Seborrheic Vulvitis

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anyone have this.  Have had bad vaginal atrophy.  Had 4 Mona Lisa treatments but still get a discomfort.  Esp when I have my bottom clothes on.  Mona Lisa has helped considerably but been dealing with this for over a year and very tired of it.  Using estrace in the opening and on urethra 3 x week and using a special shampoo down there and fluocinonide nightly.  The discomfort feels like a dryness but I’m not dry down there. I don’t get it.  Even used Revaree hyralauronic acid suppositories but don’t use them any more.  Anyone have any suggestions or go through something similar

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6 Replies

  • Posted

    I could find no info on seborrheic vulvitis. Is this separate from the AV? Was there any testing done to narrow this down?

    Years ago I was told I had seborrheic dermatitis on my scalp and a red spot between my eyebrows. Have always used dandruff shampoos to control it. Usually requires washing hair everyday. My dad had the same thing. He was given a medicated shampoo which seemed to do nothing.

    Once took Diflucan to kill off possible yeast. Dandruff totally disappeared, but returned shortly after. I had read in the past that dandruff is a sign of yeast. Wonder if there is a connection between your symptoms and yeast? You could try a yeast free diet (very difficult for me).

    I also have AV. Using a compounded version of Estrace. Now diagnosed with LS and using steroid ointment. How is this different from SV, do you know?

  • Posted

    I had 3 laser treatments, the last at the end of July. The AV was triggered following this last treatment and I am still trying to resolve the symptoms. I believe the laser improves lubrication but does not prevent or cure the AV. I am now on Estrace 3 X per week. I am getting some relief but it will take some time. My GYN did say if I did not get better within a few weeks, it helps to try a different formulation of Estrogen. So I might have to do that. Also I am a breast cancer survivor.

    The Women's Health Initiative study, a 15-year research initiative that launched in 1991, reported a threefold increase in the risk of breast cancer and stroke among women who took oral estrogen. Many women assumed the same risk applied to topically applied vaginal estrogen, which is not the case. Vaginal estrogen results in minimal absorption in the blood compared with oral estrogen. The labeling for vaginal creams was never changed by the pharmaceutical companies due to cost savings. My gyn told me it is best not to read them.

    Clinical trials are also ongoing to test the use of laser technology in patients with persistent and painful external skin conditions like lichen sclerosus, which causes a thinning and a patchy whitening of the skin, which can be debilitating for many women. (Beth Israel Deaconess Medical Center).

    I hope this helps. 

    • Posted

      chef, are you saying you had the laser treatments because of seborrheic vulvitis? This stuff really gets confusing. I can't find any info by googling so I don't know exactly what it is (unless it's like dandruff) or how it is usually treated.

      You say the laser triggered the AV, but laser is used on women to treat AV, so that seems odd.

      I have AV, am now using hormone cream for it, and have recently been diagnosed with lichen sclerosus which I'm treating with a steroid ointment. Maybe this is similar to SV, I don't know.

      The laser is supposed to spur on collagen production which makes skin more youthful. It was originally used on the face. Using it on the vagina is relatively new. Some women here report success, others are suffering with the effects of having had it. I had assumed if the atrophy got bad I would have the laser, but have changed my mind on that. My gyn says she is following it closely, but does not recommend burning thin skin.

      Skin in general seems to be a mystery to the medical world.

    • Posted

      Hi Beverly,

      No I do not have seborrheic vulvitis. I agree the skin conditions get tangled in confusion. AV is associated with dryness as well though wanted to share that there is research happening out there now.

      I tried the laser in hopes of not using estrogen creams for the rest of my life. The first 2 treatments went well but the 3rd proved to be too much for me. 

    • Posted

      chef, I've been using the hormone cream for 3 months. First every night, then twice a week, now back to every night in an attempt to keep the estrogen levels steady. Gyn tells me fluctuating levels cause fluctuating PH which can cause infections. As I have a phantom infection this is how she is treating it. I did take flagyl which cleared symptoms but they returned. Not sure where this will end. Maybe another round of flagyl?

      Am assuming you don't have LS which is good. My advice would be to definitely stick with the hormone cream. Apparently my not using it brought on the LS which I had no idea I had till seeing the gyn about the signs of fleeting infection. Fortunately the LS is responding to the steroid. So I've gone from trying to avoid hormones to using them and steroids! But there are no other options that I can see. 

      Hoping for the best.

    • Posted

      I wish you all the best. I do think the hormones will solve it. Stick with it. I know I will. I sometimes find aquafor oinment soothing as well. 

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