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Sasha

Posted , 4 users are following.

anthea67832
anthea67832

Went to a conference on migraine yesterday. Lots of new chat about Aimovig. Anyone tried it yet?

1 like, 3 replies

3 Replies

  • gaye39866
    gaye39866 anthea67832

    Posted

    Yes.  Just took my 3rd dose of Aimovig a week ago.   I seemed to have gotten palpitations the first few nights from it, but it hasn't helped this time at all yet.  I am on magnesium combo with butterbur etc but am now constipated which is the main side effect of Aimovig. After my first dose, I thought it helped, but I had started the magnesium combo a week before and was already getting headache free days from it.  The studies aren't very impressive showing 1 or 2 less headache days a month than without, but for some people it seems to be working well.  I'm having headaches daily now so am in a rebound situation.  I'm taking the longest acting triptan which is Frovatriptan,  and when I take it soon enough, I don't have a headache that day, but it is hard to gauge sometimes.   

    There is a FB page for Aimovig patients that has a lot more patients reporting.  My migraines started in my 40's around my period but after hysterctomy, they got much worse.  When I'm on a preventive, I do better, but haven't been able to tolerate one lately.  Need to get back on one.  

    That's my story.  Downloaded a Curable app with meditations, brain training, and neuroscience of pain info.  It's encouraging but too soon to tell if it will help.  

    Gaye 

    • joan33480
      joan33480 gaye39866

      Posted

      I live in Ireland and aimovig will not be here till the end of 2019. My neurologist is trying to get me on it as there are going to give it to a few people on a trial basis. He says there is nothing left for me to try .I have even gone to UK to see Peter Goadsby  3 times. My Mother died suddenly in January and my brother in law had a heart transplant 3 weeks ago and is critical, so a lot of stress. My doctor says my migraines have gone through the roof with all the stress .Tomorrow I go into hospital for a total knee replacement,very nervous about operation. My migraine pain is worse than my knee pain.I feel a burden as my very good brother will have to look after me. We live in the same house as we cared for my 95 year old Mother. Do you live in USA and getting the aimovig there. Wish me luck,all the best Joan.
    • gaye39866
      gaye39866 joan33480

      Posted

      Hi Joan. 

      I also take the longest acting triptan called Frova. It’s so expensive that I get it from a wonderful Canadian pharmacy. It takes 2 hours to work but if taken at very first sign or as a preventive, I don’t have headache all day. It is not meant to be preventative but doc gave it to me to break the cycle of rebound migraines. No side effects probably because it’s so long acting. If you want the name of pharmacy, let me know and I will give you my email. I don’t know if I can put it on here. I am in USA. Since drug companies make more from us here due to our unregulated system, I’m sure that’s why we got Aimovig first. I’m having good results from the guided meditations and other exercises in Curable app. It helps me calm my brain. Also trying a few hypnosis appointments   Not sure Aimovig has helped at all. If you google studies on it, and articles, it will give you a picture of what to expect. I’m part Irish and pretty much all U.K.  also a lot Scottish. Been twice to Ireland and loved it.

      Best of luck to you. Gaye

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