Severe Edema in both feet, ankles and calfs
Posted , 50 users are following.
Several days ago, I developed Edema (or Oedema) overnight in both my feet, ankles and calfs up to my knees. This is my third bout of edema. The first was last year but only in my right foot and the second time was a couple of months ago, again in both feet and ankles but was very mild.
Two days later, the swelling became so severe, both my feet looked bruised and turned a funny red colour. The pain became that powerful, I couldn't walk whatsoever.
Im in UK so I rang 111 NHS helpline who sent out an ambulance. The paramedics arrived and were shocked as they had never seen edema so severe before. This was a Saturday and my GP closed so they arranged an appointment with an out of hours GP at my local hospital in the next hour.
He had no idea what the cause was and was that worried, he sent me to another hospital 30 miles away to see a specialist. I arrived and was admitted in straight away for tests and observation.
They took blood and urine tests, a chest xray, a heart reading straight away. But they couldn't link a diagnosis with the edema. They flooded me with antibiotics assuming that it was an infection.
I was discharged the day after as the redness and pain levels seemed to have gone down a little after the antibiotics and i will be returning soon for an ECG and other scans. I left with walking sticks so that I could walk around easier .
Now today its been almost a week. I still need the walking sticks to walk, the swellings is still huge, the pitting is still evident but i do think the antibiotics is helping some.
But I really wish I could know what this is as its very worrying. The docs couldn't see a problem with my heart, liver or kidneys. I have also been tested for DVT and gout. My blood sugar is fine. The only possible resolution is that it cold have some link with the hot weather, but that wasn't confirmed.
Has anyone else had severe painful edema in both legs and the doctors couldn't find a diagnosis?
My current medications I take regularly are: Mirtazipine 45mg and Hydroxyzine 25mg.
Can anyone advice or share their experiences? Is there anything I can do to help minimise the risk of this happening again? If this is heat related, Im going to have a hell time every time it gets hot. But surely 'hot weather' cant just be the only explanation there is why I have major swelling in both my legs and feet.
Any help will be appreciated as this is very worrying me.
3 likes, 69 replies
julaine78539 baxb
Posted
I too have recently had severe edema. Started in one foot and they finally gave me a shot of cortisone in ankle. It brought it down in about 36 hours for a few days and then came back only in both feet. They can't figure out the cause but I am trying essential oils, therapy and keeping feet up and they seem to be getting worse. It's been about 8 weeks now.
angela26024 baxb
Posted
I have it right now but mine is a result of having to sleep on my sofa with my feet on the floor. I can not sleep in bed at the moment because I can not extend my left leg in bed. If I do it freezes up on me causing severe pain.
For me it's circulation because of my feet being in that position all night!~
I am awaiting surgery on my knee and I hope it comes soon, so my life can return to normal!~
It could very well be a circulation issue with you as well!~
advanced_t00421 baxb
Posted
advanced_t00421 baxb
Posted
Hydroxine is a suppressant with an antidepressant. It's used for severe sinus and allergy issues for people allergic to benadryl. Can you find out what you may be allergic tobso that you wont have to take the meds? You can eliminate the problem? Also have somone get the magnifying glasses and check in between your toes and check your feet and legs. See if there are any bug bites... no more walking around bare foot. You have to be careful nn with this lymphedema... ok, I hope to hear back from you.
maf0216 baxb
Posted
Know this is an old thread and I signed up only to reply in hopes of helping someone searching.
For me it was similar, 31 Male, relatively healthy as in no acute issues when this occured. Woke up and noticed feet were sore and swollen in the ankles. I have large strong calves so didnt notice if those were bad at first. Progressively got worse to the point of my foot being so swolllen on top i couldnt get on shoes, super red, pitting, and my calves bloated out so bad they felt like they wete going to explode, seriously. So tight and red the skin stretched as far as it could.
Went to the ER, checked heart, seemed ok, labs ok, some inflamitory markers which is abnormal for me. Thought i may have an infection so admitted me and started IV aboitics. They wanted me to stay a couple weeks but after 2 days in bed with compression things on and a constant drip i was down to normal. I also was without my antidepresdants and adderall while in there at first, but got them to at least give me effexor on 2nd day to prevent withdrawal. Also had me on lasix 40mg in there as well.
Was on effexor 300mg/day, mirtazapine 30mg/day, and adderall 60mg/day.
Anyways after 2 nights i checked out, and after a day it was already coming back. Progressively rasing them, massaging, and lasix helped a little, but as soon as i got back to life up and about it gets worse very quick.
2 weeks later ended up back in the ER as it was as bad as ever, still was on antibiotics, so was concerned of my heart. All looked ok again, but it was a diffetent hospital and doc, he asked about how long i was on mirtazapine - 7 months. Dose fluctuated, stoped at a point, went back on about a month before the first ER trip. He suggested I DC mirtazapine only as it can apparentlu cause and see because he has no clue whats wrong otherwise. Sure as hell within a few days all good!
Interestingly I had some issues with strong histamine release by taking a supplement many times i didnt realize it was the cause of a reacton, so saw minor retaining occasionly stll but way less severe. Mirtazipinr was definily key and had a strong histamine receptior binding affinity, and it was clear as day.
Fast fwd a year and this is all forgot and out of mind mostly, it slowlt faded away and health was good. Decided to try mirtazipine again forgetting it was the cause of that and I was slipping into deptession again.
