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I don't even know where to begin. This is going to be really long. I am losing hope and will try any platform to try and get answers. I am seeing doctors and dermatologists regularly to little avail and the psychological effects of this thing on my face for so long are ruining my life.
My skin issue can be split into two areas: severely dry, cracked skin on my chin and the reoccuring, untreatable infection of the wound.
I have been suffering with incredibly dry, cracked, scaly, on-and-off infected skin on my chin for 2.5+ years. I have seen so many doctors I've lost count, seen two dermatologists. Not a single thing we have tried in 2.5 years has worked. Saying that, the dermatologists have been disappointingly uninterested and the doctors have admitted to having little to no skin knowledge.
Pics of my chin: https://imgur.com/a/a2Yga .
I have a million and one pictures of my skin in varying states but those are all from the last month. Worth noting the spots around my mouth have only appeared in the last 6 months and are none stop.
- never had problems with my skin growing up
- Jan 2015 (age 21). Woke up new year's Day 2015 with dry, red, sandpaper-like skin on my chin and underneath my bottom lip. Visited doctor a number of times who have me varying moisturisers and emolients. Over 5 months it spread to my top lip, eyelids and under eye area. In may 2015 it (almost) disappeared for a whole year.
- may 2016. My skin started to 'flare' in the same places, such particular patches on my skin and eyelid that it was definitely the same thing. Kept trying different moisturisers and treatments.
- august 2016. I got impetigo around my mouth for the first time. Easy to treat with fusidic acid.
- for the rest of 2016 my skin got increasingly worse, turning from red, flakey, itchy patches to cracked, weeping, often bleeding patches localised only to my chin underneath my bottom lip.
- from November 2016-September 2017 I have had impetigo so many times I cannot count (over 25) but in reality it could be ongoing impetigo that hasn't been properly treated.
- by July 2017 I was resistant to fusidic acid and flucloxacollin and my impetigo was untreatable. Nose swabs taken in May 2017 came back negative for any MRSA/staph colonization.
- September 2017. My doctor has given up. I have given up. I requested two more swabs of my nose and mouth for MRSA this morning at the doctors. My skin has become less about treating the underlying dry skin issue and more now about the recurrent infections I get due to my open wound.
now: the pictures above show my skin up until yesterday (they are in no order). Sometimes I wake up with impetigo, sometimes I wake up with slight yellow skin, sometimes I wake up with no visible infection but just cracks. Sometimes it weeps, sometimes it is accompanied by lots of puss-filled spots. Sometimes it looks like I have got the most severe chin-dandruff you can imagine. Some days it looks like it may be going away. No matter what, infection or not, by the middle of the afternoon, my skin is torn open, cracked, itchy and severely dry.
Over the last two years I have had the following treatments/tests/antibiotics for the dry, scaly skin:
- ketoconozole cream and shampoo (2015 - first doctor said it may be sebhorric dermatitis. No improvement)
- metronidazole tablets. No improvement.
- lymecyline (for the possibility of perorial dermatitis. Taken in 2016 and I am currently on this now for no real reason other than the doctor doesn't know what else to prescribe currently 1 month into a 2 month course. No improvement)
- steroid cream. No response.
- several blood tests for things such as thyroid, diabetes. All came back fine.
- b12 levels tested. All good.
- taken multivitamins
- take evening primrose oil
- did an elimination diet where I basically ate potatoes for 6 weeks. No change.
-patch test revealed minor allergy to nickel and nothing else. I have never had a rash anywhere else on my body from contact with jewellery, zips, holding keys/coins. Am very skeptical of this but continue to avoid as much nickel as I can for the purpose of testing any relation to my chin.
- I have had the Mirena coil in for 4.5 years and have had a mess of issues caused by the hormones. I am getting it removed before the end of the year in case the hormones have anything to do with it.
In relation to the infection:
- used fusidic acid cream for about 9 months successfully. By the end it was back-to-back infection and I was resistant to the cream.
- uses flucloxacollin twice, impetigo came back straight after the course finished.we concluded that I am also resistant to this antibiotic
- nose swabs taken for MRSA in May 2017. Negative.
I have probably missed so much out of this because after 2.5 years of none stop trying things and making sporadic notes and taking literally hundreds of pictures, it has all blurred together.
My current skincare routine: I don't really have one. I splash my face with water and use Simple rich moisturiser all over my face. Then on my chin I put whatever emolient/heavy cream I have to hand. Diprobase, dermol, cetraben. You name it, I have a giant bottle of it. On a night I do the same thing.
The only makeup I have worn in the last year is something to fill my eyebrows in, either eyeshadow or a pencil.
Has anyone ever seen anything like this before? Even prior to the obvious mysterious infection my chin/mouth was severely dry. We have always treated both as two separate issues but I do think it's possible they may be the same issue form the beginning, building up?
I'm so sorry this has been so long. If you need any more information from me, I will happily provide.
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