Sensation
Posted , 2 users are following.
Hi
For over a year ago in Mai 2013 i got very much pain in my back, and 1 week
later i suddently lose feeling/sensation on the right side in saddel area.
Half of the penis and anus have no feeling and numness in both leg.
I google and find out i must go to the hospital very fast. That day i was rejected 3 times before they take me in. I was at the hosptal 4 days they take MRI but nothing was done. I got a letter from this hospital after 4 month and they want to give me surgery between L2-L3 but i did not trust them. I tell my privat doktor that i want to go to the best hospital i Norway Rikshospitalet in Oslo. The doktor i talk to tell me that it was very thight for the nerve in L5-S1 and he want to give me surgery, but he say that the lose of feeling may not come back because the first hospital have to do surgery before 48 hour.
I had surgery in L5-S1 about for week ago 08.10.2014. After that my pain in the back was better but sensation was the same. No doktor have diagnosed me that i have CES but i am 100 prosent sure after allk i have read about it in forum around the world. Is it possible to get a diagnose in UK because the doktor in Norway work togther i think and are scare that i will sue them.
In my saddel area i have now some electric tingling, will i get the feeling back? Have other got the feeling back and what do you feel before it come back?
0 likes, 3 replies
keith94082 godtfred1000
Posted
He rang me on the monday he was very angry with the hospital my wife drop me off I was have trouble walk up right lucky we had a pair of crutches. I kept the letter this time I was more forceful. I was admitted be a doctor who was on duty in the evening of my 1st visit I asked her why she sat at a desk for over a hour clock watching for her shift to end she could have seen me.
I was admitted on that Monday I was not taken to have a mri scan till 5.15pm on the Tuesday. I was in a bad way be then in bed could not wee or poo. Or stand no one was doing a thing. Anyway my scan was sent to the neurological hospital. I was in bed late early hours of weds morning a ambulance crew said I was being transferred urgently. When I got their it was sign the consent form stage to operating theatre s. I don't remember much for over a week .I was in hospital a month. I was told I had complete compression of the nerves I had cauda equine established. They said I would have trouble walking I got out with my right leg had mobility problems I tried to prove the neurosurgeon wring they said I would not be able to wee or poo. Anyway they ended up right I at to have a colostomy and a I leal conduit wee bag.stoma I have had my badder removed I have had 5 major op in the time to now I have another hernia op to come I had a massive hernia repair. Now I need another I am anemic. Not well. I sued for damages that's another story I won a large amount of damages last year. I have nothing of my old life I was 50 at the time had a good job played golf. That all gone. I have established c e to think if they had done something in the 1 St 48 hours I might have been ok. My wife is disabled she as found it hard to see me luck this and does miss the old me I done everything. Now we got cares that live with us my youngest daughter and my son in law. I have been told I am the worst suffer in the UK. Great so what.
karen29937 godtfred1000
Posted
I was diagnosed with Ces a year ago .Reading your story I would Definately say you have Ces.I had gone to hospital when I woke up in extreme pain i could not feel my left foot leg buttock and private areas.The hospital gave me a couple shots of morphine and sent me home telling me my disks in my back were acting up .I called my family dr next day I was having trouble peeing she said she would call Halifax to see when they could get me in. She called back telling me they cant see me for at least 5 to 7 days.Her exact words were its unfortunate but they wont see you any sooner,( My DR neglected to tell Halifax that i could not pee or they would have taken me that day because I was a medical emergency) I was devastated did not know what to do. The next day I began to wet myself (not knowing that my blatter was over flowing) I called my dr office told her receptionist what was going on that I needed her to call me right away she never called me back .I was in extreme pain the next day I went to her office she was not there I asked the receptionist why she never called me back she said the dr didnt want to deal with it she said Halifax could which was 5 to 7 days away,I went back to emergency they werent to worried the dr gave me a anal exam and told me I was numb because i was so constipated.I told the the dr i could not pee she kind of rolled her eyes and said she would give me a blatter scan like i was bothering her .Soon as she did that she walked out of the room I could hear her calling for a ambulance I had 1400 ml in my blatter .I arrived in Halifax they told me i needed surgery right away they had to put me in the MRI first .The word they used for my MRI was a mess my L5 S1 had completely blew up and other damage as well CES the horsetail as they explained it to me .After surgery I never regained my feeling back on my left side I have a paralyzed blatter and bowels I had to self catherize myself and in extreme pain most days,I am only 44 years old and I am still trying to cope what has happened to me.I go to mental health to talk about it but really they dont understand thats the great thing about this site because everyone on this does,I dont feel alone when Iam on here.I wish you all the best because some people have had some of their symtoms come back unfortunately I was not one of them,But if I was you I would get a Lawyer you definately have a case good luck to you.
grace101 karen29937
Posted
Thanks very much.