Self catheterisation..help..
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I hav an appointment nxt wk for the nurse to teach me self catheterisation...please can some1 explain to me wat to expect...im more scared of this than i am of my pendin surgery...x
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kimmyMac Guest
Posted
I would recommend trying to relax before going in. The first thing my nurse done was calm me down... She then went on to describe in a lot of detail how to preform it myself with the help of a book she went through step by step. She then got a whole bunch of catheters together and explained the difference in them and asked which one I would like to use. Some are more compact than others and some looks better but that's it.
She then asked me to have a shot, she said if I wanted her to watch and help but I said no. She talked me though different positions to try when doing it. I got it pretty much first time. She then gave me a starter pack and information on how to order more. Gave me her phone number to if I needed any help. That's about all I went through, anything else you want to know?
Kim
Guest kimmyMac
Posted
Thanku so much hun i am terrified...not sure why thou...does it hurt hun and is there any way i cd do it wrong...i no that mite b a strange question...from readin ur reply its sounds quite straight forward and i jus need to learn to calm my nerves b4 i get there xx
kimmyMac Guest
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I was the exact same as you and it's normal to be like that. I am only just 21 and hated the thought!
At the start for me it never hurt for the first few weeks but then I wasn't able to do it at all and just seen lots of blood. My nurses were even struggling to get an indwelling catheter in so now I have a supra pubic catheter. I found out a I have rare condition called fowlers syndrome and it is harder to do with my condition. But it really shouldn't hurt you, just take your time and if you can't get it first go don't panic. Relax and try again.
I know what you mean I was scared to try as I didn't know where to insert it and thought far too much about it. This does sound gross but you can miss your urethra and insert it into your vagina, you'll know if you do this as no urine will come out. If you do that, don't panic it just means you need to go higher up. They can give you a mirror if you want to be able to see where your putting it but I didn't want to use them. I found standing and sometimes sitting the best way for it. I know how scared your feeling right know as I was in that position. I felt like I would be judged but it has to be done. We need to get our urine out our bladder and it is more hygienic than a long term one. I did enjoy when doing it I felt more free like down below which felt great!
Feel free to add me on Facebook if you have it and then anytime you need advice or anything you can ask me. Even after you've started it When is your appointment? xx
Guest kimmyMac
Posted
Ive watched videos on you tube about it haha weird i no and it looks so easy...
Yes im on facebook hun feel free to find me ive got a profile pic of spongebob...profile name sarah higginson...it b fab to hav a friend who knows and understands wat im talkin about 😃 xx
DarrenUK Guest
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Guest DarrenUK
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kimmyMac Guest
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If you find it too sore which it's not really just uncomfortable I would say. Mines became sore and unable to do as my muscles closed up so needed surgery to put a catheter through my skin into my bladder. You can always ask for something called instilagel which is like a local anaesthetic liquid you squeeze up and around before you insert the catheter. I'm sure they will be able to let you do that. The self catheters I used were tiny and so discreet it looked like mascara! They also come pre lubricated which makes it easier and less painful when inserting. Just take your time when doing it and don't panic, if you panic your muscles will tense up and it will be harder and sorer for you to do.
I really wish you well for your appointment try not to think about it too much. Can I ask how you empty your bladder just now? I am dreading my supra pubic change and want a general anaesthetic as I was in agony with my last change xx
Guest kimmyMac
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At the moment i empty it in a normal Way but after loads of tests they say ive got nerve damage to my bladder and my brain and bladder dont understand each other so it doesnt empty properly and get no warning as to wen i need to go sometimes i can jus stand up and ill wet myself and cant do a thing about it..worse at night wen i go from lyin down to standin..its horrible and havin to wear pads every day jus in case of accidents...consultant says he wil operate wit a mesh to lift my bladder as its dropped thru my vaginal wall causin that to collapse but i need to be trained in self catheterisation first as after surgery i may hav to self catheterise always if the surgery doesnt work...but he wont even put me on the surgical list until im confident in sc which at the moment i cant see myself ever bein..im so desperate for my op i think im puttin more pressure on myself :-( xx
DarrenUK Guest
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Guest DarrenUK
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kimmyMac Guest
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