Severe glucocorticoid induced osteoporosis at 29

Thank you for the kind words Dee, I am sorry to hear about your fracture...

I know patience is all we've got at this point, but forsteo treatment is only supposed to last for 2 years and it doesn't seem to be working in my case. I am very worried I will have to stay on prednisone for life with no efficient anti osteoporotic treatment and consequently my bones will continue to go brittle. I already have the spine of a 100+ year old person so...

Hi, when you have the L4 compression fracture did you feel anything?

Thank you, I read your post thoroughly. I have been following a nearly identical regimen for more than a year now, ever since my osteo was diagnosed the rheumatologist suggested vitamin d3 ,k2, calcium and magnesium supplementation along with increasingly intense cardio. I also take cod liver oil daily (1 table spoon) and obviously avoid junk food and sugars entirely. Lots of fruit, vegetables (mostly steamed) and grilled fish like mackerel, salmon and the like. All this has significantly improved my overall health and core muscles which had completely atrophied from the steroids and have protected me from further fracturing of the spine.

Unfortunately the bones show no improvement at all and even in x rays the doctors have a hard time actually seeing the vertebrae since they are so weak and don't reflect the beams properly.

Worst of all is the condescending attitude of the dermatologists who did this to me (who I am still forced to visit regularly because of my autoimmune condition). They insist I see a psychiatrist to help me cope... I wish I weren't so frail so that I could smash a chair on their heads but i'm not supposed to lift heavy stuff. Seeing all these professionals who initially assured me that everything was going to be alright now suggest that I need antidepressants because I don't have the right attitude has made me lost all faith in medicine. I understand they followed the proper guidelines for my treatment and probably had little way of knowing I would react so badly to it, but if following guidelines is all they can do then they're no better than computers

That's a rather shabby attitude on the part of your medical people.  It's not as if you've chosen to have these problems!  Just a word of caution, though.  I've read repeatedly on this and another forum that we need to be very careful with cod liver oil.  Yes, it's a great source of Vitamin D, but  it's also a good source of Vitamin A and we can overdose on Vitamin A.  A tablespoon of cod liver oil seems like a rather large dose to me, certainly the maximum, most people would probably take a teaspoon.  That being said, the retinol form of Vitamin A which is what's found in cod liver oil is supposed to be good for us and is different from the carotenoids in vegetables.  Best make sure that the particular product you're using doesn't exceed the recommended daily intake of Vitamin A.  

Are you under the guidance of a professional, like an experienced physiotherapist, who can help you exercise safely to regain some strength, which in turn will help you stimulate those bones to start getting more dense again?

Yes, I visited a physical rehabilitation center twice a week for about 6 months. After I rebuilt some muscle mass and the fractures healed the doctor suggested I no longer needed  rehab physio and  told me to try weight training, squats, etc. Most of the physio exercises I still do at home every other day, I also have some small weights and do basic lifting to further strengthen the core. I also walk at a fast pace for about 60 minutes every day...I wish I could jog, I used to run 5 miles daily but it is prohibited at this point because me fracture risk is still very high. Unfortunately, -4.5 score + 12 fractures is very different from -4.5 and no fractures he says.

I have definitely regained strength, I no longer have the terrible kyphotic posture like I used to, also regained 2.5 inches in height but am still shorter than I used to. I also have regular blood tests every 2 months to monitor enzymes, electrolytes and vitamin d among other things ( vitamin is 45 ng/mL now, up from 20 last year). When the prednisone was tapered to 5mg per day, my hormones also returned to their normal ranges, especially my testosterone which was way below normal ranges for a 29 year old male.

All in all, everything seems fine on paper, except for the bones ofc. Could be they need more time. Unfortunately I ran out of forsteo in less than a year and don't  really feel comfortable with Prolia, especially after the updated FDA statement

Sounds like you are doing everything that you can.  I agree about Prolia.  If it's a lifetime drug it's best left for the 80 year olds.  And you are right.  Bone takes a long time to turn over.  What you are trying to do is have the bone building cells work well and hopefully all you've been doing will get you there eventually.  But it is tough.  Almost a full time activity.  All the best.