Scared

Posted , 5 users are following.

Has anyone been so sure of having ms!???! I'm like 99.9positive I have ms I'm so scared I have a lot of the symptoms I go to the doc on Wednesday I didn't have the normal sore throat or anything like that I feel that I really do have ms and am just so lost if I have ms I don't even want to be alive anymore I have weakness in arm and legs very very bad back pain trouble talking trouble thinking trouble processing things I feel lost literally lost I don't feel myself at all I feel that I have trouble walking I'm just so scared ?

0 likes, 6 replies

6 Replies

  • Posted

    Hey Emma. Yes I thought I had MS at one point too.  I had my doc test me for the auto immune inflammation markers. It was negative and it made me feel better. Sometimes just crossing off the big scary things makes you feel better- even while mono makes you feel like you’re dying. 

    The feeling like you’re someone else is normal. I’m at 9 months and I’m still dealing with it every so often.  I think it is residual anxiety from the trauma that I went through these last nine months. Out of nowhere I had a full on panic attack while driving on Thursday and had to pull off the freeway because I was scared I was going to faint.

     Mono is awful and terrifying and makes you feel all those things. But – it does start to fade eventually. It just takes time. I thought I would be healthy by four months and nope! I’m definitely a lot better than I was – I would say about 75% right now.  The arm/leg weakness and pain just went away two weeks ago. But I’m thinking of taking some short-term therapy to help deal with this residual anxiety. I feel like you can only prohibit us from fully healing! I hope you get some answers from your doc – at least that you can start crossing things off that you aren’t sick with. Hang in there. 

  • Posted

    Hi Emma,

    As far as I know MS affects only one side of the bosy. While My doctor decided to have an MRI done to rule out MS, another doctor told me that MS is very rare and the symptoms are on sided mainly.  I wish I lisyened to the 2nd  doctor...

    At that time I had tingling all over my head, hand, feet. I felt extremly weak, could not open a bottle. I felt like my legs are chained. Still my MRI of brain came back clear.

    From what I know about your symptoms, sounds like mono more than my symptoms. 

    • Posted

      I had a ct on my head and brain everything came back negative im hoping the docs will do an MRI im really scared did you ever have a bery hard time swallowing not from sore throat but just trouble swallowing?
    • Posted

      Yes, I had hard time swollowing in the beginning of my symptoms. It can very well be from the virus. Your muscles can be tightened in the neck. Or you might have acid reflux which make the neck muscles tighten too. 

      Just remember not to google. Everytime you have the urge to type your symptoms try distracting. Watch your fav tv show, play a computer game. Anything is better than googling, believe me. 

      If you had a CT scan, then you have nothing to worry. If they noticed a slightest change they’d have redone the scan. I’m more than sure yours is not MS!

    • Posted

      Hey Emma,

      Christine is right try not to google if you can - it's very hard not to I know as you just want to find some reassurance, but often on there it's the bad stories that are posted not the the vast majority of people who recover and forget about it all and never post!

      Please take that as encouraging that the CT scan didn't show anything up - that is a good thing for sure and rules out a lot of things as Christine says, it most likely is just the mono causing these symptoms and remember it does get better and go away - sometimes it takes time and that is the real hard and frustrating part, but remember how you feel now isn't how you're always going to feel - this will pass and you will feel better!

      And defo try to do something to distract and relax yourself each day - you've been under so much pressure so as Christine says definitely be kind to yourself, watch a fav tv show or talk to a friend or do something that really helps give you an escape, even if it's only for a while. Sometimes it's hard to start doing something like that but when you do it you feel better for it.

      Thinking of you Emma and Christine too! You guys are going to get better, I truly believe that!

      Craig

       

  • Posted

    Hi Emma,

    I do understand your fears and worries, there was a stage where I thought I had MS too and it is very frightening, it really is. But please please be reassured that it is most likely not to be that, mono affects in so many different ways and often tricks you into thinking it's something else when it's not.

    You are doing the right thing by going the doctor, and I really hope they can put your mind at rest - remember they would know if there was anything like that, so hopefully they listen and examine you properly and give you reassurance.

    Remember deep breathing is good when feeling panicked, try if you can to stay away from googling symptoms and everything - we all do it I know but remember it's only the bad stories you read on there and not of the 99.9% of people who recover.

    Thinking of you and believing you are going to get better 100% - hang in there Emma and good luck at the doctors.

    Craig

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