Scared of MS...need someone to talk to

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I’m 27 years old and have two little boys 3 and 4 months old. Well last week I went to the ER for sudden blurred vision in my right eye followed by a terrible headache. Never had that happen before. Anyways, they thought maybe a stroke. Got an MRI of my brain that was normal. Since this episode I have been having numb toes randomly. Light pins and needle feeling in my feet or randomly on my body. I feel super super sensitive to any touch. I feel in such a fog. I’m seeing a neurologist but can’t get in till January. I’m worried sick. Driving my husband crazy because I’m so worried. I’m afraid that I have MS and won’t be able to care for my babies. All I want to do is cry. I don’t get what’s wrong with me. I just need some reassurance 

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7 Replies

  • Posted

    Hello sorry to hear how frightened you are. If your MRI was clear I don't think it's ms, you can get blurred vision with cluster headaches it migraine.

    I have ms and I'm having lots of neuro stuff but my neurologist says it's not my ms. Have you had your bloods checked for vitamin B12 and diabetes? Or even thyroid? Anxiety is also a possibility. Sine if these can develop after you've had a baby like thyroid. Please try deep breathing and mindfulness, Ms is not a death sentence, mum lived with it until she had s fall and she died in recovery from a hip operation at 82, 2 years ago. There's a chance there's a cure found by a woman scientist I read recently but also there's lots of treatments available. When you have babies you always fear for the future it's natural and I think that's what you are doing and it's making you fear the worst. Talk to your Dr or practice nurse that's what they're there for. Sending you healing thoughts and love.

    • Posted

      I just got the b12 results today and they were really good, my thyroid results were good as well, I do have a multinodular goiter I just found out about that I’m getting ultrasound on tomorrow. I think I have bad anxiety, I’ve never talked to anyone about it but have always felt anxious about health and life. If you don’t mind me asking, what kind of ms symptoms do you have? Have you had it for awhile? How did you find out you had it? Thank you so much for replying and for the thoughtful words. 
  • Posted

    Hi kriv. I feel for you especially having two little ones to care for. You must be very worried. I've just been to see my GP also, because I have been having strange symptoms.. two years ago I started having odd buzzing/vibrations in one toe followed by extreme pain when walking. Then this peculiar numbness. 6 months ago I had a massive electric shock pain which travelled up my left leg, then across my stomach, up my right arm and finally into my right breast where a horrible exploding pain ensued. Two weeks after that two fingers on my left hand went completely numb then pins and needles when the feeling came back after two hours. My toe has recently started playing up again. My GP was initially sceptical ( predictably) and had no idea what the electric shock was. She didn't think it was MS, even though everything I've read indicates that it could be a possibility. The previous occupant of our house had severe MS and so did our next door neighbour! I get odd shooting pains in my face occasionally but have not had vision problems. But I think this is often the way with this condition, symptoms can come and go. I'm having all sorts of blood tests done and will have to wait two weeks to see if anything else shows up and if I will be referred to a specialist. The other thing that it could be is Peripheral Neuropathy (nerve damage) which can result from a B12 deficiency which I did have several years ago. I'm hoping it is that but I am in two minds about it. I am approaching my sixties now, and am at the upper end of the usual age range. What I've heard and read about the condition is that it can come and go and you can live a normal life and it is not life limiting, so I am staying positive and hoping the next couple of weeks go fast so maybe get some answers. Best wishes to you and keeping my fingers crossed for you. Take care.x

    • Posted

      I hope you get some answers soon!! Waiting and not knowing is so hard. Going through this has been teaching me a lot though, I must say. Trying to stay positive no matter what ❤️
  • Posted

    Hello Kriv

    First, 

    Congratulations on your newborn!  You have two sons, that is a blessing.  Focus for just a moment on those two

    boys.  The things they do to make you smile, think about those precious boys, take a deep breath, try to relax.

    Is it possible, that you could be suffering from postpartum anxiety, or postpartum depression??

    It is very real, and it is treatable.  It is also very Normal, You said all you want to do is cry ....

    What brings on this emotional overload?  I say this because I had a hysterectomy at an early age,

    and plunged into menopause.  Wow, I would cry at a diaper commercial. It may be worthwhile to get 

    checked out for postpartum, because it can be treated.  You should not be suffering at a very special time

    like this.  Have you had blood work done to check your Thyroid as your hormones drop dramatically after childbirth. You posted that you had a terrible headache, which can be due to hormone changes, Stress, lack of Sleep.  

    Now about the worry about MS.  I have MS.  Take a deep breath again.  Worry will change nothing except give you a few early gray hairs.  Having said that, you either have it or you don't.  

