Scared,feel alone and confused
Posted , 7 users are following.
Just when i thought i was doing well, last night i started with aches on my right side of my head, then thought i had a pain in my temple, but not sure, thenboth my hands were burning and they are sore on the knuckles and two were red raw, put some hand cream on , had to wash it off straight away. Tried to watch a film with hubby, he kept saying am i watching this on my own, i said no i am following it, but i wasnt as i was working my self up into a frenzy. Started doing a word search as this can relax me sometimes i just dont know what to do with myself. Then i thought am i taking the antihistimine too long, mbeing on them for 13 days, but the eyes are still puffy a little bit and the lips still feel puffy, like now , ohhhhhhhh sorry i know a lot of you are in the same boat, then today is the day the doctor wants me to start reducing. Am i being stupid, its these tablets i know.
0 likes, 10 replies
Mrs.Mac-Canada margaret22251
Posted
Has your Dr. Recognized that you are having all this anxiety? If not maybe you should discuss it with him/her. PMR and/or pred can cause changes in our way of thinking about things but if it is getting to the point that you are having difficulty dealing with it perhaps you need something to help you.
Can you have a nice warm bath and try and let it all go for even a few minutes. I'm sure if you start the ball rolling in the right direction you will feel better.
Wish I coukd give you a big hug. I know that always makes me feel better.
I hope you feel safe and calm very soon.
Diana🌸
margaret22251 Mrs.Mac-Canada
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pauline36422 margaret22251
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under control cos i think its anx that is giving you the symptoms, and please stop worrying about gca if it is going to happen it will and worrying wont do any good, so hope you are feeling much better this lovely morning
MrsO-UK_Surrey margaret22251
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So come on, deep breaths, and keep up with your craft club and that occasional chat, cuppa and naughty cake with your friend!
janet08828 margaret22251
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I have read a few of your mails and I understand that GCA can be frightening - as a GCA sufferer I can tell you that in most cases when it is caught in time and treated it is just a "pain in the butt" just like any other disease - so please try not to let it worry you so much, as others have said - stress and worry aren't helping you.
I hope that I have given you a little reassurance concerning GCA - I am still working - although I must admit I do get tired. I am not as active and energetic as I used to be but that is also a side effect of the meds - I am convinved that once my bloods decide to behave themselves and I get down to a maintenance dose - well I will be fine again. So will you!
Hang in there and don't panic about GCA - not "the dreaded GCA"
Janet
margaret22251 MrsO-UK_Surrey
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margaret22251 janet08828
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EileenH margaret22251
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I and thousands of other people take antihistamines every day of life at times - when the pollen is flying! So don't worry about that!
margaret22251 EileenH
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ptolemy margaret22251
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You are obviously panicking over things, why not try a bit of pampering yourself, some nice smellies in the bath, a new outfit or an old one from ebay, a glass of wine, a chat with friends, a cup of tea and a good book or magazine. You need to take your mind off PMR/GCA, we all worry about it, but it really helps to think about other things. It is a life style change but it can also mean the opportunity of doing things you never had time to do before, smell the daisies and relax.