Secondary adrenal insufficienc

Posted , 2 users are following.

This discussion has been locked due to a period of inactivity. Start a new discussion

Hi

So , my labs tell me I have really low cortisol

And it matches up with hypopituitarism etccc...

My doctors havent quite clued in yet

I was basically arguing with my endo saying

I think I have a pituitary tumor

I've learned that they don't believe you

Anyways,

Thanks for listening

0 likes, 10 replies

Report

10 Replies

  • Posted

    Did you take the pill before taking the tune test Dexamethosone or something like that? If so it suppose to lower. But if you did not take pill they need find out if you have Addison disease? Keep on them.
    Report
  • Posted

    thanks Kim

    no pill, I've never taken the pill, I've heard too many stories about how it causes certain things

    like cancer (possibly)

    yes well see

    thanks

    Report
  • Posted

    Pituitary tumours are very rare. Even adrenal tumours are rare. Your GP (PCP) will see a very few cases of adrenal tumour in the course of a career and typically no more than one case of pituitary disease, ever. So it is not really surprising that it takes a while to spot, especially "inactive" tumours. Obviously your endo is a specialist and is far more aware of the possibilities. NB that if you really DO have a pituitary tumour, they are almost always benign and although in the skull, they are outside the brain so not a brain tumour.

    Nobody is going to do anything without evidence and the most useful test is a synacthen test. You get give a small injection of ACT hormone, the signal hormone that your pituitary should send to your adrenals to provoke cortisol production. If nothing happens, the problem is your adrenals : if it does (i.e., cortisol is produced) then maybe your pituitary hasn't been asking.

    Either way, the treatment is cortisol replacement - hydrocortisone and/or prednisolone. An operation is only done if essential and then only to stop matters getting worse, it rarely fixes the problem.

    Report
    • Posted

      Small error above: when I said "inactive" (pituitary tumour), I should have said "non-functional", These cause the pituitary not to do its job of sending signals to the major endocrine organs to do the grunt work. ("Functional" tumours are a lot easier to spot, like when a man produces breast-milk [prolactinoma], Cushings, Acromelagy etc etc).

      Report
    • Posted

      thanks for your reply

      however my cortisol is low enough

      I do not need the ACTH test

      I already have only a little ACTH and

      if I took the test , I would probably have less

      I have already spent weeks researching it

      those tests are only effective if you have

      adrenal Adison's , which I don't

      Report
    • Posted

      If you had a functional tumour, there would be no 'probably' about it.

      In real medicine, no tests mean no evidence means no diagnosis means no treatment.

      Report
    • Posted

      if you really want to understand

      the acth test depletes the adrenals

      so I'm going to avoid it

      Report
    • Posted

      Hi there may I ask what your situation is Roddy. You seem very knowledgeable. Is it really that rare to have a pituitary tumour if they have a forum on it and all of us have one? It seems more common now  I personally have two other friend that have a pit tumor.  With today’s stress levels of everything  I can more issues with Cortisol etc.
      Report

Join this discussion or start a new one?

New discussion

Report as inappropriate

Thanks for your help!

We want the forums to be a useful resource for our users but it is important to remember that the forums are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the forums is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.

newnav-down newnav-up