Scared to go to doctor.
Posted , 2 users are following.
I have convinced myself I have MS. I cannot talk myself into speaking to my doctor about my concerns. Too scared, I guess. Does this sound like MS or does something else come to mind?
Started having horrible foot pain (right). Lasted a year. Still have pain, now in both feet, but not nearly as bad. (1.5 years)
Going down stairs is hard. Feels like my feet might just break off.
Burning pain goes up my toes into my foot. (1 year) Recently started going up calf. (Right)
Burning in right forearm.
My hands sleep when I sleep. I always wake up with tingling hands and fingers. (1.5 years)
Throbbing pain in right thigh. (Recent)
Tickle feeling behind right knee. (Recent)
Once, I was laying on couch and when I got up, my scalp felt like it was asleep. Only happened once. (Spring '16)
Occasionally, I mess my words up. I told my son to reach me the mirror when I meant remote. And asked if he had a shirt in his mouth when I meant bite.
0 likes, 8 replies
a61636
Posted
Add fatigue. And I should say that I don't feel all those symptoms at once.
wendy80842 a61636
Posted
Hi, intermittent, short lived symptoms probably aren't anything to worry about. Nerve damage/pinching can cause lots of weird symptoms too. Statistically, you most likely DON'T have MS, but on the off chance you do, not going to the Dr's isn't going to mean you don't. MS, which many people, myself included, clearly isn't a great diagnosis, but MS isn't fatal. There's lots of research going on, around the world, looking for both treatments and potential cures, too. Keep a record of symptoms, concerns, dates when symptoms began AND ended (both can be pertinent).
Hayhue a61636
Posted
Hi! It sounds like some type of neuropathy to me. I would look into small fiber neuropathy as it causes burning and numbness in hands and feet and spreads upwards. Or read about peripheral neuropathy. Knowledge will be your best friend. I know it's easier said than done but don't be afraid! The more you know, the better you can advocate for your own health.
Let us know if you ever find out!
wendy80842 Hayhue
Posted
Just a word of caution, knowledge CAN be our friend, but be very careful where you find your information, an alarming amount of things that I've read, about health issues I've been diagnosed with and received treatment for, are wrong and, occasionally, potentially dangerously so. I've read things where people absolutely swear by some or other herbal 'alternative', to medicine that shouldn't be stopped without a Dr's say so. People may believe that they're helping, when what they're suggesting is just plain wrong. My advice is to read some information, from a reputable source, but don't overload, it's too easy to imagine awful things, it may also send you into the entirely wrong direction.
Hayhue wendy80842
Posted
I agree. I believe one has to use their own common sense, though, as well. In my case, I would not be where I am if I didn't research and advocate for my own health. I would still be at my PCP being told it was anxiety. I was also dx with small fiber neuropathy but matched no symptoms upon researching. I went for a third opinion where they now believe I have MS. I will admit I've read a lot of scary things but I think, like you said, reputable sources are a must. People shouldn't believe everything they read on the Internet, especially doctor Google. Yes, overloading is not good! I agree. It'll drive you insane imagining everything that could be wrong. It's hard being in limbo when it comes to being ill. I think that's one of the worst parts, unfortunately.
wendy80842 Hayhue
Posted
I couldn't agree more, I languished in limbo too, it's awful, not knowing. I was pretty much dismissed as a time waster, by an orthopaedic consultant (I'd fallen on ice, which triggered my first major relapse). When, in 2012, I had an aneurysm, in my brain suddenly rupture, because I have, now diagnosed, MS, they mistook my subarachnoid haemhorrage for a new MS symptom. Thankfully, an observant nurse quickly spotted that I'd passed into a coma and I was rushed to the nearest large hospital, with a bloody good neurosurgical department. The next thing I know, it's six and a half weeks later. My poor daughter had to sit around, while a few different emergencies happened and I circled the drain, in one way or another, for 4-5 days. Then my family had to wait, for several weeks, being told that I'd, very likely, be severely physically and mentally disabled, quite possibly for the rest of my life (I know that I had a subarachnoid haemhorrage, from a posterior inferior cerebellar arterial aneurysm, although I keep calling my daughter Molly, Molly's my cat's name, swings and roundabouts?!), so, I've been really lucky, in several ways.
Hayhue wendy80842
Posted
I'm glad to hear that you recovered and are still here. You're so very brave and strong! Life is so unpredictable.
wendy80842 Hayhue
Posted
Very unpredictable! I'm not the brave one, that's my daughter, definitely. But thank you.