Scalp is very painful, Itchy, flakey, oozing blood & sticky fluid. Help

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My scalp has been getting worse with the above symptoms for the past few years. Starting with an itchy scalp. I have seen the doc about it several times over the past year, but the problem is still there.

Out of the blue, my scalp started to flake, so I used medicated / specialist shampoos - over the counter stuff - & it kept it under control up to a point, but didn't get rid of the problem.

It has now become so painful that I got some (steroid) shampoo from docs & tried it for the first time on the 8th of May 2016. Since then I've been in agony, vomitting & severe scalp pain - I ended up in Urgent Care at our hospital (I'm in the UK) last night (12th May 2016)

So

I'm assuming that the steroid has gone through my scalp as I've got scabs which ooze when they are disturbed. I'm assuming that the steroid is in my system, causing problems.

The doc in the hospital, seemed uninterested & said go back to your GP & get a referral to see a specialist -which may take some time. He just said it was Dermatitis.

Meanwhile, has anyone any suggestions as to what I can try, the pain is horrendous, painkillers are not working. The only thing I've tried so far is warm water to soothe my scalp. (I can't brush or comb my hair, haven't since 8th May) I'm getting to the point where I could chop my hair off. (I have lost a bit of hair - no bald spots but it is thinner)

The liquid filled bumps are oozing & NO, I'm NOT scratching my head, even though I want to. (I've even got somewhite cotton gloves to stop me from scratching)

I'm disabled, I'm on a low income, I can't afford private medical care,

Help

 

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  • Posted

    Hi wen I have just read your thread and I am amazed you got the treatment you needed I am suffering the same thin could you put up what the exact name they said you have and what treatment they give you I would appreciate it no one here in N.Ireland knows what it is or how to treat me. Thanks
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  • Posted

    I have this problem and I literally tried everything, NOTHING worked... EXCEPT!!! I used nizoral shampoo and would scrub all the scabs and flakes gently, washed my hair twice. Take a spray bottle fill half way with hydrogen peroxide fill the other half with bottled water and sea salt. When you get out of the shower starting from one side of your head, part it all the way down. Then spray the mixture of peroxide and water, keep parting making sure to get all of your scalp sprayed with the mixture. You don't really want to just dump it on your head because it dries out your hair. This has been a MIRACLE for me!!!! It will clear up within a few days ! Once it has cleared up just keep using nizoral shampoo. If you see a flake or feel your scalp starting to itch getting a flare up again just do the spray on the scalp. I'm telling u this works !!

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  • Posted

    Hi there,

    I'm worried sad I just found a very sore looking wet patch in my 9yr old daughters hair with clear sticky liquid that turns into yellowy clumps in her hair. It's weeping a lot. I noticed the clumps yesterday but thought it must be food she got stuck in her hair! She also has another hard lump that has appeared lower down her towards her neck, which she said is painful.

    I'm taking her to the doctors in the morning but I feel like I get fobbed off - I've heard stuff like it's viral, or shes probably got dry skin etc. (she has mostly always suffered nausea, loose stools, rashes, abdominal pains along with more recent bouts of chronic mouth ulcers. She has already had 2 oral abcesses in her little life leading to extractions).

    She's had a blood test recently for inflammatory markers, but these came back normal. I feel like she can't just be that unlucky, she's only 9! sad

    Thanks in advance for any comments suggestions or advice. smile

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    • Posted

      Hi there. I happened on this thread and wondering what you ever did about your daughters scalp? Sounds just like my mom's problem.

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    • Posted

      Hi,

      Very sorry to hear about your daughter' s problems. Please read my answer to[url=https://patient.info/forums/profiles/wen06862-386908] wen06862 for scalp trouble. You are right, going to see a doctor usually only makes one feel annoyed. Within 60 seconds you have a piece of paper in your hand and are heading toward Boots to become a lucky owner of some useless product that only makes things worse. Been there...

