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Severe Fatigue & Bone Pain

Posted , 5 users are following.

nickie3805
nickie3805

I was diagnosed with Lupus SLE in April 2011. I have never had this bad of fatigue, or bone pain. (Going on 3mths consistent), i actually had to take a leave from work, currently off for 3 weeks and counting, 😐. Some of the blood tests they've ran lately point to a bone issue, but the doctors aren't helping me at all😐 Any suggestions?

1 like, 3 replies

3 Replies

  • margaret22116
    margaret22116 nickie3805

    Posted

    hi, not sure what kind of bone issue you have going on. I don't have Lupus but have Behcet's which is very similar. I had a lot of pain in my feet and hydroxychloroquine has helped massively. It has also helped fatigue. It is prescriped commonly for Lupus Sjogren's and Behcets and also RA. Are you currently taking any meds for Lupus? 

    • Suju0706
      Suju0706 nickie3805

      Posted

      Hi. I have been diagnosed with Lupus 4 months ago. I had severe joint pains, fatigue and had ulcers in my intestines. I am on steroids and HCQS since then. My condition has improved a lot but still having severe hip joint pain. Also have to watch my diet. Anything bit out of the way causes bowl irritation. 
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