Sad TURP experience !!!

Posted , 8 users are following.

  This is my brother's message to me 2 weeks after his TURP:

  "Yes, it is a b***h. Now, I have both upper UTI and lower UTI. Blood is still continued leaking out. Sometimes it clogged up a long the urethra so that I could not pee. I had to drink a lot of water to create more pressure in the bladder to push the urine down to unclog the old bloods. There is more frequent irritation, pain, and burning sensation during urination (every 30 min or so)..."

   This may sound typical post TURP but the sad part is that my brother, 61, did not even know what TURP was and did not even need it. He was put under for a bladder biopsy (which may not be needed), waking up shocked with a Foley catheter sticking out of his penis, and a urine bag taped to his leg, was told :"Since I was already in, I decided to give you a prostate biopsy also." That biopsy turned out to be a TURP.

   My brother is a highly intelligent person yet real naive when it comes to medical procedures. He told me :"He is a real nice doctor. He said he did this extra  biopsy for me because he really likes me." Sure, he probably also made thousands of dollars on this extra. 

    Even the bladder biopsy may not even be needed. My brother had some abdomen pain together with frequent urination problems for a while so he went to see the urologist. He was given ultrasound and cystoscopy and was told everything including bladder and prostate was fine. There was no prostate obstruction. His PSA has been stable over the years and has never been higher than 0.6. Bladder inside was clean. Urine test also came out negative. No blood. No UTI. Nothing. No urinary retention. So the uro suggested bladder biopsy. 

    While waiting for the bladder biopsy, the pain went away. He now contributed the pain to his change into a diet that is very-low carb, high-fat, high-protein diet, probably causing some kind of irritable bowel syndrome (IBS). The pain went away after he returned to his normal diet, less restrictive in carbs.

    So the only symptom he had then was peeing too often, every 1 or 2 hours. I told him I think it is probably due to his habit of over consumption of liquid, over 3 liters a day, after he measured and recorded his voids. His typical void is 300ml, with strong flow, more than 300ml during the night. This is a very typical healthy void (that many of us wish to have) without any meds. 

    I told him to cancel the bladder biopsy after reading so many stories on this forum about how things can seriously go wrong. My brother often asked me for advises but he never followed them,  thinking that he was the smarter one (which he is not, BTW. smile )His attitude then was: "There is nothing to lose. It is free. Insurance is paying for it." So he went in for the bladder biopsy. The rest is history. Both the biopsies turned out to be negative, which still don't negate the facts that they were not really needed. Other than the current sufferings, my brother recovery still has  a long way to go. 

   I am sure the doctor covered himself up by having my brother signing some papers before the bladder? operation. The moral of the story is: do not have an operation just because it is free and nothing to lose. Sometimes things will go wrong and you will have a lot lo lose. It is what guys like kenneth1955 have been telling people on this forums for years.

Hank

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  • Posted

    I feel so sorry for your brother.  Maybe he will listen to you next time.  To late now.  Did he read the papers before he sign them. It had to say something on the papers or the doctor took it a pond himself.  That was wrong.  I would get a copy of them papers he sign and check.   His prostate should not have been touched if it was a bladder biopsy.  I have a friend he had one done 2 years ago they found bladder cancer.  He had the treatment done and they never touched his prostate I hope he gets better  ken     
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    • Posted

      Thanks Ken,

      I did warn him like you did to many others on this forum but knowing him, he did not heed my advice. It could have been his unsuspecting nature or it could be his strong belief that with his good charm, no would take advantage of him. smile Besides, it came to me as a shock too, a bladder biopsy turning into a TURP.

      BTW, where have you been, absent from this forum for quite a while ? Don't let few ultra sensitive people deterring you from your mission of saving others.

      Hank

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    • Posted

      Hank  If that was for me I did not have internet for a while and then went on vacation.  I am not going anywhere.  To many doctors are not giving the right information to there patients.  Men are still going to do what they feel is right for them but they should know everything and get the pros and cons of any procedures.  It is your right.  Waffalobill   You are right.  He is SCREWED  Take care Hank.  Keep a eye on your brother   He is going to need you more now then you know    Ken
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  • Posted

    If your story can be proven, any good medical malpractice lawyer will grab this case. Good luck.
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    • Posted

      Malpractice is a tough one. First you need another doc to confirm damage was done. That's almost impossible. Then paperwork he signed needs to show he didn't give consent. Docs have the best lawyers. Malpractice suits take years to investigate. Your lawyer has to be able to invest alot of time and money into your case and be sure he's gonna win so he gets paid. Alot won't do it unless they think they can get a settlement without waiting for a trial.

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    • Posted

      Lester, Waffalo,

      I did not ask, not wanting to make him feel worse, but knowing his trusting people nature, I am very sure he signed anything that was put in front of him before the op, including his house deeds, except he did not own a house. 

      I did not want to suggest legal course to him because it would make him looking and feeling bad.

      Hank

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    • Posted

      I don't know where he is, but in the states he not only needed to give concent, he needed to give INFORMED consent. The papers he signed may well not stand up in court.

      Neal

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  • Posted

    Anyone contemplating urological surgery should get a second and even a third opinion.  Then spend a month reading everything they can find.   I was similar to your brother, with a slow stream and nocturia ( getting up several times each time to urinate).  Never had acute retention, never had a UTI, never had an STD.  A cardiologist referred me to the urologist telling me he was a great doctor.   I went there expecting to have a med I could tolerated prescribed.  Instead, I was told all the bad things that could happen if I didn't have TURP.  I rushed into (had GreenLight procedure), and have been highly incontinent ever since (18 months and counting) and will probably die this way.   The specific cause is complex strictures in and beyond the sphincter that are too complex for repair with a reasonable chance of success.

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  • Posted

    He needs a good lawyer.

    Neal

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    • Posted

      My first doctor had me doing months and months of PT, saying it might take a year to get back to continence.  At my last visit with him, I was distraught, and asked about getting an AUS (artificial urinary sphincter).  He said, "I will not even talk about that until a year has past as we would be admitting to failure."   I then continued months of PT, doing kegels and electrical stimulation of pelvic floor.  Finally I looked for another doctor, which took some months.  I had my records transferred, and nothing in them mentioned strictures.  Strictures were found right at the sphincter which immediately explained to me the symptoms I had along with the incontinence.  (Sharp sting as the sphincter contracted at the end of peeing in the middle of the night.)    I had dilation, waited months and the strictures came back.  I had a urethrotomy and they came back after three months.  I contacted one medical injury lawyer and he wasn't interested, and he informed me that there was a one year statue of limitations in NC anyway..  (I really didn't want to go that route any way.  I just want to recover some QOL and be able to travel a bit, or ride my bike again.  It's not a money issue, although even with medicare and BS/BS, with my trip to see a west coast specialist, I'm about $10 K out of pocket by now.  I later wrote another lawyer, and he didn't even respond.)

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