    You said you will be seeing a neurologist, be sure to take along the MRI Scan and the report with you.

    Write down any symptoms you are having.  Any questions you may have for the Doctor.

    In the meantime, Try deep breathing relaxation at least twice a day.  By the way, crying is ok too, but just know

    that it usually gives you another headache too.  This is your second son, so you know how important it is to 

    make sure You are eating properly, and getting as much rest as possible.  I'm going to come right out and say this to you, that MS  is Not Cancer.  It is a pain in the butt, has some awful symptoms, But, You Can Live With It.

    I can Not take any medication to slow down the progression of the disease due to other medical conditions.

    You Can Live With It ~ and You still can enjoy Life and your two precious boys. Focus on them right now, because they grow up so fast.  So, even IF, it turns out to be MS, You still have the choice to make. Choose to

    be positive, and happy. Don't allow anything steal away these moments from You. Just take one day at a time.

    If you have a really bad day, tomorrow is another chance to change that.  So for now, at least until January,

    try to Relax, listen to your favorite music, and Don't worry, it doesn't change anything.  I do pray that you can find 

    some Peace, and that those boys give you an abundance of Joy!  You can email me if you would like to.

    I'll be glad to talk with you some more.  I hope I was able to give some good advice.  Try to Relax, Enjoy those

    two boys, and give Dad a Hug too.  Wishing you all the Best  Take Care Stay in Touch  ~~ Faith  

    • Posted

      Hi Faithinhim, 

      Your response brought tears to my eyes and a smile to my face. It made me feel a lot better. I do need to stay positive and be in the moment with my boys. I am going to try my hardest to be positive and just breathe and be. I feel the worry has overtaken my head and I feel like a shell of my once care free self. Maybe it is postpartum related, I definitely have anxiety.  I’m scared of all the What ifs. 

      All my blood work has been good, I do have a multinodular goiter to be looked at on ultrasound tomorrow but my thyroid levels themselves are good. I hear everyone’s symptoms are so different and these symptoms can mimic so many other things! How long have you had ms? What is it like for you 

    • Posted

      Hi Kriv  ((((huggs))))  I just read you had good news on your B12 and thyroid results. You said you are having an ultrasound for a multinodular goiter. Is this in your neck? I have also had hyperthyroid and I have a large nodule that encompassed the left half of the thyroid with 4 other nodules around the right side.  I was given a pill that is called Radiodine I-131 which is a small amount of radioactive iodine.

      It is absorbed into the  nodule and it shrunk in size. So my thyroid went back to normal function. I did not have to have surgery and I was able to get off the thyroid medication too.

      You Can NOT do this if breast feeding.  Just a little info on that subject.  So glad to know I could make you smile!  That made my day!  So let's see, I've had MS for about 6 years but only officially diagnosed this past May 3rd, 2017.  My MS affects my balance in walking, as if I was drunk, only I don't drink! Lol  I have the MS Hug which is a feeling of having a tight band around your ribcage

      and mine doesn't go away.  Only the tightness intensifies or decreases, but always there.  I have constant burning, tingling in my feet and legs, hands and arms.  Extreme Fatigue that makes me mad because there is no physical reason for it, other than the disease.  I also have cognitive issues with finding the right word, memory issues, typing my words with letters in the wrong place, letters out of order.  At times I will stutter, never had before. My vision is blurry at times sometimes double vision like the lines are on top of each other.  I have muscle spasms in different parts of my body, just a lot of different things that have gone haywire due to the nerve damage.  I also have kidney stones in both kidneys that just keep coming back, gallstones (that don't bother me) have an enlarged spleen,

      stage 3 fibrosis of the liver which means I can't take any of the medication to slow the progression

      of the MS.  I also suffer with anxiety and depression ~ No surprise there! LOL  Now for the anxiety

      which gives me palpitations and a feeling of fear, I will take Ativan to calm it down.  I have found that since I know a lot of what I am dealing with, the anxiety is not as bad.  The depression I take Zoloft and Buspar and it makes me able to function normally.  Without it, I would just cry a lot and it was unbearable until I got it under control.  Now I still do have moments that creep up and I may cry out of frustration, but I find something to lift my spirits, like music. Like I was saying earlier, it can be a struggle, but you always have a choice to make. I chose to keep a sense of humor, try to stay positive and find something Beautiful and enjoyable in each day. I count my many Blessings and it gives me 

      a good feeling if I can help someone with their problems.    I think sharing with others is so beneficial 

      because we can relate to others who go through similar situations. It reminds us that we aren't going through this alone.  Thanks for reading my mini ~ novel Lol   Please keep in touch Kriv   I'm here for you anytime.  Best wishes & Blessings to You  ~  Faith

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