boarder in my hospital room moving like a conveyer. The clock moving with it. Was so weird. Why it's so frustrating they can't find anything wrong. How can you see things moving that you know are not. And not have something wrong with you. Lol. Then be sent home and expected to go to work.

    • Hayhue
      Hayhue Waffalobill

      Posted

      Yes really! Lol I see things move if I exercise then stop moving everything keeps moving. But it's insane what they expect us to push through.

  • gerald164
    gerald164 Hayhue

    Posted

    I experienced room tilting especially when I complete my physiotherapy exercises so there is an element of predictability there for now. But my ENT consultant agrees that this is likely to worsen over time and this is really frightening to think about. I tried to get back into work after a period of long term medical sick leave but could not as that seems to set off alarm bells with my past employer (NHS). I tried to apply for DLA and appealed but got rejected as I did not match their pre set criteria. Apology if this is not the right forum but has anyone filed for bankruptcy yet and how has this been. I need to prepare for any eventualities. Please share your experiences.

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