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I had a saggital sinus thrombosis in my early 20's, to this day we dont know why? Then I had a PE in 2013 resulting in life long warfarin, however the same pain i experienced during the 1st PE is still ongoing although it is intermitten but when it comes it comes very strong. ( very scary) Last year I started coughing blood and a CT scan revealed a shadow on my lung which has been dismissed as quite common. This stopped but now has returned,
I feel like I'm back to square one with this pain and the coughing blood. I initailly thought it was the warfarin as my levels have been very irregular for months. Warfarin levels now sorted and the coughing blood has returned.
Spoke to a Dr on Monday who said the pain I'm experiencing maybe nerve damage? Or similar to phantom pains? They didnt really have a clue.
My question is, Does anyone experience the same pains after having a PE? Will this pain go away or is this something you have to live with? I'm coming up to 2 years from the PE surely this is not normal.
I have recently been breathless and the pain got worse together with coughing blood I went to hospital and left with NO answers.
Any advice would be appreciated.
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