Second time lucky?
Posted , 9 users are following.
Good morning everyone. Well here we go... second attempt at starting to reduce. Despite explaining the advice I'd gleaned about the "no more than 10%" rule, doc is insisting on a 5 mg reduction from 30mg to 25mg. I think he's concerned about the dreadful palpatations I'm experiencing and he says at a higher dose 2.5mg here or there won't make a difference. He has agreed once I'm down to 20mg we'll go much slower. Pill cutter in drawer of needed. Have a good and painfree day everyone.
1 like, 24 replies
EileenH karen48559
Posted
How long is he giving you to reduce that 5mg? It'll be at least 2 weeks I imagine so you could do it half and half - 2.5mg at a time a week apart. That should work OK unless you are very sensitive. 2.5mg every 2 weeks is still 5mg in a month.
karen48559 EileenH
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EileenH karen48559
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karen48559 EileenH
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FlipDover_Aust karen48559
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Once I got to 25mg I went to 2.5mg reductions until I got to 15mg...
I'm now on .5mg reductions as I'm under 12mg daily and hoping to get to under 8mg by Xmas.
My Dr tells me the side effects from pred dissapate under 8mg a day - is that right - anyone?
EileenH FlipDover_Aust
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FlipDover_Aust EileenH
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.....the only side effects I really, really want gone are the excess weight/moon face/turkey-neck/buffalo hump!!
talk about vain.... and I'm not even a pretty woman!
EileenH FlipDover_Aust
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EileenH
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And losing the weight brings out the wrinkles ;-) You can't have it all ways!
karen48559 EileenH
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FlipDover_Aust karen48559
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karen48559 FlipDover_Aust
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EileenH karen48559
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There must be a happy medium surely?
beatrice74480 karen48559
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karen48559 beatrice74480
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EileenH karen48559
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However, if you are using the dead slow approach and/or only dropping 1/2mg at a time then any return of pain should really be suspected to be a flare - the tiny steps do mean that, say, 5mg is enough to manage the inflammation but 4.5mg isn't. And then the change in dose could be enough to let the inflammation break through, especially after a few hours.
karen48559 EileenH
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linda17563 EileenH
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EileenH linda17563
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Have you tried splitting your dose, taking about 2/3 in the morning and the rest in the evening? Or maybe even all at night. Others have found that helps reduce the side effects they suffer. The doctor hammer on about taking it all in the morning to preserve adrenal function - but that is rather pointless if you have other side effects since when you are on pred for a long time adrenal function is inevitably affected. The "take all in the morning" mantra really applies more to shorter term use of pred as well as the fact that the sooner you take it the sooner the morning stiffness is dealt with.
You WILL get there, though I know it doesn't feel like it at present.
linda17563 EileenH
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EileenH linda17563
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linda17563 EileenH
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diane_e02657 EileenH
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I would not be afraid of Rayos... it's awesome and I haven't heard of one person having any problems with it..
EileenH diane_e02657
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Trouble is - when funds are restricted, so are the more expensive versions of any drug.