Scared of leukemia

Thanks for the reply, im just sick of having no answers. Im worried about having a positibe mono spot test but a negative ebv test which means my mono spot had to be a false positive and reasons why this happens are scary

Re the Mono bit, I've had some mono-like illness for the past 2 months and my mono came back negative. (That's where my username comes from ).

Maybe it's just a virus/bug that you've got and it needs to work itself out. Sucks I know! I was told "probably just a virus" etc. I even got tested for flu and strep too, but it came back negative on both of those too. All my blood work is fine as well. 

What symptoms are you experiencing at the moment? I would just love to know what caused me to have a false positibe mono spot because everything i read is nasty!

If you look at a list of mono symptoms, I've had every one of them over the past 8 weeks  (except for an enlarged spleen ).

I'm currently having throat and sinus trouble, along with: chills, night sweats on occassion, fatigue etc. but a lot of the other symptoms seem to be going. Everything that's been checked on me so far isn't showing any red flags and I've had a LOT of tests. 

Just seems to be that there is some horrible bug/virus out there at the moment. (Doesn't seem to matter which country you're in either). 

What tests have you had?

Mono test = negative

Flu = negative

Strep = negative

Chest X-Rays = fine

Urine test = fine (no kidney liver or bladder problems)

Blood Tests

CBC = fine (red white and platelets all good)

B12 = fine

Potassium = fine

Magnesium = fine

Liver function = fine

Kidney function = fine

Inflammation markers = fine

I think there be some other blood related things missing, can't remember all the things tested but it was 12 things in total.

They also done an ECG which came back all good too, that was because I was having a panic attack at one point. 

Not sure what else they could have tested me for tbh, but seeing an ENT at some point to figure it out hopefully. 

Wow that’s a lot. Do you have good and bad days in regards to how your feeling?

Yep! More tests likely tomorrow too, seeing a Neurologist.

My symptoms seem to change by the day or sometimes the hour. What about you? 

Yes, I’ve had so many symptoms and they change constantly! My doctor did the basic blood tests which came back normal so he just diagnosed ‘anxiety and depression’. How frustrating. I’m now in the process of finding a new doctor

I know that frustration! I'm starting to think my problems are all anxiety related to be honest, I don't think the C word moves around your body so much 😀.

I do still have a few constant symptoms though, like the too cold/ too hot feeling, and night sweats, but even those seemingly worrying things could just be anxiety symptoms. 😋

Do you ever have nausea?

Yes, but that seems to be pretty rare for me. I've never once vomited or anything either.

My latest gut symptom seems to be constipation (which be caused by me drinking red wine I think). Haven't had the sickly feeling for a week or two I don't think. Can't remember exactly when it was.

I also had acid reflux at one point too, and could feel my food going down.  That seems to have gone as well. 

Do you have blood spots on your body? I’m sure mine aren’t cherry angiomas as mine are flat

Yes I do and have had them for years. Cherry angiomas/peteachia  or whatever they're called. Mine are flat, but I have one that looks like a red mole too. 

They're totally harmless unless you have a LOT of them, then there might be something wrong.

I've got about 20 or more that I can count, they're on my arms, chest/abdomen, and legs too. Pretty much anywhere apart from my face (thank goodness, that'd be worrying for other reasons!)

Just remember that; If your blood work is fine after 2 tests, it is highly unlikely to be leukemia (AKA blood cancer) . 

(Not that I'm a doctor or offering medical advice. Just my opinion.) 

I’m just super scared because I have about 4 petechaie on the rooth of my mouth that came up today

I’m worried that my blood levels/results may have changed since I last had a blood test (at the start of May)

I don't think you get them in your mouth? Not sure! I had some red spots in my mouth too, went to the dentist and they done an oral cancer screening that found nothing wrong in there either. I'd suggest going to a dentist who does OC screening if you're worried about that region. 

I very much doubt your blood work would have gone out of whack in 3-4 weeks, but go get it checked again if you feel you need to! Mine was 5-6 weeks ago, and I doubt anything has changed for me either. 

I can’t help but cry and get scared as everything I’ve experienced seems to point back to leukemia the petechaie in my mouth are especially scaring me. I have the dentist tomorrow!

Do you think it’s possible for leukemia not to show in a blood test? I had a blood smear aswell but this was 3 weeks ago now

Leukemia is the definition of blood cancer, so I don't think you would get clear blood tests and still have it. I'd say it was impossible even, but I'm not a doctor.