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  3. Polymyalgia Rheumatica and GCA

Second opinion?

Posted , 5 users are following.

catherine34621
catherine34621

Well, after 14weeks of waiting, I finally got my visit for a second opinion to see if I have pmr, gca, neither or both. I saw a Professor who specialises in Vasculitis and she was very nice. I told her my saga, and although she says I have all the symptoms, because of my inflammatory markers not reducing, she cannot give me a definite diagnosis until the Pred. is reduced. I have had difficulty before reducing, so from 20mgs a day, she wants me to drop 5mgs to 15mgs for a month, then to 12.5mgs for the same, then to 10mgs. for a month. She says then I will need a ct scan as the Pred. will affect the result if it is too high. I woke up this morning, and was in agony with a toothache like feeling in my right buttock, I was determined to make the appointment after waiting so long, I virtually crawled home andam now using a stick to move around. This comes after approx. three weeks ago, I had the same ache in my left buttock, Voltarol and paracetamol saw this off, I hope the same happens again. I saw a "nurse practitioner," and he said it was "muscle pain" duh! Something new every day with this pesky disease, whatever it is!

 

0 likes, 4 replies

4 Replies

  • amkoffee
    amkoffee catherine34621

    Posted

    There is a muscle deep in your butt cheek called the piriformis muscle. That muscle can cramp up and become very painful. I know because that's how my lower back pain started was in my piriformis muscle. It could be that that pain you have in your butt cheek is not related to PMR but is rather a piriformis muscle cramp. If that is the case a trigger point injection in that muscle should help that problem. BTW men get piriformis muscle pain because they sit on their wallets. That gives you kind of an idea of where the piriformis muscle is.

    • catherine34621
      catherine34621 amkoffee

      Posted

      Thank you amkoffee and others for the advice, I wish I had never mentioned the backside problem, the last thing I wanted was to cause friction.
    • amkoffee
      amkoffee catherine34621

      Posted

      Oh Catherine don't apologize. The other responder is a new person and obviously does not know the etiquette and rules of this forum. Not to worry the main concern is you and your pain.

    • EileenH
      EileenH amkoffee

      Posted

      More likely a troll! And recognised by the moderators as such...
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