Scabies for over 10 years household of eight cant get rid of them :(

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So my story is. It began with out first daughter. She was diagnosed with eczema at 2 years old. To come to find out multiple doctors have been wrong. She has had scabies this entire time and she is now turning 12! My husband was the person she originally got it from. He has had scabies almost half his life. Doctors kept telling him it was bad skin. Now for the past 6 years I to have been dealing with scabies with no idea on what it was! So now for the past year I have been struggling so hard to get rid of scabies in our home! We have 6 children. The only reason I figured out it was scabies was that they started to finally spread to our kids. Now I have tried everything from bleach baths to shea butter, to ivermectin. I cant keep up with the sanitizing with so many children. Were like a tiny infested village. I can keep them off the kids constantly fighting back and forth to keep the kids from catching them. But my husband works 14 hour days 6 days a week and has little time to actually apply any treatments we have tried to make it work. I am just at a loss and feel 100% hopeless .

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  • Posted

    Hi dressobsessed,

    I can relate- was diagnosed with eczema for over a year, treated with steroids.  When it starting spreading  to family members,  the Derm drs just kept saying - it can be  a coincidence - after 22 yrs of marriage you are both getting this at the same time, oh and your children, and your grandson.  Seriously a joke!  We had biopsies and all came back dermatitis. ?  Whatever that means.. which really meant label it eczema.   The worst Easter of my youngest daughters life was the biggest blessing for mine.  (I remind her a lot), she saved our family! Destin to forever needles and steroid treatments that only mask and temporarily heal, while causing complete havoc on our bodies.  I gained over 30lbs and lost a majority of my hair, all in the name of eczema.  Easter weekend my daughter started itching for the first time in the year long battle.  She stayed away on purpose, very clean, tidy and SEGREGATED .  Not the way a family should be, but we all knew something was wrong.  Easter weekend it happened, itchy spots began to surface.  Our biggest fear came to light. Myself , my husband, my oldest daughter and our grandson had all been dealing with “eczema” for almost a year.  Our youngest daughters eczema was very different from ours tho, even while at the derm Dr . Blowing us off with another “eczema “ case, my daughter says I really believe there is something in my eye lash??  The dr. Acting unwilling to look, finally gives in, after all the eczema hype, looks at her eye and says - oh my, I think there is something on there.  Oh my, oh wow!  There is a something on YOUR eyelash... oh my goodness , I’m so sorry .. this doesn’t look good.  This looks like scabies-or possibly lice.  

    I busted down in tears!  I knew there was no way we all contracted eczema in the same year!   My whole family was destined to become slaves of a needle every 2 weeks to control our ezcema ! The worst holiday of my daughters life - saved all our lives!  If it wasn’t for her bug actually going to her face.. I don’t know if we would have ever beat this parasite.  We HAD, what is believed to be body louse , or lice.. however you say it.  It mimics scabies to an extent , but has none of the “usual” patterns.  It can tho, be treated just like scabies!   It took so much work.  More work than anyone infected wants to do.  I can relate more than anyone how exhausted I was just from the battle of living day to day.  The itch, the bites, the constant reminders of sores covering my body.  My sores were so bad I had blood blisters surfacing my arms and legs.  The drs said this was from itching, but they appeared right before the itch.   There is no quick fix.  We moved, trashed out mattresses, our couch , pillows, anything fabric.  I live by leather- even pleather!  Fabric is a breeding ground.  We did the permithum twice each at the same time ivermectin.  We did not shower for 48hrs and we did the treatments at the same time .. it’s an all In sync treatment .  We used/ use sulpher shampoo- aka selsun blue for our body wash.  Tea tree shampoo and condition.  I mix tea tree oil with coconut oil daily and lather it on from head to toe daily.  Every family member .  We washed bedding daily.  NEVER SLEEP IN OR ON THE SAME CLOTHES  for more than 1 time.   Everything must be washed. I did use borax and the hottest temp possible in our laundry.  Myself, I had The hardest time kicking these buggers.  I suppose I was the host.  My body would start to heal and then my head would itch.  That’s when I knew it was coming back. I finally infused garlic cloves with coconut oil and rubbed it on every inch of my head.. slept in it for the night and washed.  I did this 3 or 4 times or when ever I would feel the “tingle” of itch.  2 amazing things happened. .. my hair is growing like crazy and no more itch!  I also spot treated and my family members with permithium cream every time I felt an itchy spot!  Also listerine in the beginning helps with the itch.  Spray it on your body before exiting he shower.  AND windex!  I saw it on a past forum somewhere , and these things work.  My family and I are 3 months itch free.  I am wearing shorts this summer, going out again, and happy.  WE use selsun blue for body wash, tea tree and coconut oil for daily moisturizer- head to toe- and tea tree oil shampoo and conditioner. We do not use the same towels twice or wear the same clothes, more than 1 day.  I did steam mop all my hard surface floors day and laundry was never ending!  But we are finally free!  I have a tube of permithum in my drawer for “just in case”. Thank god daily we have not had to use it in 3 months!!! 

