Scared need help/ support

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I am 17 and a female. I have been dealing with mono for 2 months and a week I have been having a disconnected feeling from the world like someone else is running my body like I don't know what I'm doing but I do i have been having trouble breathing and i feel like its affecting my speech I feel very very spaced out and I'm lost at this point some of my symptoms have went away but I'm left with alot still. I stay very tired I take multi vitamins I can not remember NOTHING I get real nervous when there is a lot of people talking around me and I feel as if its get worse im scared this is going to affect me forever. Is this the mono doing this to me? Any advice what to do cause im really scared. I can not take nothing in i feel like im lost.

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13 Replies

  • Posted

    Hi Emma,

    I do think these symptoms definitely are triggered by mono, the virus can cause brain fog and just not feeling at all right within yourself. I remember feeling very kind of stunted, just like I wasn't at all myself, when I was going through it.

    I really do want to reassure you that this does get better - it definitely won't affect you forever, it's important to remember that in the hard times, I know it's so frustrating when it has been going on for so long - sometimes it can take a few months but there is definitely recovery and you WILL get better Emma.

    Thinking about you and just take things slowly, if there's someone close a friend or family member that you trust that you can talk to, please do that because it's not good to deal with this on your own.

    Take care and hang in there - you WILL get better Emma I really believe that, don't panic if it takes a wee bit of time still that can be very normal.

    Craig

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    • Posted

      i feel as if i need to talk but cant its a very scary feeling. is this from the mono? it is hard for me to get my words out and talk and this just started like 3 days ago im very scared.
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  • Posted

    Hi Emma , I’m 17 too and I’ve been dealing with mono for 10 months. I can offer advice that it does get better for the anxiety part and feeing nervous !! However I too still struggle with feeling disconnected from everyone and very spacy ! This is a awful virus and I struggle with symptoms daily and I wish I had more advice to offer ! But I’m always here for support or if you wanna chat smile but yes it does it better with time 
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  • Posted

    I’m 24. I started feeling weird in about December, really spaced out, groggy and dazed, kinda unexplainable how it actually feels in my head. It’s like I’m constantly in a dream and nothing feels right when I’m walking around. Anyway I carried on living my life forcing myself to do things, go to the gym, and go out on Fridays. I also managed to secure a graduate job starting in September. But a few days after my assessment day my tonsils flared up and I had terrible pain behind my eyes. Tonsils kept swelling and went black and yellowish, the pain was unreal. I’ve had tonsil infections before but this was on another level. Spent a week in bed having codeine effervescents and ibuprofen every few hours. Tonsils have cleared up now but I feel as I said at the beginning only worse. I have no energy for anything, my muscles fatigue so fast, and when I do get outside for basic things like to go to the shop I come back with my head pounding. Been trying to see some of my friends so I don’t go insane but I feel so distant when I’m with them. My cognition is so poor and I struggle to articulate what I’m thinking. 

    I’m really starting to worry, I can’t remember what it feels like to be normal. I’m so angry and depressed all of the time and it’s affecting the relationships with my family. It’s coming up to 5 months now and if anything it’s got worse over the last 2 weeks. 

    I realise how negative I sound here but I just needed to vent. Does anyone feel the same sad

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    • Posted

      I totally feel you I feel like it is going to make me go dumb. I can barely think straight sometimes I don't even know what Im thinking about and now I feel as if I have a hard time talking like getting my words out which is very scary sometimes I can't even think what to say I feel as if Im only getting worse not better and i don't know what to at this point I feel like Im dying my heart rate has be 115 I keep having anxiety attacks and can not stop Im scared for my life and I think there us something more serious going on i honstley don't know what to do or think at this point having a anxiety disorder does not help it makes it 10x worse. Im just so lost and depressed I just want to give up!!😞

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    • Posted

      My anxiety has been alright up until the last couple of weeks because til then I just accepted that how I was feeling was down to the GF. Now I kinda feel like you, I’m scared something more serious is going on (though it’s  probably not and we’re both being irrational). I should probably go back to the doctor but I know he’ll just say to give it time, I wouldn’t mind some Valium or something to keep me calm though.

      Id give everything I own to feel better. Hopefully we can make it one day. I just found this forum and I’m gonna be back most days now 

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    • Posted

      Im just really scared cause I feel like its affecting my speech my appetite has been very poor and I am very dehydrated but I have no energy to eat or drink really and Im not hungry I feel like someone else is running my life I would do anything to be back to normal I just look at how happy and normal other people are and I cry. I just really am lost at this point I have nothing to be happy for anymore I feel like this virus has taken a whole lot from me. Sorry for all the negativity Im just very down right now!
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    • Posted

      I think it’s good to talk about how we’re feeling, even if it is on a forum like this. Just let all the negativity out! You need to force yourself to drink loads of water, just saying.

      I feel like a different person as well, but this virus has given me a lot of time to reflect upon life, and when I’m better I’m going to make the most of it! Maybe in the long term having suffered this badly will make us stronger as individials. 

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    • Posted

      Im only 2 months and it has been the worst 2 months of my life and still is some days are okay then others are real horrible I feel like its getting worse though😕i feel the need to talk but I feel like i cant.

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    • Posted

      Hi Emma / Will / Christy,

      Just want to reassure folks that these symptoms everyone is describing are normal for the virus. At 2 months and 4 months into this, it's still very normal to be going through what you guys are going through, and I do want to let you know that it DOES get better. It's always worth seeing the doctor and asking for blood tests for reassurance, but if you have a diagnosis of mono let me reassure that these symptoms are typical and it is not likely to be anything more serious, I worried about that a lot too when going through it, but do see the doc for reassurance of course.

      Emma, the anxiety and worry is very normal, hoping these feelings subside, I know Christy knows what she's talking about with this too as she's had similar experience. If you can talk to someone please do, and of course see the doc if concerned about speech but this could well just be part of the virus.

      Will, really hoping things settle down too - I feel your pain as felt so frustrated and stressed and worried when I went through it. It took me a few months longer than you to see full recovery start to happen, just want to reassure that this first 4-5 months are by far the worst and the intensity will lessen and you WILL get better - truly I believe that and trusting God with healing for you, Emma and Christy - hang in there guys.

      Craig

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