Scan

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What a friendly bunch you all sound. I had no idea that Ovarian Cyst could be so painful or cause so many symptoms, a lot of mine have been masked by having systemic lupus and an overactive thyroid so diagnosis has been difficult. But it does look like they are along a more appropriate path.

Having had a camera up my bowel looking for cancer (the most painful experiance ever, i was told that was due to my hysterectomy). No cancer found.

I am now being told it could be an ovarian cyst. Having read some of your symptoms i would like to ask, have any of you suffered with bladder leakage because i am being fobbed off with its stress go away and sort yourself out. I know i have had four children and that sneezing has been a problem for a long time but it got really bad in a matter of days of the pain starting in my pelvis area.

Next week i have my scan to see if they can see anything, but i know i will have to wait for at least 3 weeks for the results. I need to have some idea of what you think of the bladder problem as i don't know whether to go back to my GP and push for treatment again or to wait for the scan results.

Lizzy

0 likes, 14 replies

14 Replies

  • Posted

    Hi Lizzy welcome to the forum, and i'm sorry to hear you've had loads of problems, i too started being told it was down to my water works, in april 08, they said i had a water infection, but i was in a lot of pain stomach and bk, then i went bk because i was still ill, then i was referred for a scan which showed i had a cyst just under 5cms and alot of little ones, so then i got referred to see a gynae who sent me to see the physio because he said i had an overactive bladder, they tried me on some medication but it set my reflux off so had to stop them, then i had to see the phyiso twice a wk for 3 wks to have vaginal stimulation because my pelvic muscles weren't working and they said this could be affecting the bladder, it didn't work really, then i saw my consultant in oct who decided to put me on prostap injections, i had one that day and one in nov which lasts for 3 mths,they shut the ovaries down, but send you straight into the menopause, which is the pits but i'm pain free now, ive got another scan and blood test 7th jan and i see the consultant 21st jan,in they will decided if they will remove my ovaries, i had hysterectomy 11 years ago, i'm nearly 44yrs old, i'm hoping they will.

    Mine has taken nearly a year to be sorted out, but it depends on your hospital and consultant, some of the girls on here have been really lucky, so i hope you don't have to wait long, please feel free to contact me anytime and i'm sure the girls will say the same.

    All the best and good luck with your scan, i got told on the day , so hopefully they'll give you some idea.

    Kim xx

  • Posted

    Hi Kim

    Thanks for responding so quickly its great to chat to someone with similar problems and i am also almost 44 but my hysterectomy was only 6 years ago and was the best thing i ever did. It changed my life. :lol:

    I think i must be one of the lucky ones with the health service as i have an excellent rhuematologist (lupus consultant) although i only see her once a year she gives me a very good going over and spends as much time as i need. It was her that realised i had a problem and thought it was the bowel which is why i ended up at the gastro department. Six weeks from start to finish for all tests.(Any possible thought of a problem she just refers me directly to the appropriate department)

    My GP put all my problems down to anxiety and depression because i went to peices last year and they had not seem me for 4 years previous to that and so they don't know me. So every time i go they suggest its all stress related. I also think they don't know anything about lupus so i think they hold back on treating me. Which has made me doubt my symptoms as there is always that thought in the back of my head is it just anxiety related.

    Have you had many menopause problems on the injections ? as far as i can tell i suffer from no hormonal problems and so hope the menopause will be the same.

    I hope your consultation goes ok on the 21st. Do they prefer not to remove the ovaries before a certain age?

    lizzy

  • Posted

    I do get flushes in the day but the nights is the worst, i can get a least 3-4 or more in a night so i end up fighting with the bedding and i only get about 4 hrs sleep so when i'm at work i'm exhausted, i could have hrt but i'm trying to wait till the 21st and see if they are removing them, i don't like there's an age thing but my consultant said it's more complicated to do after an hysterectomy.

    Ive got an underactive thyroid so i'm a bit scared of being cut again because when i had my carpel tunnel done the scar took ages to heal and i had to go to physio for ages to have heat treatment.

