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Searching for someone with similar symptoms who has been diagnosed or just an opinion! Thanks

Posted , 3 users are following.

Mumofboys
Mumofboys

36 year old female

List of my symptoms

Cold hands and feet that turn very dark in color purple upon sitting or standing in one spot.

Cuticles on hands develop blood spots that come and go

Pinpoint blood spots develop under my skin mainly on feet but recently seen on my hands

Chronic fatgue

Extreme muscle and joint pain

Repeat chest infections

Heat intolerance

Hoarse voice that comes and goes

Rib pain that when inflammed feel swollen and lumpy

Swollen neck and underarm glands

Dry eyes

Muscle weakness

Tinnitus

Night time nausea

Extreme bloating with little meals

Diarrhea looks oily or frothy

Incomplete bowel movements

Constipation

Chills when tired

Lower than avg body temp 36.1

I have had ana test done about 6 months ago. Family Dr. said negative. Neurologist ruled out MS and said my symptoms aren't exciting enough to be referred to a rheumatologist. Nice eh! He said my symptoms are from my disc herniations. I have 6 herniated discs from thoracic spine to lumbar.

Symptoms come and go except my cold purple feet and hands which are constant. Not raynauds.

Anyone does this sound familiar? My doc wants to say I have fibromyalgia but I'm doubtful.

I have a sister with CREST or systemic scleroderma

Anyone been dx with something with same symptoms or know what this could be?

0 likes, 2 replies

2 Replies

  • Alley77
    Alley77 Mumofboys

    Posted

    Though I don't have an answer Your symptoms remind me a lot of myself I have almost all the symptoms I know I have low thyroid I have lumps in the abdomen Low temp All I get is Your blood is is reasonably ok Who says that What's reasonable I was told fiybro once as well I don't believe it You need a rhumatologist Your doctor and mine Must be friends I'm so sorry your going thru this 

  • Guest
    Guest Mumofboys

    Posted

    Hi, I was recently diagnosed with CIRS or Biotoxin Illness. My symptoms included ... Fatigue, Joint pain, light sensitivity, stomach problems, chest pain, constipation, heat/ cold sensitivity, brain fog, dry eyes, low body temp, lip swelling, unusual skin spots. This condition affects most systems in the body and can mimic lupus. They do have a symptom check list online you can take. I believe if you have 8 of the 13 they list then your odds of having CIRS are high. Hope this helps.
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