Sciatica, awful pain. Any suggestions ?

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Dear all, I have psoriatic arthritis and some lung fibrosis from the methotrexate but generally doing okay, until!  About 8 weeks ago some niggling pain in my right buttock and pins and needles in my leg, particularly my calf and foot. The pain has suddenly escalated. I’m relatively comfortable sitting and lying but standing and walking is excruciating. I’ve taking to using a scooter to get round the supermarket. I’m mortified. Naproxen/ codydramol don’t touch it. My GP has given me pregabalin and requested a lumbar X-ray. I have an orthopaedic appointment but not till 25 May. Any suggestions welcome. Carol 

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14 Replies

  • Posted

    Similar issues here. I have had some upper spinal issues along with my RA. Lately the lower section, lumbar is agonizing. I have to sleep with a pillow under my knees and a flat pillow under head to rest. I have been on MTX for 3 years and methocarbomal with naproxen and Lyrica for over a year. Lately getting temple headaches and veins starting to bulge in head as well. I have to take Tylenol pm just get 4-5 hours sleep.  I am going to Mexico to see my rheumy and have an MRI scheduled for lower back as well, But my appt May 28th. I guess we will find out together what is up.

     

  • Posted

    Hi Carol,

    I'm so sorry, I've had sciatica for years and know how painful it it can be.  Sounds like yours is pretty intolerable.  It's a frustrating condition.  From what I understand, there are a few different causes.  Mine seems to be caused by muscle tightness and inflammation, so stretching helps.  In poking around the internet it seems your condition may be different, it may be spinal stenosis;  the article I read gave symptoms similar to yours, pain while standing/walking and relief while sitting.  There seem to be stretches recommended to this as well. Perhaps you can ask your doctor if they think stretching would be ok while you wait for the orthopaedic appointment. 

    • Posted

      Hi Karen, well it’s 5am, I woke about 4am with pins and needles from my knee down. They’ve settled now and I’ve been stretching, “flossing” my sciatic nerve for a while and feeling more comfortable. Would love a cup of tea but I don’t want to risk going down and back up the stairs! Does anyone know how long pregabalin takes to work if it’s going to? ( Apologies if anyone has already answered this and I’ve missed it) I wish I’d been given gabapentin. I’ve heard better reports?    Carol
  • Posted

    Maybe ask your Doctor about Gabapentin. I have sciatica nerve pain in my right leg and it really helps.
  • Posted

    OHHHHH know how you feel, agony.  As Carol said, as we all get older, I am 66 years young, feel 90 sometimes, but as my mum used to say I am 30 inside my brain. you have probably developed spinal stenosis, we all get it with age I'm afraid.  

    ?Also wondered if you have managed to damage a disc, I did post left hip replacement surgery, ruptured S1-L5, bulging L5-L4, and bulging, although not as much L4-L3, when I finally got Cat scan they also discovered the spinal Stenosis.

    ?Only thing that touched the pain was Oxycodiene, great idea, makes me nauseous, as well as sleepy and dopey, I was never going to get well like that.

    ?Dr suggested I go back to my hot pool, treading water, as I had been doing prior to my surgery, had been going but not for my back, checked with physio, and she said it might help. 

    Tuck a pool noodle under you arms and allow the rest of your body to just drop away under the noodle, imagine some lead weights on your feet, I thought whats to loose, if I remember correctly, a couple of times got terrible belts of pain from my back doing this exercise, just breathed through it, could only do about 20 mins in the pool when started, now up to over an hour, try for three times a week, but I did notice after that first pain, I felt better, non weight bearing does help, got to the point I did not want to get out of the pool, as only time I had no pain, within a month I was able to give up the Oxys.

    Back still has stenosis, but swelling in discs not as severe, I still go treading water, apparently its all about strengthening up your core muscles that suppport your pelvis and spine, and the treading water goes a long way to helping, and am going to weight watchers, a combination of both is helping me.

