Second guessing
Posted , 4 users are following.
Hi there my neuro wants to put me on Tecfidara but I refuse to after reading the risk of the PML infection. I feel like she's setting me up for failure. Are there any other helpful good medications that you will recommend?
0 likes, 12 replies
Misssy2 marie92528
Posted
I don't know why because I looked up this particular medication (Gabapentin)...but my sister has MS and was prescribed this medication.
I was prescribed this medication for pain.
BUT...when you look it up...it says it is for "epilepsy"...Hmmmm.
But the Dr. that prescribed it to my sister IS the best Specialist in our area....However, t his medication makes my sister TOO groggy and it doesn't really do much to me...at all.
marie92528 Misssy2
Posted
fester Misssy2
Posted
Misssy2 marie92528
Posted
I don't think I have MS marie....but I have many "white" spots on MRI...just not in the exact places they look to diagnose MS....but they are sending me for a Lumbar Puncture to complete diagnosis.
I do take Gabapentin for nerve pain thou.
And it does help with my anxiety.
Oddity Misssy2
Posted
Hi Missy,
I was found to have quite a few white spots myself. They are mostly subcoritical. I'm told they are not consistent with MS, but I also have strange nerve pain in my legs, mostly lower, but widespread in my legs. This is very true after I have been on my legs for some time or try to workout. This pain is the oddest sensation, somewhat itchy and stingy. It's hard to describe.
I also take Gabapentin.
I'm curious what your nerve pain is like?
I have also had MRI's of my cervical and thoracic spine, both of which are negative.
Oddity Misssy2
Posted
Hi Missy,
I was found to have quite a few white spots myself. They are mostly subcoritical. I'm told they are not consistent with MS, but I also have strange nerve pain in my legs, mostly lower, but widespread in my legs. This is very true after I have been on my legs for some time or try to workout. This pain is the oddest sensation, somewhat itchy and stingy. It's hard to describe.
I also take Gabapentin.
I'm curious what your nerve pain is like?
I have also had MRI's of my cervical and thoracic spine, both of which are negative.
Misssy2 Oddity
Posted
yea, I had the MRIs on spine too.
The pain I have is achy...and then I start limping....my bones hurt in my hips, ankles and legs...
I really don't know if it is nerve pain cause I was diagnosed with Fibro as well...
Oddity Misssy2
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Misssy2 Oddity
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Its really HARD to describe the pain.....honestly..its majorily annoying...
I kept asking them..are you sure I don't have bone cancer!?
LOL...thank God I don't think I do...but they did ask me to go to an Oncologist for my wacky blood work.
But, I truly believe my blood work is wacky because I struggle with an alcohol problems.
Oddity Misssy2
Posted
I only have brain lesions, so this might be something else causing this. Like an infectious process.
Misssy2 Oddity
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So all your auto immune tests came out ok?
Mine did not...the inflammation markers stay high and they can't pinpoint why.
I have to say I am glad the inflammation markers show high because otherwise..I look normal and sometimes I feel like people think I may just be complaining for sympathy or attention.
I'm not however excited about exploring the oncologist even thou I know rationally if they find cancer early it is better...but bone cancer is basically a death sentence and I'm scared to hear it.
Oddity Misssy2
Posted
I have had a ton of blood test over the past year and everything is pretty much normal.
I too look normal, so everyone thinks I am faking. It's not a good position to be in as you can relate.
I'm not very familiar with bone cancer, but you would think you would have.other symptoms like fevers and swollen lymph nodes if you had it?
All I can say is that the big man upstairs has chosen us to walk this path for a reason. It may take is a while to figure out what that reason is.