Severe Headaches please help
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It all started with the dr noticed I have chiaroscuro malformation. It's only 3 mm and the tonsils don't hand down and they say their is plenty of room is the magnum foram. They sent me to have my eyes checked and said I'm not showing any head pressure and did a CsF flow. Nothing. I was referred to a neurologist for my migraines and they have done Botox 1x didn't really work and two nerve v
Blocks hasn't worked. I tried all the abortive medicines and the lovers blockers still no luck. I love daily with servers migraines'arms numb, ringing in my ears, leg spasms, you can't touch any part of my head or it hurts and I distorted bio. And feel like I am under water. Now I'm not sleeping even on sleep medicine. They have sent me to a pain clinic and seems like all they want to to do is dicuss stuff. I even tried over the counter, exercise, B vitamins, infusions, diet changes.
I live in San Antonio, any one have any ideas or a good doctors I can try a second opinion. I am currently at the UT Hospital
I am quickly loosing hope, I suffer from depression now, panic disorder and anxiety.
Please help!!
I love close to San andtoo
0 likes, 2 replies
Apple62 erin_60546
Posted
I moved from Atlanta Ga after decompression at Emory University to Austin,Tx.
The symptoms you are describing sound like Chiari. If the csf is not blocked that could be the reason surgery is not being recommended. Plus the herniation is not large but that doesn't matter.
The challenges with Chiari is a lot of doctors don't have much knowledge. A good neurosurgeon can usually help. There's another group called Chiari UK and there are a lot of people that can help you. The doctors at Neuro Tx are good.
Personally, I suffer eye pain, ear pain, back pain, balance problems, swallowing, sometimes I can't talk, body pain. As you can see everyone is different. I'm in asst living.
I think the Chiari U.K. Can really help. Don't give up, there is help.
erin_60546 Apple62
Posted
Thank you