    • Posted

      Dear all, thank you all so much for your comments. I was thinking it maybe wasn’t ‘Rheumy’ related especially as my PA has been under control. I did see a physio who’s given me some stretching exercises- “flossing “. They are also painful to do. I think the water based exercises sound great. I’ve felt my back has been very weak of late.  I will definitely try that. I heard  gabapentin was good but my doctor said pregabalin was the first line?  I’ve only started them today.  How long before they work? I’m walking bent double at the moment.  I’m sitting at the side of my bed at the moment building up  to lying down! It’s been really helpful ‘talking’ to you all. Thank you. I’m sorry you are all suffering too though it’s good to know others understand and hear your experiences.  best wishes to you all. Good night. Carol
  • Posted

    Is the pain low down in your buttock/ If so, it could be piriformis syndrome. In some people the sciatic nerve passes through the middle of the piriformis muscle and if the muscle becomes tight it irritates the nerve - causing sciatica. Sometimes it really goes into spasm and makes it worse. Sitting absolutely upright in a chair where your knees and hips make rightangles and with a hot water bottle/warming pad across the muscle sometimes helps, or alternating ice and heat. There are exercises that stretch the muscle but they do tend to be more use for prevention - simply because movement is so awful! I have just had a really bad dose - and here where I live in northern Italy my rheumy gave a week's worth of infusions of high dose NSAIDs which just about got it, then steroid shots in my hips because it had also made the bursitis worse. Finally pain-free!

    This is a really good article:

    https://www.spine-health.com/conditions/sciatica/piriformis-syndrome-treatment

    • Posted

      Eileen, you  seem to have summed it up neatly. My physio was explaining piriformis syndrome and yes the exercises are very painful (though he told me to basically do what I can without excruciating pain) and try to build them up slowly. I've also found a hot water bottle does give some relief. I was going to say I can't believe you have been admitted to  hospital but yes I can. I can barely walk across my lounge - and it isn't that big! Fantastic that you are now pain free - that's what I need to hear. I must say I'm very jealous of you living in Italy. What a beautiful country. (Hopefully) going to Puglia in June. Thanks again. I will look at the article. Carol x

    • Posted

      I was admitted 6 years ago - this time I managed to get the train (short walk and then right to the hospital door) every morning for the 1-2 hour infusion (depending on the skill of the nurse - a couple were awful!). After the first infusion, which they gave me when I went in to ask what to do, the pain was bearable. But I had had nearly 2 weeks, one of which I was leaning on crutches to move around the flat! I also had flu at the same time so didn't want to go anywhere anyway - and the cough made it hurt even more! Most of the pain was in getting from sitting to standing and the first 6 or 7 steps (shuffles), then it was a bit better. 

      We live right up in the north, almost Austria, but have friends in Puglia, they live in Andria and are doctors in Bari (a 3 children!). We spent xmas with them a few years ago but didn't see much so I want to go back, I have been to several places there during a scientific meeting there with them - Alberobello and the fantastic undergound caves. What we did do with them was spend Christmas Eve and Christmas Day in their family celebration which was great fun. And I love Bari - especially along the sea front in the evening. There is an elderly lady who makes and sells "polenta chips" - deep fried in a metre diameter vat of olive oil!! Yummy - even OH liked them.

    • Posted

      I can relate to much you are saying.  Standing and walking are definitely my worst times. My daughter was offered a scan for her second baby at short notice but I couldn’t offer to go with her because I simply couldn’t walk that far. Hopefully it will start to improve now. 

      We fly to Brindisi (which looks nice with good beaches) and stay at Trudhi Loco Rotundo; Matera and Novoli for a few days each.  The couple we are going with want to go (back) to Bari and I’ll look up the caves you mention. So looking forward to it. Must be well by then! 

    • Posted

      My feeling exactly - we head to Malta the beginning of next week for 3 weeks and I want to be able to walk, albeit on the flat! I know it would probably have eased with several weeks of doing nothing - but after 3 weeks it wasn't looking hopeful!

      Looks utterly fabulous - enjoy! We have a campervan - not so pretty but very useful...

    • Posted

      I went to Malta when my girls (now 33 and 35) were children. I was recovering from a dislocated patella (I'm really a liability) and still walking with a stick but I do remember very uneven and high pavements so take care and enjoy!!!

      PS it was a long time ago though.

    • Posted

      Already been twice - the idea is to prolong the summer and shorten the winter at a very competitive cost!  OH won't use the camper in the winter - even in southern Italy (he was right this year, they've had a load of snow!) or Spain which hasn't been much better this year. So access to appartments that are cheap appealed and worked well - don't have to eat out all the time and whatever the weather you are reasonably warm and dry. Next year we will be organised enough to go to Lanzarote I hope!!!!

      I bet it has changed a lot since you were there. There is a lot I don't like but loads I'm looking forward to exploring and I really like their food. Unfortunately I also like their bread and it likes me!  And the walking is almost flat and at sea level so ideal for OH with his dodgy lungs and me with PMR.

    • Posted

      It’s good to just get away, I find and if it’s warm and dry a bonus.  Miserable here at the moment. Roll on summer. June anyway! Have a lovely time x

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