1. Community
  2. Bones, joints and muscles
  3. Fibromyalgia Syndrome

Seizures/variant migraine

Posted , 4 users are following.

Lily23957
Lily23957

I have been having a terrible time with episodes of ''fuzzy head'' ,drowsiness,episodes where I can't think,as if my brain has stuck,visual disturbances where everything looks strange/unreal,sometimes my speech is affected.In between these episodes I have a permenantly heavy headed feeling.At the moment it is so bad that I am unsafe to drive.After a stroke like episode last year I was diagnosed with a rare form of migraine and my GP thinks that the recent problems are part of this.I have been commenced on epilim as a preventative measure but not sure they are working.Do any of you out there suffer with the same or similar?Do you think or have you been told that it is part of your fibro?This is devastating my life at the moment and I really need your help!.....When they thought I'd had a stroke they did scans which showed I had advanced grey matter loss in the frontal lobe......I am so scared of developing dementia.

1 like, 25 replies

25 Replies

Prev
  • haluleemchoney
    haluleemchoney Lily23957

    Posted

    Lily let me tell you about my 'fuzzy head'....My GP has only just suggested that I may have Fibromyalgia and my experiences of a 'fuzzy head' scared me as I thought I had early dementia, I'm 47. I got out of shower a few eeks ago, sat on the bed for what seemed like a few minutes, then got up and thought I had better dry my hair, looked in the mirror and saw that I had already done it. Scared me to death as I couldnt even remeber doing it. The other day I was watching Bargain Hunt or something, and couldn't understand the concept (exchange) of money for a few minutes. Couldnt work out how to X something by 2 and a half on my calculator the other day...of course its 2.5 but I had no idea (In front of my boss) at the time. tried several times to say 'morning' the other day but could only say 'Yawning'. Oh dear.....I have a sense of humour about it now bit its very disconcerting when its happening. You are not the only one X
    • christine26761
      christine26761 haluleemchoney

      Posted

      Poor you, it's awful when brain fog sets in isn't it?..we were having lunch yesterday after church and I was chatting away..then I sad: " O sorry what was I talking about" grrr -( I had no idea) we all just laughter and I was put back on track..it is very funny really, but at the time, it's a shocker..mm guess if you can laugh about it later .then your ok and your friends are real friends..hence, it's brain games for me today!!! be blessed..have a great day...halueemchoney ..now I'll never remember that name..lol :-) xx
    • Lily23957
      Lily23957 haluleemchoney

      Posted

      It scares me to death when it happens!....I think all the knowledge us nurses have comes back to bite us in the bum when we are ill because we imagine all sorts!...Whilst I would not wish fibro on my worst enemy,it does help to know that I am not the only one. x
    • Lily23957
      Lily23957 christine26761

      Posted

      I am always losing track mid conversation.It really annoys my husband who will often say,''Will you please hurry up and remember because I want to know how the story ends!''rolleyes
    • christine26761
      christine26761 Lily23957

      Posted

      Absolutely know what your talking about..I used tort yank disguise my forgetfulness mid way through a conversation- I would totally forget what I was saying..then go around the merry go round until I remembered whatI was  talking about, then finish my conversation...mmm .people were sooo patient with me..it sometimes took me sooo long to say something...grrr....not so much now I'm older and play heaps  of mind games .....:-) xx
  • haluleemchoney
    haluleemchoney Lily23957

    Posted

    PS... I am a nurse, overworked and stretched to the limit. I wondered if that was the cause of my problems. How awful (A job in tesco sounds inviting) ;o)
    • jeanne81532
      jeanne81532 haluleemchoney

      Posted

      Hi again, Lily and I discussed nursing and stress and fibro being related earlier in this thread. Join the club! x
    • Lily23957
      Lily23957 haluleemchoney

      Posted

      If I had a pound for every time I dreamed of stacking shelves in Tesco I would have been able to retire a lot sooner than 50!
Back to top
Prev

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.