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  3. Trigeminal Neuralgia

Self help groups

Posted , 5 users are following.

peter91333
peter91333

My 37 year old daughter has suffered from this horrible condition fo a year and a half and would like to talk to other sufferers. Does anyone know of a self help/discussion group or any other hel[pful things in the East Yorkshire area?

1 like, 6 replies

6 Replies

  • Glor888
    Glor888 peter91333

    Posted

    Hi Peter

    I think your best bet is too check on the Internet for self help group/trigeminal forums and see what comes up. We are not allowed to give links to other websites on here. 

    In in the meantime you or your daughter are perfectly welcome to chat about the on diction on here as we are all here to help each other. Also you get not only good advice but remedies or suggestions too.

    please keep in touch and let us know how your daughter is getting on.

    best regards

    Gloriana

    • Glor888
      Glor888

      Posted

      *On diction is supposed to read condition lol
    • Emis_Moderator
      Emis_Moderator Glor888

      Posted

      Hi Gloriana,

      Please do not tell other users you are not allowed to post links, this is not true. You can post any links you like and they will be approved as long as they conform to T&Cs.

      If it is of any help to any users there is the TNA support group as per the link below.

      Regards,

      Alan

      https://www.tna.org.uk/

    • Glor888
      Glor888 Emis_Moderator

      Posted

      Hi Alan,

      Thank you for letting me know. I was going by another member's comment about her post with a link being deleted as it wasn't allowed so I assumed that it applied to all links. My apologies for that. 

      Regards

      Gloriana

  • barbara4711
    barbara4711 peter91333

    Posted

    Hi Peter,

    If you look at the discussions with Fed Up - I Carn't take it any longer I feel like ending my life..... I replied to her and Valkyrie  I hope you find the info/suggestions there useful.  The best thing I ever tried.

    regards

    Barbara

  • Valkyrie
    Valkyrie peter91333

    Posted

    Welcome, Peter. I hope you find a group for your daughter but for the times when she can't even get out of the house, she might like to talk online to us. Lots of good suggestions and support here.
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