Scc

Posted , 4 users are following.

This discussion has been locked due to a period of inactivity. Start a new discussion

I went to the pain clinic last week and saw my consultant.He wants me to think about having surgery on my back.Its called Spinal Cord Stimulation.I wondered if any of you out there had had it and what the outcome was.

0 likes, 7 replies

Report

7 Replies

  • Posted

    So sorry to hear this Shia, I'm sorry I can't help with your question. This thing puts us in places we'd rather not be. Hopefully someone can respond to you question positively. Wishing you well
    Report
  • Posted

    DEAR SYLVIA74027,I KNOW MANY WHOM HAVE HAD SCS IMPLANTS,SOME IT HAS HELPED,ESPECIALLY IF IN ONLY 1-2 LIMBS AFFECTED! ANYMORE THAN 2 WOULD NOT BE TOO HELPFUL! THEY SHOULD GIVE YOU A TRAL BEFORE T IS FITTED PROPERLY.REMEMBER IT MEANS INPLANTING IN BACK OF NECK,SO A SURGERY! SO 1500MG OF VITAMIN C TO BE TAKEN FOR AT LEAST 2 WEEKS TO HELP PREVENT A SPREAD OR FLARE UP! SOME REPORT ELECTRIC SHOCKS! BATTERY PROBLEMS,BUT ONLY YOU CAN WEIGH UP THE ODDS HUNNIE. PLEASE TAKE CARE MY LOVE.IF YOU NEED A CARING SUPPORTIVE LOVING,INFORMATIVE GROUP,I TRIED ON FB THE CRPS/RSDFIGHTERS,THEY ARE SOOOO HELPFUL AND INFORMATIVE.MUCH LOVE SWEETIE,LOVE SLEBBY33,XXXXXX
    Report
    • Posted

      Hi Slebb33 Thanks for you info I am going at the end of July So they can tell me what's what .Luckily only 1 of my limbs are affected .At present I am making a list of questions to ask ,I will go on to the Facebook address you mentioned.Thanks again This bloody illness scares me so much I just want to get back to normal but nobody will tell me one way or the other what the out come will be xxx
      Report
    • Posted

      DEAR SYLVIA74027,SOOO SORRY YOU ARE FEELING SCARED ABOUT OUTCOME OF THIS DISEASE.AS LONG AS YOU KEEP YOUR STRESS LEVELS DOWN,TAKE DAILY VIT C,NO NICOTINE,OR CAFFINE,AS NMDA RECEPTORS LOVE THOSE THINGS,BUT WE NEED TO TRY BLOCK NMDA RECEPTORS! CATCHING THIS DSEASE ARLY,AD RAPID TREATMENT WILL GIVE YOU THE BEST OUTLOOK.AND ETTER CHANCE OF REMISSION.THERE S NO CURE AS YET! BUT SPREADING AWARENESS WOULD BE OUR BIGGEST TOOL I BELIEVE,AS WHEN IN HOSPITAL,NO DR,S OR NURSES EVEN KNOW WHAT CRPS EVEN STANDS FOR! LOL! SO NW I JUST ASK THEM TO GOOGLE IT,THEN COME BACKAND SPEAK TO ME! LOOK AFTER YOUR BAD LIMB LIKE IT IS A BABY! THIS DISEASE LIKES TO MIRROR IMGE EITHER VERTICALLY,OR HORIZONTALLY! SOOO NO COLD/ICE ON BAD LIMB,IF IT SWELLS,RAISE ABOVE LEVEL OF HEART.IF IT IS A FOOT/LEG,YU MUST LAY DON ON BED WITH PILLOWS UNDER CALVES! SITTNG WITH FEET WILL NOT WORK,IV TRIED ALL POSITIONS! LOL! IT S NL WAY TO GET SWELLING DWN.NEED OUGHT,JUST SHOUT MY LOVETHIS VDO IS UPDAE ON CRPS TREATMENTS.IT IS QUITE LONG,BUT THIS ROFESSOR SURE KNOWS HIS STUFF! TAE CARE MY LOVELY,LOVE SARAH,XXXXXX

      Emis Moderator comment: I have removed the link as it was to a site unsuitable for inclusion in the forums. If users want this information please use the Private Message service to request the details.

