Scarring post PEs
Posted , 12 users are following.
I had hundreds of PEs in both lungs in 2013. They were undiagnosed for 5 months and could have easily died. Repeatedly was told it was anxiety. After my suggestion, a pulmonary CT was done and a "heavy burden of clots" was discovered. I have been on warfarin since and for life. Last week I asked my respirologist why I continue to have crackles in my right lung. He said it was from scar tissue. With any virus that goes around, my lungs are susceptible. This was news to me, don't get chest pain, but am short of breath if I carry things going up stairs. So that explains that for me. Glad I found this site, although there are not many recent comments.
0 likes, 41 replies
Stallion canadagal
Posted
You absolutely need to see a pulmonologist! And I would demand a CAT scan. There are other things this could be. I know the medical system is different in Canada( I assume from your name u live there) but I really encourage you to see a specialist. I am short of breath with minimal exertion and normal pulse oximeter level but Im right now wearing a Holter monitor for 72 hours because my heart is racing and my beat is irregula They said the PE's can affect my heart. So I mow am seeing my Cardioligist cuz my lung doc did repeat CAT scans(×2) said my lungs are clear. Hope this helps.
Mowwee canadagal
Posted
Hi guys,
I was ruched to ICU in 2015, after collapsing one morning while getting ready for work. I had MASSIVE, bilateral emboli, which were causing my lungs to swell to the point that the pressure on my heart was causing it to fail. My blood pressure was so low it couldn't be measured. I was 44.
For at least 12 months beforehand, I had been telling my GP that I couldn't breathe, & sometimes was literally doubled over, gasping for air if I went up a few stairs or something. Being overweight, of course I was told that I was 'unfit', despite having an active job, working on my feet, and not having a car, so walking everywhere. Then I was told it was 'mature onset asthma', & given a ventolin inhaler. It is truly frightening to hear (& experience) the dismissals so many people have experienced by their doctors.
Although I'm certainly lucky to be alive, I'm also on Xarelto (rivaroxaban) for life. I have been left with a permanent, persistant cough. I'm now being harassed & made fun of by another tenant in my building, who constantly 'fake coughs' everytime he passes my door. The landlord doesn't care. The ignorance & heartlessness of other people makes the whole thing so much harder.
I'm definately not glad to hear that others have experienced similar things, but at least there are other people out there that understand. Canadagal is right to tell her doctors to listen to their patients, because nobody knows their own body better than the person living in it! Stay strong!