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Scared,feel alone and confused

Posted , 7 users are following.

margaret22251
margaret22251

Just when i thought i was doing well, last night i started with aches on my right side of my head, then thought i had a pain in my temple, but not sure, thenboth my hands were burning and they are sore on the knuckles and two were red raw, put some hand cream on , had to wash it off straight away. Tried to watch a film with hubby, he kept saying am i watching this on my own, i said no i am following it, but i wasnt as i was working my self up into a frenzy. Started doing a word search as this can relax me sometimes i just dont know what to do with myself. Then i thought am i taking the antihistimine too long, mbeing on them for 13 days, but the eyes are still puffy a little bit and the lips still feel puffy, like now , ohhhhhhhh sorry i know a lot of you are in the same boat, then today is the day the doctor wants me to start reducing. Am i being stupid, its these tablets i know.cry

0 likes, 10 replies

10 Replies

  • Mrs.Mac-Canada
    Mrs.Mac-Canada margaret22251

    Posted

    Margaret, I'm sorry you are feeling so anxious.  I have never had any of your symptoms but my daughter has some of them when having anxiety attacks.  I don't really know what to say that will help you but I think it would help if you could do some deep breathing and try and relax.  We all know that the more we stress the worse we're going to feel.  

    Has your Dr. Recognized that you are having all this anxiety?  If not maybe you should discuss it with him/her.  PMR and/or pred can cause changes in our way of thinking about things but if it is getting to the point that you are having difficulty dealing with it perhaps you need something to help you.  

    Can you have a nice warm bath and try and let it all go for even a few minutes. I'm sure if you start the ball rolling in the right direction you will feel better.  

    Wish I coukd give you a big hug.  I know that always makes me feel better.

    I hope you feel safe and calm very soon.

    Diana🌸 

    • margaret22251
      margaret22251 Mrs.Mac-Canada

      Posted

      thank you Diana, i have to have my bloods checked today, and will see if i can see somebody about my hands, i think yesterday was one of them days, my biggest fear is  the dreaded gca, also i want to do the reduction right as my doctor seems to want me to get down to a low dose quickly, i will see her next week, but thank you for your kind words and hugs.cry
    • pauline36422
      pauline36422 margaret22251

      Posted

      margater  you need to keep reading the book  and try to get your anx.

      under control  cos i think its  anx that is giving you the symptoms,  and please stop worrying about  gca    if it is going to happen it will  and worrying wont do  any good,  so  hope  you are feeling much better this  lovely morning

      eek

    • MrsO-UK_Surrey
      MrsO-UK_Surrey margaret22251

      Posted

      Margaret, I'm so sorry you seem to be experiencing further unwanted symptoms, but Diana has given you some very kind and wise advice.  You are in the early days of treatment and it does take some getting one's head around at first, but you will suddenly find that you wake up one day accepting that you have this long term condition and feel more in control.  Please stop scaring yourself about GCA - you haven't got it now and may never get it in the future.  Anyway it is not that scary......it is still something that is treatabl unlike some other life-threatening illnesses, and lodger and I, and countless others are here to tell the tale.  Importantly, your PMR is being treated and the inflammation being kept under control by the steroid treatment - I didn't have that luxury which was probably the reason that GCA crept in through the back door.  

      So come on, deep breaths, and keep up with your craft club and that occasional chat, cuppa and naughty cake with your friend! 

    • janet08828
      janet08828 margaret22251

      Posted

      hello margaret

      I have read a few of your mails and I understand that GCA can be frightening - as a GCA sufferer I can tell you that in most cases when it is caught in time and treated  it is just a "pain in the butt" just like any other disease - so please try not to let it worry you so much, as others have said - stress and worry aren't helping you. 

       I hope that I have given you a little reassurance concerning GCA - I am still working - although I must admit I do get tired. I am not as active and energetic as I used to be but that is also a side effect of the meds - I am convinved that once my bloods decide to behave themselves and I get down to a maintenance dose - well I will be fine again. So will you!

      Hang in there and don't panic about GCA - not "the dreaded GCA"

      Janet

    • margaret22251
      margaret22251 MrsO-UK_Surrey

      Posted

      Thank you Mrs O I know im a moaner, but it sure as hell scares me, and i am lucky to have you all, every time i try to  talk to hubby abour about, like last night i just said i have a headache and my head tingles, he just said not again stop your moaning, if only he would try and listen he might know how i fee. but like i said i feel lucky to have you all to talk too.biggrin i have been to bingo and a lovely lady has taken me under her wing showing me what to do as i have never been before, or even thought of it, but i was so fed up one day  i just joined, and maybe even i might win. take care
    • margaret22251
      margaret22251 janet08828

      Posted

      thank you Janet i am trying to understand this illness, i was fine for a few days then something new happened, as all the ladies say so whats new, i am going think it a way, my friend said she does this in the night when anything is worrying her.
  • EileenH
    EileenH margaret22251

    Posted

    I have replied on the other threads already - but Margaret, you MUST talk about this to your doctor. 

    I and thousands of other people take antihistamines every day of life at times - when the pollen is flying! So don't worry about that!

    • margaret22251
      margaret22251 EileenH

      Posted

      thank you Eileen,  i will i have been for blood tests this morning and asked if i could have the resultsd when they are ready, the nurse asked me why i wanted them, told her i was on this forum and we take notes, she looked taken aback, but said i can have them, but need proof of who i am.
    • ptolemy
      ptolemy margaret22251

      Posted

      I normally phone up for my blood test results and if the doctor has OKed them I ask for a printout which I file! 

      You are obviously panicking over things, why not try a bit of pampering yourself, some nice smellies in the bath, a new outfit or an old one from ebay, a glass of wine, a chat with friends, a cup of tea and a good book or magazine. You need to take your mind off PMR/GCA, we all worry about it, but it really helps to think about other things. It is a life style change but it can also mean the opportunity of doing things you never had time to do before, smell the daisies and relax.

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