    You are really lucky with your health service where abouts are you from ?

    Kim

  • Posted

    Hi

    Do you have any carpel tunnel problems now? Was the opperation worth it?

    I wear sexy splints in bed on both wrists every night which i find helps a great deal, not brave enough to have the injection they keep offering.

    I live in Derbyshire and i think the service is the same as any other place in England as i had to wait 8 weeks to see a thyroid consultant and then for a second visit it should have been 10 weeks but first available slot was 22 weeks. That was on my GP referral. I think rheumatology are just very good.

    Liz

  • Posted

    The operation was worth it because ive no more carpel tunnel, i had the injection first and oh boy did i regret it because i had a reaction to it, my hand swelled up like a balloon and the pain was worst than before, the injection wasn't that bad, ive even had them in my shoulder because ive got abit of arthur in there, so in another words i'm dropping to bits lol, but serious i never had any problem's till i found out about my thyroid, my friend is under active and she's the same.

    What day is your scan ?

    Kim

  • Posted

    Hi

    Thanks for chatting you are the first person i have come across who is about my age and seems to have as many problems as me. My family and friends are great but the anxiety and depression was the final straw for us all. I had no idea it could take hold so easily and be so hard to recover. It was the overactive thyroid that set me off Aug 2007. Since then it has gone on and on.

    Overactive thyroid (still normal after 8 months after i refussed to take any more medication because it made me so ill. They gave me 2 weeks)

    Carpel tunnel

    Tennis elbow

    skin rashes

    high sensativity to all sorts of creams and pills

    Asthma back (4 years with not one attack)

    irritable bowel

    slipped disc

    anxiety + depression (all with own set of symptoms)

    Then i had 2 weeks of nothing thought it was all over and i could get on with life.

    Bladder control gone (two courses of antibiotics)

    Pain in my side

    Really bad stomach acid (hiaetus hernia)

    Thickened colon

    Diahrea

    Joint pains + swollen hands again

    Weight loss again (thats good as i was overweight)

    Spotts (not had those for years)

    Tender areas in pelvis area.

    So my way to deal with it all is to sleep which means i sleep about 14 hours a day, it means i don't have to deal with the pain.

    Scan tuesday not sure what they will find i hope nothing, but then it means its all in my mind.

    The thyroid does control your immune system? I had no idea it made problems for healing.

    Are you looking forward to the new year? I am the kids are going away to germany with music centre so i have decided to book a short holiday for my husband and myself as he deserves a big thankyou and we both need some fun.

    Take care of yourself.

    lizy

  • Posted

    Hi Lizzy

    I am looking forward to the new year, ive got a new grand daughter on 15th dec 08 who is a beauty and ive got 2 other grand daughters who are 2 they were born 13 day's apart, and my sons girlfriend is pregnant and has her first scan on monday so im so excited i'm hoping they have a boy/boy's because she has twin girls from another relationship and they are 2 on monday, so my son and hubby are out numbered lol.

    I was off work from end of june till mid oct with depression and my cyst, it's not nice and unless you've been through it no-one can understand how you feel, my hubby as been alright but doesn't understand really or even asks me how i am some men are like that, he's only been to the hospital with me once, he's not even offered to swap his day's off like this wk he's off thurs and i'm at the hospital weds, i know he can't do anything but it would have been nice and when i go on the 21st to see the consultant he's not offered and he'll probably be off on the thurs again.

    We will have been married 25 yrs end of june i wonder sometimes how weve got this far lol.

    I wish i could lose weight i'm heavier now than ive ever been, years ago i lost 3 an half stone with weight watchers but i can't get bk into dieting, wish i could.

    Weve not booked an holiday yet because we are supposed to be going to a wedding in scotland in sept in a posh hotel so it's expensive, at the mo haven't decided if we are going or going to prague for our anniversary, if i had my way we would go to prague.

    I'm glad weve got chatting aswell because like you ive no-one my age who has as much things wrong with them and it's nice having some-one who can relate to them.

