Second opinion
Posted , 8 users are following.
Hi everyone and i am glad for all the posts I read on this subject. I am just wondering though if i have LP. Thing is there are no marks apart from this awful redness and soreness. I have started the Betnovate one again and at night but put olive oil on everyone time I spend a penny. No signs of improvement yet Just wondering if I should get a second opinion. I havent seen a Dermatologist, only a GP. Would be glad of any advice. Thanks
1 like, 13 replies
Gillian1956 bianca
Posted
Hi iI went to a dermatologist and had biopsy done still didn't determine what I had but she said she though it was LP but like you I'm not do sure I've got the redness and sorness like you and find the steroids don't help just make it more sore I'm feeling frustrated because she gave me some cream to use last time that was more for thrush now o was going to see my doctor for a few years with this problem and he kept giving me cream for thrush that made it worse so now I don't know what to do I'm thinking of asking for a second opinion my self
bianca Gillian1956
Posted
Hi I was wondering of a biopsy is painful. I have had two, one on leg and one on finger, but the vulva seems particularly painful?
Gillian1956 bianca
Posted
It's not painful because they use a numbing injection in the area and I found it not to sore after just remember to keep it dry and clean as much as possible and wear a skirt instead of trousers or Jeans for a few days
Guest bianca
Posted
Hi Bianca,
Definitely see a good dermatologist and have a biopsy done. Steroids aren't really all that effective and they are not a good long term solution. They tend to be too nonspecific in resolving the cause of inflammation in general and have an array of their own nasty side effects. Your primary care doc may be a good person to have help you locate a good dermatologist. Also, if you live near a large teaching hospital they should have one there 😃 At the very mimimum a good dermatologist should be up to speed on the latest treatments and will continue to see you for ongoing surveillance. If you are near Jacksonville, FL, Alison Bruce is a Lichen Planus specialist at the Mayo Clinic there. Hope you feel better soon! M
bianca Guest
Posted
Hi there, thank you so much for your feedback. sadly i am in UK so will have put suffer the so called experts here. I will however press to see a dermatologist as I am so unhappy about things.
Gillian1956 bianca
Posted
Same for me Bianc I'm in the UK
carol48091 bianca
Posted
Hi I'm in the UK and had l.p. for 18 years. Vulva, mouth erosive lips erosive, skin. Ears very sore. I've had 8 biopsy just had a erosion removed from my lip.
I recommend you see a good dermatologist they can spot any changes and arrange biopsy if needed. I only use steroids at the moment but they work well. My l.p. is always sore and have never gone completely.
karen41728 carol48091
Posted
hi carol
did you ever have any treatment years ago for abnormal cells after a cervical smear test, i did and also suffer with Lp, it seems that the hpv virus that causes the abnormal cells causes the Lp
carol48091 karen41728
Posted
Hi Karen
No I never did.
I did have Hogkins lymphoma 20 years ago and have just had a total hysterectomy for stage 1a cancer in the lining of the womb. But no cels before the Hogkins.
karen41728 carol48091
Posted
aw sorry to hear this carol, hope your okay, it usually takes years for cancer cells to develop in the womb, just makes you wonder when it started. hope your on the mend after your hysterectomy. how old are you? im 60 x
carol48091 karen41728
Posted
Hi Karen
Thank you 😊
I'm 60 in a few weeks
Yes I am okay thank you I think out of all of it the l.p. is worse. It's a creative little complaint keeps you on your toes 😊 x
karen41728 carol48091
Posted
hi carol
im happy to hear your okay but i know what you mean it gets everywhere! i have it orally too, have regular checks at the dentist, do you? x
carol48091 karen41728
Posted
Yes I do, but she is reluctant to look at it.
But I have a oral surgeon I see regually.