    My prayers go out to you and your family. This is a war.  You must fight to win.  Fight with doctors, fight thru the pain, fight thru the fatigue.  I thought this would never end.  It finally did , myself,  I feel reborn.  No one would understand unless they have lived thru this awful, debilitating way of life . 

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  • Posted

    Well...I want to cry with you. This is hard and it takes rearranging your emotions and a test in complete self control. Giving up is not an option. Your a mother and your kids depend on you.

    However, you shouldn't burden your kids with the knowledge you now possess. Once, the schools find out from them talking about it or other kids picking on them, you will most likely end up getting a visit from the protective services.

    That being said, the mental game begins. First, thing first, do not go crazy...cleaning, scrubbing, buying every product you read, etc. Simply, be aware of the situation and try things you incorporate in you daily life. You cannot wipe this out over night, over months or maybe even years. This is the reality your dealt. Its a bleak horror your mind needs to comprehend. Yes, let the emotion build and the hatred become your motivation. These things are so bizarre and amazing, you will loose yourself unless you come to grips with your role as a mother. I have been dealing with this for at least 6 yrs and looking back, I have probably had this for nearly 40 yrs. It wasn't until recently, I have found better leads. I have a daughter and a crazy woman who lives in absolute denial of this problem. She has it bad and claims its cellulitis. Its not. She had this when I met her and I truly, believe we got together indirectly because we both unknowingly had it. Pheromone or something like that. What I have done to keep it in check and dial it back is, rosemary oil in a diffuser to ward off anything from hanging around. Listerine gold color or house brand for head. I found the green engine degreaser at the self carwash causes them to practically fall out of your skin. However, In my case it has only made me that much itchier. What is working better than anything is this stuff called feed-n-wax. It is wood polish and conditioner from home Depot. It kills them by suffocation and forces them out. When you add the 38% permethrin you get from a feed store and some O'Keefe's skin repair, rosemary oil, and whatever else your heart desires, it creates a amazing breath of fresh air. Exfoliate with green 3m scrubbers. Wash all laundry in hot water, borax, baking soda, non bleach alternative and biz. high heat dry. It may be over kill but, at least the clothes are without hanger ons. You may have to do all the leg work behind the kids back. The custom lotion is working great and these things are draining from my pores. Every hair follicle and pore on my entire body has been occupied. I look normal but, that's just it. I would have to say, nearly everyone has this they just don't know it. Once your mind and body become fully aware, the body begins to fight back and these things react causing outbreaks. So, talking about it to your kids can cause stress anxiety and make matters worse. These things know what you know as if, they are aliens trying to control you. Make you want and do things you wouldn't normally do. I wish I wasn't kidding. Don't give them your power. Your going to need it to make your way out if this nightmare. Fighting and arguing won't solve anything. Strategy and a developed easy routine is what you need. Let the kids be kids. No one said being a parent was easy.

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  • Posted

    Hi, I hope you are still following this forum.  I went thru this for 2 years with many doctors, dermatologist, infective disease doctors.  When I finally figured it out myself I did extensive research.  It became crusted in areas and the Ivermectin and Perm cream were not working.  I found a research article in Europe where they give patients "Moxidectin".  This is not available to humans in the USA except for as a horse wormer, brand name "quest".  Ivermectin is out of your body in a number of days but the moxidectin stays at high levels for months and ensures you kill everything.  One dose and my husband and I were cured after 2 yrs.  That was 4 months ago.  We are still getting things out and healing but each week is better.  I hope this helps.  With the lack of knowledge of our USA doctors and no skin scrapes done in the office I know the horror and frustration and work is exhausting.  And the Anger at the whole mess.  Forgive them and be well.  I prayed for you and that this message finds you.

     

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  • Posted

    Gosh. I dont know. I feel for you and your family ive been misdiagnosd..for25 years..just diagnosed myself. 6 months ago.

    I cant even rid them!

    Ice done everything!

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