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Seasonal Greetings

Posted , 5 users are following.

constance.de
constance.de

Halllo everybody!

After 3 1/2 years I have come to realise that I am a perfectly "normal" PMR sufferer.  Up until I found this site (about 3 months ago) I was alone.  I had this very disabling illness,  I didn't understand it, it wasn't improving, and I didn't WANT it!!!    Now, after reading all your stories, (some of which are truly awful) I realise I am one of the "lucky" ones.  Also, I now have people I can laugh/cry with, I have pen-pals all over the world and I am beginning to understand this peculiar illness.  Thanks everyone!

Have a great Christmas and a pain free 2015.  (I heard some of you groan then!!)

Constance

5 likes, 8 replies

8 Replies

  • tina-uk_cwall
    tina-uk_cwall constance.de

    Posted

    Hello Constance, never a truer word spoken. When I was first diagnosed with this condition I was lead to believe that this was one of the most simplest conditions to treat. It all began with unbearable pain and stiffness but now you've been prescribed prednisone, all you have to do is follow the tapering guide, that was written by someone who clearly has never had this condition and clearly does not understand it, and within oh, at a push, you'll be clear of it within let's say two years at a push!!! 

    Well for all of us sufferers we know it's not as simple as that. They forgot to tell us about the flare ups and of course that the condition, because it's a stubborn little bugger, can be with each of us for many years, far exceeding the "oh, just a couple of years" 

    but as you say, it's visiting sites like this that make us realise that we are not the odd one out, we are not the difficult or different ones, in fact we all have a condition that has a will if its own because we are indeed all different too.

    we are educated to understand that there is a much better tapering system, one that's been written by a fellow sufferer, yes it's gonna take longer, and of course they'll be hiccups along the way, but it should see us right in the long term.

    i'm still on 10 mgs after a year of this body invasion, and I don't like it, but it's here to stay for a while and and like many others have said, although this is a pain in backside, literally, when it comes to diseases, and medical conditions, things could be a whole lot worse.

    thanks to everyone on this forum that writes to my aid when I'm feeling confused and a bit down, especially Eileen whose replies have straightend things out in my mind.

    i also would like to wish everyone a happy Christmas and all best wishes for the coming new year. Regards, christina, cornwall, England.

    • constance.de
      constance.de tina-uk_cwall

      Posted

      Christina, which part of Cornwall do you live?  We used to have a house in the Cotswolds and visited Cornwall quite often.  Thought of buying a house there one day.  Couldn't  afford  it now!  Prices have risen ridicuously in England over the last few years - and, we hear, are STILL rising!

       

    • EileenH
      EileenH constance.de

      Posted

      I don't mind prices rising - but they don't appear to be rising where I have properties!!!!! At least they all bring in rent that is a bit more than the money would be getting in the bank...
    • tina-uk_cwall
      tina-uk_cwall constance.de

      Posted

      Hello Constance, I live in a little hamlet called stennack, just outside the village of troon that's part of camborne. We have lived here for just over 3 years.we moved here from Canterbury in Kent and we loved living there too, but cornwall was a county were we always came on holiday as we've always had dogs and as my husband says, it's our spiritual home! Unfortunately for us when we moved here the country was deep in a recession so we sold our house in Kent for less than we'd have liked, whilst the Cornish house the sellers wouldn't sell for a penny less than the asking price, that's just typical that we fell in love with it! We run 2 holiday cottages which for the 3 months before I was diagnosed was total hell on earth as I was in so much pain cleaning them on changeover day. But Cornwall is joyous we love the woods the walks, the beaches, the history. But Eileen's quite right, the amount of interest you make on money in the bank is outrageous so owning property to rent out is definitely the way forward. Christina
  • erika59785
    erika59785 constance.de

    Posted

    I join you you and Christine with my Merry Christmas greetings to everybody on this forum, with thanks especially to the kind guidance of Eileen and Mrs. O.

    I am still in the struggling stage of trying to taper from 17 1/2 to 15.  15 seems to be still difficult......I probably should try just 17 for a while, and then 16 1/2?

    The right buttock pain due to a problem with the Sacroliac Joint has not resolved yet and tends to flare. Physical Therapy helps and my own prescribed exercises.

    It's manageable but the stairs in my townhouse are a true effort.

    A HAPPY AND PAINFREE NEW YEAR to all my fellow sufferers!

    Erika

    Erika

     

  • pat38625
    pat38625 constance.de

    Posted

    Like yourself I just found this site although I am only new to PMR was diagnosed 12th November and yet I have learned so much and still have much to learn I'm sure.  Thank goodness we have this forum where we can air and share our experiences.  So you are not on your own Constance.  
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