Scared because its happening daily

I feel exactly the same way you do, I have no idea what's going on though. I have to see a dizziness specialist tomorrow and go through an MRI. I'm actually extremely nervous. At night my vision is very off and distorted. Sometimes I get depressed too. I'm always either dizzy, anxious, or depressed. Mostly depersonalization. I'll feel off and like im confused but know everything I need to.

Hello,

If you have an inner ear problem, that can cause some depersonalization and derealization feelings.  Also, the dizziness can bring on anxiety and that can be causing the dr/dp feelings.  I was told my left ear is not working properly and I have been having these problems since March 2012, after having a sinus infection.  It seems that the virus damaged my inner ear.  I pray alot that there can be something done in the medical field, some medical advancement that can help us.

Hi Moo88,  Ben here. 

May 27, 2015 @ 05:00 GMT

I too have the same feelings.   I can be pretty good sitting and get up and the unsteadiness starts.  I have trouble with my eyes too.  I have been diagnosed with 3 different illnesses.  First they said I had BPPV.  Then they said I had Menier's disease.  Now they say I have uncompensated Vestibular neuritis.

The symptoms are almost exactly the same, and the only way to get to a correct diagnosis is to "rule out" other  things.  They do that with tests.  You have heard of MRI and CAT SCAN, those are looking for tumors and stroke evidence.  Then there is blood work and heart tests, to find out if you have a vitiman deficiency or a heart fibrillation.  Then there are tests for balance that can determine if you have a compensation issue.  Test test test, that is what they have to do in order to rule out things that it is not.

I know it sounds boring, but that is why they call it a practice.  I wish I could tell you what you have, but there are so many possibilities that my offer to you is seek professional medical help.  Trust them, but if the remedies don't seem to work and as you read and learn you might want to move on to another professional.  There is sort of a chain of command though.  I have heard on this forum that most do not trust the GP at all.  Then there are those that don't trust the ENT.  Some say skip  over the little guys and go right to the Neurologist or the Otologist / Dizzy experts. You will have to make the decision and you will have to live with the consequences of it, so go slowly and learn as much as you can using all your resources including  this forum, it is a good place to ask questions and make comparisons.  

I started with giving an account of my symptoms and followed with the different tests and doctors and therapists and now after 16 months, I may not know for sure what my future will be like but I know that I am way better off than befor and a lot of it came from this forum. 

I hope you feel better about the problems and get yourself educated on this monster of a thing so you can know what to expect and therefor see the progress you are making.  

Feel better soon.

Ben  

 

I had similar problems. It's awful because I thought was going crazy in the end. My scans etx came back normal but it was a non serious but debilitating condition called pots in the end. (Despite 1 clear ecg and some normal bp readings.) The specialist said some things are difficult to diagnose but to remember if it was serious or life threatening it would almost certainly show on those initial tests. My advise for what it's worth is to try to relax (!) anxiety will only make it feel worse (and gps tend to then put symptoms down to panic - which we know isn't just the case.)

Best of luck xx

Thank you for all the replies. ENT has said its not Menieres he thinks its possibly a balance thing and that my ear is compensating or something because of being deaf in one ear. I find when I sit down for to long then finally get up I can feel my heart racing and light headed like head rush but then sometimes I can go out for a jog when the dizziness is mild and feel no symptoms after so if it was my heart surely I would get symptoms when exercising? I can get dizzy after exercise but not always. Has anyone had VRT? If this is all really anxiety then I'm baffled how It can appear for no reason. As said before I had a event recorder for a week and bp monitor for 48 hours and with both I took readings from standing to sitting and felt loads of symptoms during so I was surprised when the results came back as normal. Also slightly off topic but do any of you feel fed up of trying to explain and make people understand why you cant go out, drive, do things alone because of feeling dizzy and anxious? My partner isn't well at the mo(man flu lol) and anyway he asked his mom if she could get some things for him from the shop and she said well why cant I go and it made me get defensive because its like yes I'm never well but I'm fed up of being made to feel as if its a minor. Sorry to rant but if only people could know how much I crave to do things independently again :-(

Wow I actually feel like I am listening to my own story. Same thing, I get preassure in head, plugged ears, pain in face, headaches, off balance and dizziness everyday. I have done MRI, xrays of neck and chest, ECG, and blood work all came back normal. I have been having this issue for 3 years now since I fell at work and hit my head and neck on some shelves - the fall caused me to black out for a few seconds and I have have not felt the same since. Doctor is sending me to a neurologist and a ENT specialist. Hopefully I can get some answers because I am so done feeling like thism it makes me depressed and makes me have anxiety. I feel the same way like I have this diease that the doctors can't find or cancer. It scares me too, I share your pain. Hopefully you can find answers soon.

Get a tilt table test done to rule out POT syndrome. Postural Orthostatic Tachacardia Syndrome. Most doctors don't know about it and therefore don't know how to test for it. Basically your blood is not pumping around your body properly for any number of reasons. When you stand up your blood pools in your legs and doesn't pump up properly to your brain. You are fine when sitting but when you stand your pulse will increase rapidly and stay that way. My daughters pulse would jump from 60bpm lying down to 150bpm when she stood up and stay that way until she'd sit down again. It has taken us 7years and every doctor, specialist and test you can imagine. In our case it is hereditary and was misdiagnosed as chronic fatigue for many years in mysel and my Mother. Because your heart has to work so hard you get exhausted easily. The solution? In our case, lots of fluids to increase blood volume, salt to help the veins contract, and heaps of exercise to build up leg muscles and get the blood pumping properly. After years of 24 hour nausea, dizziness etc my daughter was symptom free last year when dancing 12 hours a week. This year she has had a major relapse as she is no longer dancing and spending too many hours studying and in lectures. She is passing out regularly at Uni so we are now getting her to the gym as often as possible or out brisk walking. It will take a while before her fitness levels increase to where she is symptom free again. We discovered POT's when we accidentally discovered what was happening with her pulse and we googled her symptoms. Check your pulse lying down and standing, it's that easy. If it jumps by more than 30bpm and stays that wat for longer than 10 minutes, you have POT's!  Hope this info may be of help.

Mine was POTS after years of misdiagnosis (inc ecgs. Simple one off blood pressure readings aren't enough to rule it out.) Hope you find help. Good luck xx