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Second week if steriod reduction

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julia85224
julia85224

Hi, all,

Last week reduced steroids from 12.5-10mg,

and many of you kindly answered my questions as I was feeling quite ill.

Second week now and have had a bad headache, my Consultant doesn't think it is Gca, relief, but I explained the symptoms I had last week and he isn't convinced I have

Pmr.

He said reducing steroids from 12.5-10 should not make feel ill, and as my bloods are normal, he is going to take me off steroids quickly.

Totally confused.

I see him Thursday and I am not happy.

Please advise if you can, does anyone have similar symptoms to me when reducing, ie fatigue, aching, and unwell.

0 likes, 33 replies

33 Replies

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  • Sheilamac_Fife
    Sheilamac_Fife julia85224

    Posted

    Oh No! What is the matter with these so-called experts! 

    12.5 down to 10mg, lots of people can do it no bother, I couldn't! It is more than the recommended 10% reduction, so it's always possible that you will feel ill. The bloods are irrelevant because over 20% of people never have raised markers!

    makes me mad! Did you have a 70% plus improvement when you started steroids? If you did, you have PMR! 

    Please don't let them rush you off steroids, you are going to feel sooo bad and will be in such pain!

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