Roseacha, eczema or psoriasis....I haven't a clue :-(

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I'm a 32 year old female, I've had the butterfly rash on my cheeks for approx 2 years. It never really bothered me, until a few months ago when I realised that I'd get lumps on my cheeks when going in the sun. My doctor told me its roseacha and a little eczema.

My mother has auto immune disease, under active thyroid and has shots of b12 every 3 months. Of late....I'm so so tired. I sleep loads now. And went through an especially bad patch 2 weeks ago where for 3 weeks I literally just slept. I was concerned it was lupus. However no doctors think this. They can't explain my fatigue. They said my bloods were normal and that's that.

Today I noticed a red dry patch on my tummy. Nothing like what I get on my face. Can it be roseacha? I'm so fed up. I also put on weight just looking at a sandwich. I know in my gut something isn't right.

Had anybody else experienced all of the above?

Any suggestions?

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6 Replies

  • Posted

    Regarding the fatigue and weight gain, has your doctor checked to see if you have hypothyroidism as well? Or could be a candida. As for the butterfly rash, it could be perioral dermatitis if lupus is ruled out. There's a Facebook group for perioral dermatitis that's really good.

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    • Posted

      Hi Lyn

      All they did was a TSH which was 2.82. Considering both B12 and thyroid problems are in my family.....they failed to do a full thyroid test... and didn't do b12. Shocking really.

      I'm going back this Wednesday. Going to demand full tests.

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  • Posted

    Hi Katie

    Few things

    Have you ever used steroids or steroid creams? If so please look into TSW/RSS (topical steroid withdrawal syndrome/red skin syndrome)

    Have you had allergy testing?

    I'd suggest you keep a journal, write everything. Where you've been, what you've done, who you were around (you're exposed to their products too), what you eat, which rooms you're in, what products you use. Hopefully you can track something.

    Lastly, what country are you in? Different countries have different protocols etc. But you can ask for a second opinion although it's up to their discretion to follow your request.

    Let us know how you go

    God bless

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    • Posted

      Hi Bella

      Thank you for your reply. No I've never taken steroids. In fact I've never taken any medicat ion.

      As for allergies, I've definitely developed an issue with UV. If I stay inside out the sun or in caps etc I'm fine. No lumps on my face. It's only ever UV triggered. It's mad.....I've always been fine in the sun. It's gradually got worse. ...this year.

      As for the fatigue. Who knows.

      I'm in the UK. I'm definitely going to demand full bloods on Wednesday when I visit the doctor again.

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    • Posted

      Blood tests can't accurately test for food or exposure allergies. Lots of people with anaphylaxis nut allergies have negative nut blood tests. Also they only check for one type of item, just think of how many type of potatoes or apples there are. Also, blood tests can be misinterpreted if the person actually doing the test in the lab doesn't know the persons history which obviously they never do! Lastly, one can be allergic to raw carrots but not cooked carrots, and one may not be allergic to chicken but can be allergic to the proteins released when digesting chicken both of which mean although prick tests are the best way to go, even they can be unreliable. Especially given some allergies don't react to one time exposure but a build up after several exposures. It's a whole complicated thing. Lots of doctors who aren't specialists don't know this stuff. They give blood tests and don't question the results.

      Also regardless of this no blood tests can't test for skin allergies, only patch testing can.

      Hope any of this helps!

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    • Posted

      Thanks Bella

      Well I saw the Dr again today and hes doing B12 and vitamin D bloods next week for me. He said they can't do a full thyroid test as my TSH came back normal at 2.82. Bad really, Considering both my mom and brother are under active.

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