Scary fibro symtpoms

Posted , 4 users are following.

Hi all this is my first post so i apologise if this is not the right way to go about it or whatever.

Lately i have been getting aome really scary symtpoms with my fibro and wanted to check more for reassurance if othera suffer this too.

First off im 32 overweight but other than that all blood tests for cholesterol sugars etc are great blood pressure is good i have seen a nureologist and cardiologist who all say for their part im fine i have had a streas test ct angiogram and ecgs and 24 hour holty monitor all came back fine.

The problem i am having is i always feel really tired i sometime gets bouts of energy but for the most part im wrecked. I get numbness in my left arm and sometime which is much less my left leg. I also get numbness in my left face. I aways suffer from back pain around middle and shoulders and this ranges from mild to severe sometime when i feel bad i get light chest pains which freak me out due to my weight and randomly get hot flushes that see me sweat evrywhere and then go away as quickly as they have come i have been to er about 7 times in the past 12 months sometimes for pain that is unbearable othrr times for scary symptoms and am always sent home to follow up with doctor. The doctor says nothing to worry about all fibro and my doctor is a good one and i have confidence in him but with all these freaky symptoms that you hear about that relate to strokes and heart attacks im qurious has anyone else had these and all the test is this fibro or should i be gettong third and fourth opinions etc could this just be anxiety too? Although i never get palpatations or racing heart rate so not sure about the anxiety?

Any feedback would be appreciated?

0 likes, 5 replies

5 Replies

  • Posted

    Also if anyone does have these symptoms have they persisted for years or just raeely mine seem to be very often and going on 12months now which is not helping my anxiety

  • Posted

    this is the joy of fibro! all the symptoms of a range of illness which if you are like me, have scared the hell out of me over the last 4 years - ive had so many tests - been in hospital 3 times - first time tests n sent home. second time they took my gall bladder out.  thrid time - same symptoms tests n sent home!  it's 03.45 and ive beenawake since 01.00 with the pain and even managed to drift off on the sofa but dear heavens it's uncomfortable and given that when i lie down i fee llike im lying on bricks  .... I have the hot flushes/flashes too - worst one lasted over two hours when i was atwork...  right now i can't seem to control my body temperature - wither melting or shivering.  it is a real worry because everything hurts and you are looking for answers and alternatives because fibro is such a nasty horrible thing to be suffering from..  have a rant on here - everyone knows what you are going through - even get good advice here on stupid comments made by husbands/girlfriends/partners/parents/colleagues!  stay strong.  

    • Posted

      Thanks for taking the time time to reply and i hope you feel better soon too i just sometime think is it fibro or anxiety or something else but all test show its not something nasty but i dont want to take chances and having these symptoms ppl have educated you to worry about and watch out for freaks you out. Anyways rant over take care and i truely wish you all the best.
    • Posted

      I feel my heart race on a daily basis. Usually in the morning when I shower. I normally lay down and take a few deep breaths and it passes.

      Like you said it comes on strong and lasts only a few minutes. The cardiologist said it's due to a leaky valve that epstein barr caused but sometimes it's from anxiety. He reassured me that my heart was still healthy.

      It is a scary thing. I was out for a walk with neice and dog one day and had it come on strong, felt my legs get heavy, started sweating and all the energy drain from my body. First doctor just dismissed me. I was terrified cause like you I am over weight and heart problems run in my family. Cousin died of massive coronary at 37. I was 38. But went to other doctors and they reassured me it's either the epstein barr or the fibro causing it. Best to get it checked for your own peace of mind. But when it happens try to stay calm and breathe . Stress will amplify it.

  • Posted

    Sounds all familiar and connects to fibromyalgia. I get hot a lot then I'm fine. I was going thru a few months of heart racing and going into panic attack for awhile I had to go on klonopin and take before bed because I was scared to death a horrible feeling stay strong!!!

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