No kidding after 3 or 4 doses as it built up (lonnggg half life) my legs blew up on me again. At least this time I know to stop it immediately.
So moral of the story is if you dont know the issue, try dropping the mirtazapine. Im sure other meds could have the same consequence for others, so dont overlook it.
maf0216
Posted
Wanted to update - after DCing mirtazipine, was back to normal, then a couple days later boom, swelled right up. Tried DCing venlaflaxine(effexor) for a coiple days, no impfovement. Same with Adderall (actually adderall has had a slight dieretic and slimming effect on me over time. So meds are ruled out, I do take a TON of suppliments, mostly targeted b vitamins, minerals, and fat solulables. DC'd those also, No significant change except for the fatigue returning that they are in place to address.
So now im at a loss, going to target diet and liquids next. Other thing is I am a bit more sedentary then in the past, so going to get moving and strethching more also.
jtoledo baxb
Posted
Dear swollen and frustrated
I have issues with this all the time. I do not know what your medications are for or what they can cause as side effects. You should really look into that. Even over the counter medications you may take.
You may be allergic to something , perhaps a new clothes detergent or a food (can you remember eating something during the time you have swelled? You can be allergic to pets dust food soaps even lotions .. so bare that in mind. Wouldn't hurt to take benedryl as directed for a few days and see if it helps
I have something going called r.s.d or c.r.p.s this was brought on by an injury. My body believes I have some severe trauma that I do not have and reacts accordingly. With bruises swelling pain rashes hot n cold feelings. If this is on going it couldn't hurt to ask about c.r.p.s. complex regional pain syndrome
ps get your doctor to give your frousemide.. water pills.. to get it out of your system.
good luck
sandra1010 baxb
Posted
rick31000 baxb
Posted
If you are inactive for long periods and spend these periods in a sitting position then gravity will make it hard to get rid of fluids that have made their way into your lower extremities. Try elevating your feet...it may take a few hours for your legs and feet to return to normal..but given you don't have serious health issues then they will return to normal..oh..I might add..while your resting with your legs elevated,,you will be peeing alot..this is the fluid that once inhabited your lower extremeties..this shouldn't be ignored though...you should visit your doctor.
RoRi baxb
Posted
My name is Rori from San Antonio and for the last 7 ALMOST 8 days My feet,ankles,Legs (calves and thighs) have been swelling up and getting worse and worse each day and they hurt ridiculously. I have no odd colors yet but Im worried that doctors won't even run test to diagnose me to find out what's causing this I could be suffering from a heart condition or diabetes and all they tell me when I go into the emergency room or my primary doctors office , all's they say is it will eventually go down , nothing to worry about but no reason why my legs are this way I have to use a cane ,Walker on a daily basis or wheelchair at the grocery store or Walmart shop because of the pain...its ridiculous...
shells1313 baxb
Posted
Hello! Sorry I'm just now seeing the hell uve went thru just as I know to well!!! It's a feeling u try hard to deceive an antibiotics only is a pasifer... I've had this issue 20 yrs. it's affected my whole body. Ur blood, sugar, heart, liver! Was all the same as mine, the doctor finally put a finger on my problem. It's missable laying around feet up.. contact me plz if u need details ty Shelley
alexis0401 shells1313
Posted
I’m hoping you can share those details with me? I hope you’re doing well. I’m a 36yr old newlywed and these awful symptoms are plaguing me with no confidence in my path forward outlined by the Dr’s.
Thank you very much,
Alexis
marietta96653 baxb
Posted
I dont have answers for you .I wanted to say i feel for you. As Iam going through this same thing right now its been a month my doc gabe me water pills it did go down t
.then a few dayss later it was back even worse never i had this problem till my weight gain. I was told meds i took was cause also .i have stopped them i am eating low carbs still my feet are big and legs swollen i feel my whole body is . I hope we can find answers to this.iam seeing another doc on sat to get his opion.on this matter .good luck
Marietta
kim38414 baxb
Posted
I have had Angio-eodema for almost 14 years (off and on), last 2 years constant after minor dental work. My C-1 Proteins are out of whack. Which I just found out today.
This means my "giant hives" are a specific type of auto-immune response. Not saying this is what yours is, however mine started with feet swelling to painful levels and bone deep iching. Later moving to small red raised spots (not a rash), and finally to my face (eyes, lips, tongue, you get the picture). None of the past 21 doctors have been able to outline or provide any assistance. I do not have any allergies, my routine blood work was normal, no unexplained illnesses or other type of issues.
I can find some relief with 5 mg of Prednisone, sometimes going up to 10 mg. But it only lasts about 10 hours or so. That is better than nothing. None of the antihistimine restrictors helped, ice some times helped, and soaking with Baking Soda. None of these are long lasting. I did have a complete cycle of Prednisone at one point which did help for about 3 months, after a mild trauma, the giant hives came back.
Good luck to you in your endevers to find relief, and hope you have much better luck than me!
jtoledo kim38414
Posted
You should definitely look into what I have. CRPS-complex regional pain syndrome formally known as RSD.
You mention dental work or some minor bit invasive procedure seems to make it worse. That's how Crps starts. It's only effects about 200,000 ppl a year and more females then males.
Prior to my diagnosis, I spent approx 2 years of going to Dr after Dr telling me is either "in my head" or it neropohy