Severe constant stomach cramps and doctors at a complete loss.
Posted , 4 users are following.
I'm 20,
I gave both to my son 13months ago, since his birth I have had constant abdominal cramping, at first I thought it was the normal uterine cramping that came along with breast feeding but after 4 months of constant pain I realised something Was up so I asked my doctor and he said to come back in a couple of weeks if nothing had changed.
The only change is that the pain increases with every day that passes.
They have done numerous blood tests, urine tests, stool tests and I can't count how many pain killers and antibiotics I have taken.
All is normal and nothing has even come close to helping.
My doctor did find the bacteria that causes urine infections inside my vagina rather than where should be I.e. My bladder.
My pain is a general abdominal cramp, the worst of it is located in the middle and to the right hand side of my lower abdomen where I imagine my uterus and ovaries are located.
The pain varies day to day but NEVER goes away, my whole upper abdomen is more of an ache than a cramp but I have the constant feeling of heart burn but no actual heart burn.
The pain gets worse when I'm tired, hungry, stressed, laughing, on my period, when I drink alcohol and when I have caffeine.
I drink 2 units maybe once in a blue moon and I don't smoke, I have a balanced diet and I get a small but regular amount of exercise so I'm plenty healthy.
After 13 months of agony and completely mystifying my doctors I'm lost.
Anyone ever experienced anything remotely similar that could help at all??
0 likes, 16 replies
richard89308 alice35251
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alice35251 richard89308
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philippa61759 alice35251
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If all your tests are negative, IBS can be diagnosed. Has your doctor not mentioned IBS?. You could always ask for a CT, endoscopy, colonoscopy celiac testing if these things have not been done. It may reassure you. You could also ask to see a dietician and try the Fodmap diet.
alice35251 philippa61759
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philippa61759 alice35251
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alice35251 philippa61759
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philippa61759 alice35251
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sanya11314 philippa61759
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Unfortunately often symptoms are labeled IBS too early therefore and investigation stopps.
There is though the possibility if ultrasoundsigmoid/MRI wall thickness measurement. If it was under 3mm, it is not even IBS. (If it was more, can be anything if course, but the wrong labeling could be avoided) That's the only test I can think of.
I guess her doc excluded probably parasites, food intolerances, malabsorbtions, allergies, and IBD;IBD sounding so similar to IBS, just one letter difference, hence gets confused maybe? IBD which can be tested via colonoscopy, MRI enterography, calprotectin AND capsule endoscopy. Some people, who were labeled IBS and had the routine works done, actually did have even Crohn found with capsule endoscopy or a parasite found after bowel prep or more sensitive repeated test (PCR). Hence my reservation of premature IBS diagnose. But I did wonder too, how doc excluded IBS with tests???
lilian05079 alice35251
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You should go back to your doc and request an ultrasound scan of your abdomen. Perhaps some placenta was left behind or you may have a uterine fibroid or ovarian cyst...go back and request a second opinion ..this is your entitlement under the Patients Charter if you are in the UK...if you are not in UK you are still entitled to a second opinion......best wishes..
alice35251 lilian05079
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lilian05079 alice35251
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Please let us know how you get on...if the USound shows nothing then you should request CT Scan and Colonoscopy...best wishes....
sanya11314 alice35251
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IBS can be easily ruled out, if an image of MRI or CT imaging shows a sigmoid wall thickness less than 3mm. If more than 3mm it can be anything and needs further investigation. But less than 3mm is a 95% sensitivity that it is not IBS. IBS is often a wrong, too early 'easy' diagnose, and a parasite behind it, or food malabsorbtion or gastrointestinal other problems. It's just so often blamed like 'stress' when no obvious, quick, gross reason can be found and all rare possibilities were not considered.
Also nobody seems to be aware, how disabling sudden but regular cramping pain can be and we need a solution.
Have you also considered endometriosis? It needs MRI AND laparoscopy though for diagnose. Good luck, abdominal pain is a huge field.
One side note which startled me in :
"usual bladder bacteria....". ? The bladder, the urin in there should be sterile, no bacteria. Often e.coli (contamination from our colon) get there and cause a bladder infection. It is not rare to see, that also the very close to urin exit vagina has also contamination bacterial flora from the colon.
If you had a wrong vaginal flora, it would be good to get it treated, I would highly recommend 'infecting' the vagina with the correct lactobacillus (Doderlein) from the pharmacy. In Austria you can buy 'Döderlein med', which have to be stored in the fridge (otherwise they are dead and useless), vaginal capsules. I don't know if you can get them at your place. You can google how to get a normal vaginal flora easily back. If a wrong bacteria flora could cause intense huge abdominal cramping, is totally new to me. Usually women don't feel anything, sometimes notice 'pus' and bad smell or get candida infection (fungi) itchy much easier due to missing acid, low pH. The right lactobacillus flora helps preventing any such wrong infections as the vagina (in contrary to the bladder) is NOT sterile.
Good luck and please let me know if you found a reason, or anything that helped and if it is in months time.
sanya11314
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sanya11314
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alice35251 sanya11314
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And what I meant was the bacteria that becomes present in your bladder when you have a urine infection was present in my vagina instead of where it should have been found (my bladder) I've been given things to treat it but my doctors not retested yet to see if it's gone
Thanks again
sanya11314 alice35251
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Please if you have anything tested or found,
which I did not mention,
pls pls let us know to check for the same or get ideas.
These ongoing cramps are disabling, sleep taking and life distroying.