Sensitive skin, brain fog, lightheaded

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In early July I was diagnosed with mono for the second time. The first time I had it I was 22 & now I'm 36. It started off with brain fog & lightheadedness and moved on to numerous other symptoms like tingling in extremities, muscle twitching, droopy eyelids, headaches, blurry vision and of course fatigue. Brain fog and lightheadedness is better but still very much there. Has anyone else experienced skin that is sensitive to the touch? Not painful but it gets red. And also when my hands are down they get red and white, spotty like. Also not painful but concerning. Any answers would be appreciated!

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  • Posted

    Hi Kravefan,

    I had mono when I was 19 and this past year test positive for active EBV so I too have possibly had mono twice. I have had sensitive skin-but more so regarding the heat or certain fabrics. My skin (specifically my forearms) seem to get very itchy/red easily if they get too warm. Sometimes after a shower or even under a sweater. I also had what I assume was painful soft tissue, not the actual skin itself but underneath the skin I could tell was inflamed/swollen, specifically around my elbows.

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  • Posted

    i have the exact same symptoms, spotty hands and all.. super weird.

    im 27 yr old male been sick for 18 months. i have a new doctor who doesnt believe this is all caused by mono, he is checkkng me for everything. did you have the spotty hands the first time you got sick??

    your the first person ive heard thag has these exact same symptoms as me

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    • Posted

      I dont think I had that the first time, it all came and went within a month.

      None of my doctors seem too concerned about it. Also have occasional ringing in my ears and sore heels in the morning. Do you have those symptoms as well?

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    • Posted

      yup had those as well.. also eye issues and other weird symptoms. it all gets less intense but it has taken a long time for me. i wont stop looking for the answer i wont except that this is all mono.. im too proactive to do that.. good luck finding answers and if you do please let me know what they are

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    • Posted

      Keith2525 let me know if they find anything else. Ive had all kinds of tests done and so far and nothing else turned up and I had a setback after an mri with contrast so for now I think I'll wait it out. best of luck to you!

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  • Posted

    That's the same approach I took, it doesn't work. If you keep worrying about it you're gonna stay sick. I had all of those same strange symptoms too it took over two years to feel like myself again and to be honest there's still some EBV residue left over. I know the symptoms are very strange and scary it took me almost 18 months to accept that it was just the virus, but once I did I started to make improvements. Up until I got ill I never had issues with anxiety and I don't now but at 18 months in I finally caved and let my doctor put me on anxiety medication which before all this I was totally against. I took them for two months in the first couple of weeks my symptoms improved a lot, I could finally sleep again and had the energy to work as much as I wanted.

    I understand your proactive approach I'm wired that way too, but believe me it didn't help me it made things worse and I honestly think prolonged the illness.

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    • Posted

      Right but its not logical to think their is a virus out there as simple as mono that no doctors in the world have a grasp on.. its more logical in my opinion that were all suffering from a virus for so long because our immune system is working on something other than the mono.. i dont want to intrude on your situation but maybe anxiety was keeping you from getting better. whereas possibly for myself something else is causing me to not get better. My new doctors daughter had what she thought was mono for a year and didnt accept the fact that it was just mono cause she was testing positive for it but it turned out to be a sinus infection in the back of her head that had prob built up for a long time.. so to say dont be proactive and just accept it might not be the best thing for everyone. It might be better to accept the idea that you are sick and theirs nothing you can do so dont stress and trust your doctors or keep looking for better doctors. just my opinion but im happy to hear that you are feeling better and im hoping we all find out what exactly is going on and start to feel better.

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