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Self medicating

Posted , 5 users are following.

fran13959
fran13959

Looking for some advice.

I was diagnosed with Graves in 2014, which was managed using carbimizole. My T4 results became normal however TSH remained supressed >0.01

I came of Carbimizole in 2016 when I fell pregnant, my levels were fine throughout although TSH again >0.01.

Had a blood test in May as noticed the symptoms coming back. The results T4 39 TSH again >0.01. The GP gave me a large prescription of carbimizole to take whilst I wait to see a specialist in 6+ weeks. 

My issue - she really wasn't very clear how much I should take a day. So I've taken things into my own hands and have been taking 10mg a day until I see the consultant.

What does everyone think of the 10mg dose in light of my blood results. Should I increase to 15? or go down?.

Thanks for your help. 

 

0 likes, 4 replies

4 Replies

  • linda187
    linda187 fran13959

    Posted

    We need to know the normal ranges for each lab test for your lab before as these differ from lab to lab before we can comment.
  • Guest
    Guest fran13959

    Posted

    I am a bit puzzled why your pharmacist did not label your medication, including your daily dose. In doubt, it's best to call your GP to clarify how many tablets you should take per day. 

    The specialist you are going to see will probably ask how much Carbimazole you have been taking and for how long. So it's best to keep a log. 

  • madge1979
    madge1979 fran13959

    Posted

    It’s very important to use the correct and prescribed dose of Carbimazole ..  

    I started at 20mg  per day for a few months tapering down to 5 mg per day ... 

    that worked very well indeed  for  me and I certainly felt the dreadful feelings start to ebb away in a 

    Few months ..

    After that itsvutal to STAT THAT WAY ... by  always maintaining your vitamin ,  minerals and  nutrient levels ...

    Good luck 

    Mx🌹

  • queendy07309
    queendy07309 fran13959

    Posted

    7/17/2018  Hi!

    I did medication mostly myself, I found Linda187 is extremely helpful.

    Drug dosing can depend on body weight. I am a very small person, my highest dose of Methimazole MMI is 10mg/day. TSH can take years to become normal. I've learned patience is very important when dealing with Graves. Take care.

    You may find details and history of my journey in this post.

    7/17/18 Hi Linda

    https://patient.info/forums/discuss/improvement-in-graves-disease-recovery-by-using-l-carnitine--258561?page=5#3261154

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