Scarring around clitoris

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My clitoris has significant thick scarring around the one side. I'm worried about it. Why is it advancing even with steroid? Am I not using enough steroid on it?

Now I'm going through a stressful period again. We buried my dear mother in law yesterday. My father in law is going to need much support. Pretty hard not be stressed with all this going on. Not feeling so happy. Lots of tears lately.

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25 Replies

  • Posted

    I'm so sorry for your loss, and for the added stress that this is having on you and your health. It's awful that we have to be worried about how difficult times will affect us and our LS.

    You definitely don't want to overuse the steroid cream. Maybe you need to try a different type. As we've seen time and again, unfortunately not everything works the same for everyone.

    My thoughts are with you and your family during this difficult time.

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    • Posted

      Thank you. Always hard to lose loved ones. And especially when you know the stress may intensify health symptoms.
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  • Posted

    It's difficult to tell. I was told tip of your finger down too where your nail ends for the whole vj. If you look on some of the excema sites it talks a bit more about steroid creams. Best to go back to your gynie. There is another cream called pro topic which is an immune suppresent that works for Ls.

    Hope you get some help soon xx

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  • Posted

    Yes...it is frustrating. I use my CLOB faithfully and I rarely have   a breakout and I have noticed that I have developed thick folds around my clitoris as well. I guess that the CLOB just keeps the itching down and the thickening and folds still continue.
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  • Posted

    Try pulling back the hood on your clitoris while in a warm bath, having soaked in there for a while. Pat dry  then repeat the exercise and Python your normal undercarriage moisturiser or Vaseline on the area. Perhaps do this regularly until you see you specialist. A pea sized amount of high potency steroid is plenty for the whole undercarriage. Rub it in as Dr Goldstein suggests after your soak. Some people have noticed that fusing takes place when the area becomes hot and "sticky" often when greatly irritated and sore. I wish I had known this when I was in the same state, I would have eased the skin surfaces apart , instead of losing the labia. I bang on about revisiting the webinar, it is so full of info it is worth while listening again

     

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    • Posted

      The hood retracts easily. It just a ridge of tissue coming up the sides, especially up one side. I do use olive oil on it often and it rarely gets irritated anymore. I have noticed that it fluctuates in size,which is puzzling too. But I've never seen it with this much scarring.
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    • Posted

      If I were you I would keep retracting the hood, on a daily basis itis when the tissues get 'sticky' that I think fusing takes place. Are you sure you do not have or had a  mild infection in the area? That may be why there is scarring
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    • Posted

      In September, I had some mild itching. Used CLOB and it stopped. I usually do not have any symptoms......but I still get the fusing.
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    • Posted

      I don't think I have had infection there??? I put steroid On it last night and I think it settled some. I will keep retracting the hood. Thanks.
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  • Posted

    I made a post nearly 2 weeks ago with regards to an experiment my husband and I were doing with borax (sodium borate NOT boric acid nor boron). We made a saturated solution of borax and water and then applied it in the morning and in the evening. We took pictures at both times of the day as well. I very happy to report that the fusing that I had, albeit not tons, has released and the labia and clitoris that have been white for I don't know how long have nearly completely returned to pink. I don't even know the last time it was pink below. Anyway, another member decided to try the borax solution and it's helping her too. We both continue to apply an oil during the day to keep moisturized (I use vitamin e and jojoba, she uses coconut oil). Something to try if you're getting worried. If you want more info, I'll pass it along. If not, definitely touch base with your gyno again and be sure to get more detailed information about the creams your applying and have them take another look at things.
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    • Posted

      The other member bought hers online. Quite frequently it can be found in the laundry aisle (I actually use it to help clean my daughters cloth diapers as well!). But don't let that freak you out...it's like hydrogen dioxide is just water, but the name is kinda scary. You DON'T WANT boric acid nor boron, as they are completely different things. If you decide to give this a try, what you want to do is make a saturated solution (which means slowly adding the borax to water and stirring to disolve, once the borax will no longer disolve, you have a saturated solution). I then applied the solution to the affected area with a q-tip twice a day, letting it dry. Be sure to take pictures as it really helps to show you how things are progressing. At one point I started to feel some itching, and that made me nervous. But what I discovered was that the itching was because the fusing I had was releasing and exposing some sensitive skin. I was so happily surprised.
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    • Posted

      I have been following the post you had started with much interest. I don't like trying new things but the results you are posting are exciting and I am planning to try to find the product! Thanks.
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    • Posted

      I was nervous as well, especially as I'm now living in Vietnam and am not quite certain about what type of health care I would be able to get. But my husband did a ton of research, of which he is very very thorough. I'm surprised I didn't come across the borax info during my own search. Anyway, I decided that my LS couldn't advance too far in 2 weeks, so we gave it a try. And obviously as you will have read, I am so glad that I did. Needless to say I can't speak to results for anyone else, but for me, the change has been significant. Plus, wherever we live I'm sure we'll be able to get our hands on borax smile When/if you do decide to give it go, please let me know if it works for you.
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    • Posted

      I've been applying it in the morning and at night. We made a saturated solution (we added borax to water until the borax wouldn't disolve anymore, therefore saturating the water) and I would use a q-tip to apply the solution. I would then just let it dry. For just over a week we did one side borax and one side baking soda (which people had mentioned having good success using). The difference between the two was crazy. After the week I abandonded the baking soda and started applying the borax to both sides - as we know, not everything works the same for everyone. 

      I just started to have a very minor flare-up. Some white on my clit and the start of a blood blister there too. However I did my best to de-stress (as I've had a bit of stress building as of late) and continued with the borax and used a bit more of my vitamin E and jojoba essential oil mix between treatments. Within a day and a half the white was gone and the blood blister never materialized. Yay!!

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    • Posted

      The saturated solution won't be a thick paste, it'll just be water that is heavy with borax (water won't be clear but will retain it's consistency). So I dip a q-tip in it, get it wet, and then gently rubbed wet the affected area. Once it's dry I just put on my undies and go. Usually the next time I go to the bathroom I apply vitamin E or a jojoba essential oil mix I've made up for mositurizing. Then at night I apply it again, go to bed (I don't wear undies, just let the air get at my bits), and if I wake-up to pee I'll again apply some vitamin E or jojoba. This treatment has worked wonders for me. I felt some itch today, which normally would concern me (although I don't experience I lot of crazy itch, I have in the past, so I remember what it usually means). It doesn't anymore because I've found that when I have the itch it's because some of the fusing has released, and I know that the itch will go away shortly. As this is all new, only been doing this treatment for just over 2 weeks, I continue to monitor to make sure everything is good. And so far, it's great smile
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    • Posted

      I've read up a ton on borax. Some sites say you might experience (slight) skin irritation. In my opinion, depending on your sensitivity, many things can give you skin irritation. In fact, as initially we were testing one side with borax and the other with baking soda, it was always the baking soda that stung. Also of note, I'm not soaking in a saturated solution. I'm literally dipping a qtip in the liquid and then running that along the affected area. It's really quite minimal. All I can say is read up as much recent information as you can if you have concerns, but it definitely has a much less adverse affect (if it has one) to our body than continual use of a steroid cream. Read up on boron (which is borax) and it's effect in our body.
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