    Kim

  • Posted

    Hi

    Wow grandchildren i've not got to that bit yet am looking forward to it but hopefully not for a few more years yet.

    It must be great to be a grandma you get to do all the nice things and then hand them back.

    So do you just have 2 children ?

    3 girls and a boy 19 year old at Uni a 16 year old last year of school(shes not handle my illness very well at all) boy 14 and another girl 12. Been married i think 22 years not very good with dates.

    25 Years is a long time to be married hope you get the chance to do something nice.

    I don't ask my husband to come with me(I'm not sure i would like the questions he would ask) he was quite upset because i had asked my eldest daughter to come when i had the cameras done. The time before i took my 2nd daughter just to show her i wasn't dieing i thought it might help her. But normally i go on my own.

    Do you have to starve for your scans? I'm not allowed to eat for 6 hours before and so unless i get up at 5am no food from tea the night before.The full bladder may be a bit of a problem thought i might get to the hospital early and do the drinking there so that i have no accidents!

    I hope your scan goes ok next week.

    Lizzy

  • Posted

    Hi

    No i'm same as you ive got 3 girls and i boy, how uncanny is that ? my eldest daughter is 24 on the 8th of jan ,my son is 23 in march, my other daughter is 20 and my baby is 12 in may, she loves being an auntie to the girls and i love being a nana and ive seen 2 be born because i was my eldest birthing partner and i was honoured to be there.

    No i don't need to starve for my scans, i'm having an ultra sound one, which are you having ? because it sounds more like a ct or mri one.

    Oh yes the full bladder is awful on my last one they were behind an hour and i was bursting, hope it's not like that this time.

    Good luck on tues

    Kim

  • Posted

    Hi

    Well i never fancy that. It is fun having a large family hard work too, but never a dull moment.

    I am having a ultrasound abdomen/pelvis scan and a ultrasound transvaginal scan as well. Not looking forward to that part. I supose it must be to do with the fact that the gastro department have sorted it and not gyni. Of course this is not the first time theyv'e decided not to tell me everything. I only found out when i got my other results that they were looking for cancer of the bowel.The gastro doc seemed very sure it was ovarian cysts.

    So you had your children fairly close in months. Mine all born in Oct apart from 1 which is sept. Very exspensive time of year.

    Good luck on your scan next week too.

    Lizzy

  • Posted

    My scans the same as yours, oh boy when they push into you tum it's awful cos you bladder is so full, she said to me i'll just get a doctor so at that point i knew she'd seen something, then he started prodding and all the time i'm thinking please don't cos i'm going to pee and at this point he tells me ive got a cyst and loads of little ones and he needs to do an internal one to get proper measurements etc, well i just said i'm sorry but i will pee myself if i don't go to the toilet, i couldn't believe i just blurted it out like that :lol: but i had been waiting over an hour, he said that was fine, i would have been horrified if i'd wet myself and my daughter would have cos she went with me. :oops:

    Kim

  • Posted

    Hi

    Thanks you filled me with confidence and made me laugh to so i will be able to go to the loo before they prod me up there,? cause like you i would be mortified if i leaked and so would my daughter as she is coming with me too.

    I wonder why i'm not allowed to eat for 6 hours before?

    Thanks will go to sleep with a smile on my face.

    Lizzy

  • Posted

    Hi Kim

    hope your scan went well today?

    Mine did yesterday even managed not to leak. They told me nothing to find thank goodness as i'm not sure i could cope with anything else.

    Now i shall spend the time pulling myself together as the pain must be stress related.

    Take care of yourself.

    Lizzy

  • Posted

    Hi Lizzy

    Thats really good news, i bet u was so relieved ?

    I had mine today and the cyst as shrunk a little bit, i even got to empty my bladder in between both scans because it was too full :D , i won't know if they'll still take them out till the 21st, in away i'm hoping so.

    Well it has been nice chatting to you and i hope you don't get anything else.

    Take care

    Kim

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