1. Community
  2. Bones, joints and muscles
  3. Polymyalgia Rheumatica and GCA

Severe back pain

Posted , 7 users are following.

karen64766
karen64766

Have been on predison now since October 2015 started on 20 mg now tapering down from 15 mg to 12 1/2 mg per day but I have noticed that I am now shaking pretty bad lower back still hurts and can't stand or walk very good is this normal?

Still have lower back pain and in hips in thighs is it possible I could have s pinched nerve that they have not finding? I don't want to book our vacation then find out I won't be able to walk around it's pretty severe

Thanks so much

1 like, 7 replies

7 Replies

  • erika59785
    erika59785 karen64766

    Posted

    I feel for you.  I have had the same problem. Muscle inflammation  in my lower back, and I could hardly walk.  I was diagnosed with PMR September 2014, and it is now getting better. Initially I was on 20 mg of prednisone because of SEVERE back pain like you describe.

    I am now on 9 mg of prednisone lowering SLOWLY 1 mg a month.  Your 2 1/2 mg reduction is too fast. 

    Doctors want us to reduce quickly, but it will cause flares.

    Take care and good luck with the reduction.  You want to be able to walk when yhou go on vacation.  Advil/Tylenol can help for  pain.....

     

    • karen64766
      karen64766 erika59785

      Posted

      Dr also wants me to try acupuncture

      Scared to try that

      Has any one tried that

    • constance.de
      constance.de karen64766

      Posted

      Acupuncture doesn't hurt so no need to be afraid.  However, I have had two lots of 10 sessions (paid for by our national health system) but neither gave me any relief from PMR.

      Others have been helped a lot.  Only thing to do is to try it!

  • iellen32
    iellen32 karen64766

    Posted

    It happens people notice a change on the way their body suddenly reacts whatever a new pain , a teeth issue, weight gain, etc, etc

    I would go to see an specialist to check on a possible pinched nerve as the route cause of your pain.

    Wish you will put this straight before booking your trip and all will work well.

    Stay safe 🌺

  • whitefishbay
    whitefishbay karen64766

    Posted

    U tried acupuncture a couple of times when I just started getting PMR. Helps mobility in my arms on the day but felt v stiff & awful the next day. Madssage feels better. Good luck.
  • LayneTX
    LayneTX karen64766

    Posted

    Bowen, Bowen, Bowen. It took more than 3 sessions, but I'm so happy to rid of the back pain.  Also, guided meditation has helped. I actually lie on my stomach like I do when in Bowen session. I finally found some meditation CDs that I like. Yes, sometimes I doze off, but who cares, I feel relaxed which is a giant plus! 

    Oh, and don't sit for longer than 30 minutes, my back will start to hurt if I'm reclining too long watching a tv show. 

    • iellen32
      iellen32 LayneTX

      Posted

      I do the same as you - meditation, avoid sitting longer than 30 minutes, drink my water in between meals .

      Having no pain though with my GCA when taking the right amount of Pred.

      Keep well 🌺

Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.