Scared

Posted , 4 users are following.

Hi, I've suffered with asthma since just after the birth of my twins 5 years ago, I was competly fine before then so was strange to me to suddenly develop this illness, so anyway ever since I was diagnosed ive been in and out of hospital a ridiculous amount of times, mostly on high care wards but have also been in intensive care a handful of times, at first my attacks didn't scare me too much, of course they were horrible but with every attack Im more and more scared, I've come to a point now where I'm scared just incase I have an attack, if that makes sense? I suffer from panic attacks Also and a lot of the time I have panic attacks because I'm scared to have an asthma attack, I have my peak flow meter so I can know how good or bad my breathing is but even if it's just a little below usual I find myself trying to keep blowing to get a higher result and if I don't i panic then I struggle to breathe, It's hard sometimes to differentiate between the two and I often feel like they both set the other off? Sorry this is my first post, never spoken to anyone about my asthma before other than doctors so I hope this makes sense? 

So guess I'm asking if anyone else struggles like this? X 

1 like, 11 replies

11 Replies

  • Posted

    Hi, sorry to hear you are having a rough time with your Asthma, my own was only diagnosed about 4 years ago (about age 47) after a couple of years of various breathing issues. Once diagnosedan treated it was v stable.  Until last September that is when i had 3 a 4 chest infections incl. pneumonia which knocked me sideways.

    my GP referred me to respiratory specialist consultant who diagnosed acute Asthma and Eosinophilia, and we appear to have it on the back foot after 12 months constantly adjusting medication, plus getting a lot more exercise and losing a few kG has helped a great deal, using a gym helps me a great deal.

    dont let your PF measurements stress you, sounds a bit like some anxiety issue, which i can understand, just do 2 measurements and record both for your Dr, chart your best results AM and PM.

    i now take much better care of myself, exercise and diet wise, but also I see my GP straight away if i suspect i may hace an infection again.  My breathing difficlties last year scared the daylights out of me, being a non smoker and needing a nebuliser to breath is v scary as i am sure you know too well

    The thought of another attack keeps me focused on changing my diet / exercise and general lifestyle together with the medications to help fight asthma as best i can.

    Winter is always worst for me

  • Posted

    Hi dondons it's scary to cope with but you have to find a way to be calm that will help. So taking your peak flow as suggested below am and pm then concentrating on other things. There are some good apps for breathing on the App Store one does breathing for 15 seconds which is just what you need to calmyourself. I think it's called mindful. Keep your medihalers with you all the time then your mind knows they are there and that is soothing. I keep a set in the car and in my handbag. Don't worry and keep asking questions if you are worried this forum is brilliant 
  • Posted

    Hi Dondon, I also got late onset asthmaa when I was just 40  y/o; started off a persistent silly cough.. I also live with Athetiod Cerebral Palsy plus depression and anxiety too, so handling inhalers is extremely difficult.. It's taken years to find an inhaler that is relatively easy to use and keeps my asthma well controlled, but now I have I feel so much more back in control..  Don't get too hung up with the peek flow readings as I have great difficulty getting a good result too, mainly because of anxiety giving poor breathe control..

    Like already mentioned - always use your huffers first thing every morning and least thing at night/bedtime and try not to worry about your asthma.. Keep a spear set of huffers in the car and either a day pack or handbag, so you know you're going to be well prepared if needed.. My specialest told me to worst thing for asthma was stress and worry...  look after yourself, exercise is great and take extra care to wrap up well when the weather turns cold and windy (I often wear a scarf over my face) to help too..  A good Dr is your best friend when living with asthma, so try and find a good GP that understands your asthma needs well.. 

    We are all here to help if or when needed Dondon, so please don't ever feel you're dealing with this alone..

    Take care and enjoy life wink and keep us posted how well you're coping.. 

  • Posted

    Hi, thank you for your replies, i got diagnosed 5 years ago at the age of 27 and has been downhill for me ever since I Was diagnosed, I've had several chest infections and have also had pneumonia, I've been an out patient at respiratory too.

    I now have an asthma nurse who I see at my surgery, I do keep a diary of my peak flow readings and there doesn't seem to be a time of the day that it gets better or worse, seems to be just random, the thing with me is my asthma deteriotes really quickly so I think that's why I panic when my readings are slightly low.

    Doctors talked about giving me a nebuliser for at home but then decided against it as they said they'd rather me ring for an ambulance straight away because of how unstable my Asthma can be

    The winter months are worse for me but a lot of the time I feel it's stress related, I live with my 5 children and suffer from depression too which is hard, I keep my inhalers with me at all times, I have one in my handbag, one under my pillow and one downstairs at home, I have my ventilin and symbicort, I'm on and off steroids, have tried probably every inhaler there is, I've also had montilucast tablets but nothing seems to really help x 

    • Posted

      I take Symbicort too Dondon.. It's about the best inhaler I've used and works well to keep my asthma well controlled.. I also use it as my reliever when needed during the day or I can take Duolin just before I exercise (I swim twice a week)..

      My asthma nurse also recommend I put a Salt-lamp on my bedside dresser to absorb the moisture from the air I'm breathing over night; might be something you could try too.?

    • Posted

      Symbicort works quite well for me too, i use twice daily, i use my ventoli x 4 before using the gym, which i manage 2-3 times per week, slowly making progress.

      i have never heard of a salt lamp ? Do they work ?

    • Posted

      Yes, it has helped my asthma overnight, and by leaving the lamp turned on 24/7 it has certainly dried out the moisture in my bedroom.

      A salt-lamp is basically a 1Kg salt crystal with a low wattage light bulb inside it to heat/dry off the moisture in the salt crystal. Salt absorbs moisture - so the bigger or colder the room is, the larger the weight the salt crystal needs to be..

       

  • Posted

    hi thank you everyone for your comments, I'm sorry I've not written back ive not been feeling great the past few days, I'm definitely going to look into a salt lamp Mike thank you, if never heard of it before x 

    Can I ask what are people's low peak flow readings? 

    I mean on a good day mine can close to 400 but lately I struggle to reach 200-250, and has been lower some mornings and nights, I've been taking extra puffs of my symbicort and a lot of my ventilin through my spacer, have been told by doctors that if it's bad to take 10 puffs through my spacer, which does help a bit at the time but also makes my heart race which then can cause anxiety, feel like I'm going round in circles from anxiety attacks to asthma attacks, I've just got a feeling that I'm going to have a bad attack soon, I know that sounds silly but had this feeling a couple of times before and Have been right x 

  • Posted

    I have low peek flows too, my average is around 200, often lower so no need to worry. You need to learn de-stress techequs; relaxation therapy, meditation, deep slow breathing/belly breathing or even a quiet walk in the garden can do wonders for stress.. I know as I have to cope with very high stress levels and anxiety (my wife is very il with secondry cancer), so had to learn these de-stress techequs too..

    I've forgotten the name but my asthma taught me to breathe through your nose as it's a good way to slow your breathing rate, plus it helps to warm up the air before it gets into your lungs on cold days.. Also, Symbicort has a steroid in it so that's why your heart is racing, just don't over do it..

    Talk to your asthma nurse Dondons as they are taught all these coping techequs and are specially trained in stress management...

    • Posted

      Ops sorry.. Should read - but my asthma 'nurse' taught me to breathe through my nose.....
    • Posted

      Hi, Im so sorry to hear about your wife, must be awful xx

      I only worry because I know how quickly it can get worse but I know I do need to try not to worry until it happens.

      I have tried different techniques and often breathe through my nose, I was told to breathe in through my nose, hold it for a second or 2 then out through my mouth, it sometimes helps but I just can't help but panic sometimes x 

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