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Hi. I've had "incidental" finding on MRI after 3 yrs of hell re symptoms post severe bicycle accident. Really flared this summer after another bike writeoff after dooring accident. All sx I've had before MRI match Chiari, GP dismisses me despite MRI, Physio dismisses me, neurology said I've no sx as GP, Physio & each specialist can't communicate in our modern world of technology. I'm now back to snakes & ladders game again. Does anyone live in Edinburgh Scotland and know where to get a human in the NHS who can look at all my sx and deals with Chiari. I've tried numerous times leaving messages on voicemail with Ann Conway trust but no answer. If there's a GP/Neurology person out there in cyberspace I would appreciate someone who can advice how/where/what to do. My worst sx are the manic sensitivity to sound/choking when bad that starts as difficulty breathing/jellyfish in head moving feeling which is nauseating/unable to lie down for neck pain/deep diving pressure in head/constant flicking eye/really loud thunder in ear/leg that is so weak it gives way/freezing freezing hands feet bum nose/mental cracking grinding "rice crispy" noise in neck with extreme pain/the ice cream cone twisted feeling in my head that stops me being able to turn my neck to look over my shoulder/excruciating pain over L1/2 ....sorry said I'd say the worst but this is just a tad. I'm alone so the choking is the worrying one/it also slows heart right down - pulses to 30 just before I end up on floor almost blacking out. Oh, add peeing in pants just to make life more fun. My GP tells me that none of it could be related - asked if she know condition or has treated someone & get "I'm a general GP". Sad, 3 years telling dead folk what's wrong - get an answer and they even more deaf. Please help. I'm delinquent at technology so no sure how this all works so a 2 year old guide in how to see if there's an answer would help. Almost had a meltdown figuring out a password. Bad day - eyes flicking, thunder in ear, legs twitching, backs spamming & neck grinding. Oh vey
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