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Severe Hypospadias

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Guest
Guest

This isn't easy..I'm now in my 40s but had severe hypospadias at birth; to the extent my sex wasn't clear, I had no discernable penis.

From the age of 3 there followed 13 years of treatment and 25+ operations to try and correct it. I've never talked openly about it before. At the age of 16 the surgeons still couldn't stop me 'leaking' so I finally had two further operations involving a skin graft to the urethra. Hey presto it was fixed!

I really can't describe the impact it had on me as a child and youth, and the embarrassing situations. In hospital there were many times when it felt like I was 'exhibited' to groups of medics and students, photographed, asked to show my erect penis and on one occasion some poor nurse tasked with identifying the source of my 'leaks' with a felt tip pen. Undoubtedly all with the best of intentions.....The obvious surgery and extent of the scaring also made showering at school and nudity a nightmare.

I don't think there was any choice in my case but to have surgery but I can't deny the experiences of those 13 years have had an impact. I had no girl friends whilst at school or at all until I was in my late twenties, it was then I had my first sexual experience as well. I felt so inadequate I apologised even before we had sex (not the sort of pillow talk girls expect!). I do feel the condition and experiences in hospital robbed me of some of some of the fun and relationships most young men get to enjoy. I still have problems with sensitivity but we manage!!

Amazingly I'm now a father of two boys and very, very happy. My eldest son also had severe hypospadias but this was corrected early on with 2 operations when he was two and he seems fine with it.

I truly hope in severe cases things are better and boys get emotional support if they need it.

0 likes, 3 replies

3 Replies

  • Guest
    Guest

    Posted

    my son aged 4 has just had his forth operation to repair a fistula if this does not work the next step is a skin graft. We feel he will never be right and worry about what will happen when he gets older.
  • Guest
    Guest

    Posted

    [quote:6b5ae7a9d0=\"tabby\"]my son aged 4 has just had his forth operation to repair a fistula if this does not work the next step is a skin graft. We feel he will never be right and worry about what will happen when he gets older.[/quote:6b5ae7a9d0]

    Oh man, im in my 40's too, and i must say i feel just like you, i too was probed, prodded, examined and had a terrible time, i lost all confidence, i was told once by my surgeon, while he was grabbing at my penis after my 2 or 3rd operation, \"oh, made a bit of a dogs dinner of that\" he was refering to the scaring the full length of my penis.

    i still have massive issues and and a leak, its been there years, but i just cant face another op. i have fathered two children, but im struggling.

    Man :cry:

  • joanne24592
    joanne24592

    Posted

    Hiii this is the first time i've built up the courage to talk about my sons severe hypospadius.......Back in 1998 i was pregnant with twins an on a routine scan i was shocked to learn i had twin to twin tranfusion ( the larger twin Ryan was taking all the feed from the placenta which ment the smaller twin Michael was not getting enough feed therfore not growing) This was at 29 weeks and i was closely monitored and given injections to form the babies lungs.....i eventually gave birth to two boys ( what i was told i was expecting) by c section at 32 weeks.....imediatley they took my son Michael away from me (2lb 10oz severe hypospadius) they could not identify him as male or female to my horror.......after many tests they confirmed he was a boy with severe hypospadius......i cannot begin to tell u the pain we have gone through and still do to this day........Michael had several ops around the age of two........He was then under the top consultant Mr Rickwood who in my opinion completley ballsed the op up causing my Michael to go on to have reflux ....(wen he wud pee sum pee wud go back up the tube into his kidneys) causind him to have scaring of the kidneys and on daily meds to prevent infection for may years.......anyway my Michael is now 15 years old and he still cannot come to terms with how he looks down below......he has told me he will never have sex and he is very self concious about the way he looks......Michael has gone on to have SEBD (social emotional behaviour disorder) i was told wen he was younger that he could be infertile.......we have seen clinical psychologists but Michael will not/cannot except the way he looks.......i have had no support and i'm now at my wits end.......plz help

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