      I am wondering whether your daughter has an allergy to dairy, her stomach pains could well indicate something of that nature, it is very common. Or, her gut bacteria could be out of sorts, so live yogurt will sort that out. Any yogurt that says 'lactobacillus' on the pot will do. There are some lovely ones with fruit, plenty of choice. A small pot a day is enough for a child.  Also, sugar destroys gut bacteria balance and white flour products do the same, so avoid those as much as you can.

      PLEASE stop using any supermarket shampoos, even those for children. They are irritating to scalp, I myself make my own as I cannot tolerate any shop shampoo. Baby shampoo for example  makes my head feel like on fire. See again info on 'wen06862 '.

      Lots of love,

      Marju

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  • Posted

    Hi,

    I am very sorry to hear that you have so much trouble with your condition and hope to be able to bring some relief to you. My daughter had severe eczema in her childhood and as given the usual steroid-and petroleum based gunk treatment which did not help. She eventually 'grew out It' and years later I started to study natural eczema treatments and now have some knowledge which has proven very useful  and helped many sufferers. One lady had eczema from childhood and eventually it got so bad on her hands that she had to wear gloves at all times and between every finger there was a crack. Her doctor had given up with her and so she heard of me through my daughter and we tried a trusted method on her hands and it began to work in two days. 

    It is obvious to me that the steroids and other medications have ruined your scalp and it is in such a poor state that it really needs very gentle treatment, no more medicines or anything from the doctors. The 'medicine'  you will benefit from is Calendula plant, also called Marigold. You need to either pick fresh flowers and leaves, or buy it dried, for example from ebay, it is very cheap. Then you make a 'tea' as you do ordinary tea, pour boiled water over a handful of Calendula in a jug, cover with a saucer and let steep 15-25 minutes.Then drain through a sieve, press the liquid out with a spoon to get everything out, and use on the affected part as a wash. In your situation, just pour onto your head and leave it on your scalp. Do not wash away but let it sink in and soothe. You need to do this several times a day at first as your scalp will begin to heal, but it does not happen in few minutes, give it a couple of days. Calendula soothes and calms down itch, it heals damaged skin and closes wounds. It is truly a miracle plant and I tell everyone with eczema to just wash the affected part with the infusion (tea), soak painful hands in it as the lady I mentioned, or dab on face with a ball of cotton wool or muslin cloth. You can also buy Calendula cream, but I would not put any cream on your head, only the infusion. Avoid all medicated and supermarket shampoos to start with, let your scalp heal and calm down.However, it is important to keep clean, so you can buy a shampoo which contains Decyl glucoside. I copy and paste here for you: "Decyl Glucoside is obtained from 100% renewable raw materials, through a combination of plant based fatty alcohol, decanol which is derived from coconut and glucose (corn starch). Decyl Glucoside is a mild, and gentle, surfactant and because it does not dry the skin it is ideal for the formulation of personal hygiene and toiletry products.!" In fact it is so mild that it is used in hospitals to bathe premature babies whose skin is too delicate to cope with any other kind of soap.

    These are the ingredients you need and with patience they will help you and Calendula is very cheap. If you have a garden you can grow your own as well. The shampoo is of course more expensive, that is why I make my own as my scalp does not tolerate any shop shampoo either. The ingredients are costly to begin with but a lot cheaper on the long run than any ready made shampoo.

    I must also mention also that your general health and diet are  important. Drink plenty of water, eat fruit, avoid sugar like a plague and try to eat wholemeal bread and cereal, brown rice etc.  Also take a good multivitamin plus mineral tablet daily.The skin, including your scalp, is a large organ that needs looking after from the inside even more than the outside, so take care of it. I know that stress which skin conditions bring along, there is no peace and the stress alone can make things worse. Try to relax, enjoy the goodness of Calendula and try not to worry. 

    God bless,

    Marju

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  • Posted

    Hi again...

    I just read your update and am so happy to hear that you found the reason for your problem and a cure, great! My message was not needed but maybe it will help someone else.

    All the  best,

    Marju

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  • Posted

    This sounds a lot like my condition. I have been diagnosed with a rare condition called lichen planopilaris. In relation to this condition is lichen planus which affects the skin and mucosa areas. So far it is understood to be autoimmune and there is no cure and hard to control. A biopsy will give the definitive answer!
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