      http://patient.uservoice.com/knowledgebase/articles/398331-private-messages

      Report
  • Posted

    I've just been researching homeopathic remedies, they suggest magnesium, vit b, vit c (which some hospitals recommend to prevent crps, calcium and vit d, together with milk thistle to help cleanse the liver. Not sure if anyone has tried this, but I'm going to give it a go. I've been taking vit c, d and calcium for a few months now and swelling has gone down a fair bit. Hopefully the rest will help as they seem to be helpful with nerves and muscles
    Report
    • Posted

      HI MADDY1234,SOOOO SORRY YOUR SUFFERING SOOO MUCH.MY HEART GOES OUT TO YOU AND FAMILY.I AM FULL BODY,BEDBOUND 2 1/2 YEARS,CRPS SUFFERER,COULD DATE AS FAR BAC AS 2004.NOW DUE TO CRPS ATTACKING RESPIATORY SYSTEM,I AM AND OF LIFER.SO EVERYTHING I HAVE LEARN'T OVER THIS AWFUL TIMEI WISH TO PASS ONTO AS MANY BEAUTIFUL PEOPLE I CAN.. I FOUND OUT RECENTLY THAT RED MEATS ARE A BIG NO,NO WITH LIVER PROBLEMS,ALSO WE HAVE A HIGHER CLCIUM LEVL IN OUR BLOOD.THIS INTURN CAN REMOVE/ADD BONE FROM DIFFERENT BONES IN YOUR BODY,BONE DENSITY TESTS NEEDED REGUARLY! THE FASTED WAY TO NATURALLY ABSORB,VIT A AND D S SUNLIGHT,.BUT SOME OF US CAN BAREL,OR NOT AT ALL GET OUT.INVEST IN A "NATURAY SUN RAYS LIGHT BULB" MINE IS GREAT FOR MY S.A.D. ALSO! PLEASE GET YOUR DR TO CHECK YOUR VIT D ND CLIUM LEVELS,ALSO CREATINE LEVELS! PLEASE SHARE HUNNIE.THE GREATER THE AWARENESS,THE GREATER THE KNOWLEDGE,AND NOW THERE ARE GENETIC LINKS,SOOOO! 500 MG OF VIT C FOR A WEEK,EVEN AFTER ANY SOFT TISSUE/NERVE IJURY,EVEN A PAPER CUT! MINE STARTED WITH A CM SMALL SIZE BREAK N SKIN FROM SHOE LACES ON TOP OF LEFT FOOT! IF I HAD OF EVEN SLIGHTLY/GOT A WHIFF OF/KNOWNING JUST 500MG OF VITAMIN C COULD HAVE LITERALLY SAVED MY LIFE.WITH OUR AIN BENG NEARLY DOUBLE OF DIFFERENCE TO SOMEONE DYING FROM CANCER,AT STAGE 4.BUT THERE IS N SUPPORT IF YOU DIE FROM CRPS! FIND OUT WHOM YOUR TRUE FRENDSCOMMITTED FAMILY ARE.SPEAK HONESTLY WITH THEM,I DONT MIND YOU UING ME AS LIVE CASE STUDY! AK WHATWOULD HAPPEN IF GOD FORBID YOU ENDED UP LIKE A ADY YOU SPOKE TO,SHE,S BEDBOUND,NO FSMILYFRENDS(LEFT EVERYTHNG BEHIND DUE TO GRAVITY OF DOMESTIC VIOLENCE) STUCK IN HOSPITAL BED,CANT SIT/STAND/WALK/RUN. CANNOT TURN OVER IN BED,PAIN KEEPING YOU AWAKE.I AM NOT TRYING TO SCARE YOU,BUT AM AFRAID OUR CARE SYSTEM HAVE FAILED SOME OF US JUST BECAUSE OF A BASIC LACK OF AWARENESS.MOST SUFFERS TO NOT GET TO THIS EXTREME AT ALL.JUST BE PREPARED DARLING.IVE HEARD HAVING WARM BATH/SHOWER RUBBING IN EPSOM SALTS HELPS WITH PAIN.AN STRESS AND ICE ARE OUR 2 MAIN ENEMIES,TAKE GOOD CARE,LOVE SLEBBY33
      Report

Join this discussion or start a new one?

New discussion

Report as inappropriate

Thanks for your help!

We want the forums to be a useful resource for our users but it is important to remember that the forums are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the forums is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.

newnav-down newnav-up