Severe EPI with no currently found cause - still scared

Posted , 4 users are following.

Hello; im still living in fear of whats the matter with me.

I started to get oily slicks in my poop, it started being lose and foul smelling although the colour didnt not go pale or clay.

It was discovered that my fecal elastase was very very low, unit 12 when it should be way way wayyyyyy higher, and it showed a lack of pancreatic function, although weirdly I was not found to be a diabetic.

I was sent for a CT scan with contrast last august which was one of the most nervous moments of my life when i was waiting for the results, the results came back via a letter saying, there was nothing abnormal about my liver, gallbladder, my pancreas was of normal size and shape, there was no pancreatic duct dilation and no sign of anything malignant or inflammation, which was a relief, but it didnt change the fact i had severe pancreatic insufficiency, my follow up was rearranged due to a mix up with dates, i received the appointment letter after the actual appointment date. And my follow up was December 16th, obviously i was happy to be on the waiting list as i knew that had there been anything bad they would of fast tracked me

The doctor is now sending me for an MRCP no contrast this time, when i thought i was not needing other scans, which has made me nervous all over again, the doctor said it was to check for any cysts which has confused me because i thought cysts would appear on a CT with contrast.

Im scared and confused, if they find no cysts, what on earth is causing my EPI and oily stools, Ive had a blood test a few weeks ago in preparation for my MRCP and ive not heard anything back from that so i assume its ok.

Can EPI and oily stools have a cause that it sometimes not found out or understood? my doctor said that the CT scan did not detect anything suspect of a cancer, but i still have the fear of it especially with this MRCP scan.

Quick final note in case any doctors read this, I am only 30 years old, and i am hopeful that a young age will be on my side when the subject of pancreatic cancer comes up.

0 likes, 11 replies

Report / Delete

11 Replies

  • Posted

    has food intolerances and allergys been ruled out ? try to remain calm . i know its hard . the request for more tests could simply be because they are scratching there head as well . just a precautionary look to see if something else can be seen . pancreatic cancer at your age would be EXTREMElY rare . you should feel good that you are coming through these tests with negative findings . dont get hung up onnthe "cysts" part . cysts can offren be harmless and your doctor is just merely saying that if you had one this test would show it

    Report / Delete Reply
  • Posted

    when you say oil slicks what exaclty do you mean ? is it extremely noticeable ?

    Report / Delete Reply
  • Posted

    Since your doctor said nothing sinister showed on your CT, you should believe what you have been told because these scans are highly accurate This is a positive sign. Try to remain calm and don't over think things too much. Ask your doctor plenty of questions about anything you don't understand or is worrying you. The more teats you have will give your doctor a better chance of diagnosing you.

    Report / Delete Reply
  • Posted

    I've been reading up on epi because im taking med classes and the pancreas interests me because its such a difficult organ to understand and diagnose but just to try and put your mind at ease their are loads of people who have epi and dont even know it they say its becoming more predominant and that lots of cases are idiopathic meaning theres no sinister reason behind it. do you still have your gallbladder? also a ct with contrast would show tumors in most cases so if all they're looking for is cysts thats a good sign as cysts can be managed.

    Report / Delete Reply
  • Posted

    also keep in mind epi is only a cause of cancer when it obstructs Biliary flow. between your labs and CT scan they would have detected a blockage . and even if you did have a blockage it would be more likely that it was from the gallbladder . have you had a liver function test ? this would give you your bilirubin reading which would show an obstruction if one was present

    Report / Delete Reply
  • Posted

    just about to have my scan. i hope everything will be ok. side note, ive brought a new house recently, and today is the day i move in, how annoying lol

    Report / Delete Reply

Join this discussion or start a new one?

New discussion Reply

Report or request deletion

Thanks for your help!

We want the forums to be a useful resource for our users but it is important to remember that the forums are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the forums is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.

newnav-down newnav-up