Posted , 5 users are following.
Hello all i'm new to this site! I have recently been discharged from hospital after suffering my second PE aged only 22. I will now be on rivaroxaban for life as the risk of a third one happening is too high. Obviously i've read up about the drug and know it's side effects but for me knowing i'm going to be on it forever is really quite daunting. Can anybody who is on life long anticoagulation please give me an honest opinion of what it is like? I also feel great worry over what has happened to me. I've spent the days pondering over the 'what if's'. Even now as i'm typing this the breathlessness i'm experiencing serves as a reminder Does this feeling of worry and anxiety ever go away?? Thank you.
0 likes, 4 replies
Sorry to hear about your troubles. As a recent PE sufferer, I really can say "I know how you feel".
First off, don't panic - it really does get better. I suffered breathlessness to varying degrees for some weeks. It was after about 10 or 12 weeks that I really noticed a dramatic improvement. Almost back to normal now after about 16 weeks and breathing is better than it has been for a year or so.
I am afraid I can't comment on long term rivaroxaban, as I was only on it for about a month. It didn't suit me - although I know others who it suits very well. I am on warfarin and that seems ok and both my father and father in law were on warfarin anti coagulation for decades with no ill effects.
For the "what ifs", they recede after a bit as things improve. I had a large number of large clots in both lungs....my view is that I ended up in a good place, so I view "what ifs" as "whatever"s :o). Exercise helps, so I am looking forward to spring!
Good luck with the recovery and I am sure you will feel a lot better soon.
All the best.
I'm sorry to hear about your pe's.
I came out of hospital nearly 2 weeks ago now and still find it hard to comprehend what happened.
It's a big shock to you and life changing I think.
I am on Rivaoxaban for the rest of my life too but unlike you I am 44. Still it is very daunting.
I have found comfort in speaking to people here who know what it's like to go through an embolism and reassurance that things will get better.
I am taking each day at a time. I do feel a little better. I think it's all down to being patient and taking it easy.
I know it's hard but try not to think of the ifs and buts as it will drive you nuts.
Keep logging on to this site and posting.
I hope you feel a little better soon and wish you well in your recovery
Join this discussion or start a new one?New discussion Reply