Severe leg weakness and walking difficulty-is it normal with CFS?

I'm having the same problem as you and don't see. How it could be CFS

Norma

Hi David, I’m glad you have now been properly diagnosed, and you are right to point out that many of us may be misdiagnosed. Yet when I read about the symtoms of myasthenia gravis, I feel they are distinguishable from CFS. Not to say that at some point symptoms may be very similar, too.

For example I don’t have muscle problems as such; my main problem is that after exercise there is a crash that lasts about 1,5 days, and I get brain fog or strange kind of dizziness. These are the most typical symptoms of CFS, but not the only ones. Some people suffering from similar symptoms have Lyme disease, others will be diagnosed with Sjögren’s, and yet others are suffering from latent nondiagnosed hypothyroidism (which also commonly occurs together with CFS), etc. Yet CFS is clearly a disease of its own with the hallmark symptom of push and crash, with recently discovered characteristic post-exercise gene expression.

Another reply-- David, and others, I don't go out to big stores much. If so, a motorized cart at home depot, grocery store, target and walmart help... which is what I limit myself to. At my drug store, i walk til i get to the "lift recliner", in the back. Then i put my feet up, for POTS sydrome, that i also have. Putting my feet up does wonders for pots, AND it allows me to pace myself. I rest, in parking lots, for as much as 30 minutes, which helps, if i DO drive (while running errands).

Also, along with aforementioned self treatment stuff, i eat every 2-3 hours, or i feel sluggish... not a sugar level problem, it seems... yet I've read, "keep ur sugar levels even".

I should try the calcium, vita. D, b-12, B vita., magnesium recommendations, although i used to take those, but possibly along with too many other pills (my own recipe, from m.s. recommendations, mainly, of 12 pills, twice a day).

Calcium and vita. D were recommended by a rheumatologist, early on in drs. treatment, but I'd quit pills, resulting in BETTER health, by then (too much was toxic??, OR too much sleep aid stuff). I HAVE read, pediatric dosages are better (for the pots or th cfs??), and another poster, here, has mentioned meds, or "pills" she is too sensitive to be taking.

Peace folks... if nothing else helps much, for you.

Hi Everyone,

I, too, after researching, have thought of myasthenia gravis, hypo/hyperthyroidism(?), AND I have some temp. paralysis in my arms, after keeping up with folks when they're visiting, here, in Florida (little by lttle, consistently pushing it).

I find, when my arms don't want to move to grab my silverware, if I put my elbows on the table, I can successfully use my forearms-- a trick I read about.

I have learned a good amount from the internet researching I do. Sometimes, I feel it may be a good idea to try something that works for the same symptom, but in another illness... just an idea, certainly not anything I can say seems to work (a recent concept of mine).

I'd like to hear more about graduated exercise. I've tried, beginning last fall, 2 reps for each joint area, then 4, then, when I tried 6 reps, it didn't go well. I do one exercise for each direction: up and down, back and forth, twist and turn, and front and back.

I thought the successful acupuncture treatments, with 80% improvement, after only 2 treatments was outstanding.

My internist just told me about a patient who took vitamin D and stopped working his ceo t.v. station job, for a month. This cured him. My internist said, "lower your stress".

I viewed a video by a Dr., who had CFS, as did two other of his family members. He highly suggested the perspective of treating the stress factor, saying, if u need a Phillips head screw driver for a job, that's what you have to have. Therefore, if stress therapy works, that's truly what you need to do, he said. He was cured of CFS.

Just a thought.

Keep on plugging, pacing yourselves, all the while.

I'm bedridden, most of the time, also having POTS Syndrome, hypotension, presyncope, double vision, swallowing problems, joint pains, plenty of neuro./cognitive/thinking/memory, etc., stuff, movement disorders, seizure-like stuff, tremors, weakness, fatigue, digestion, bladder, and with standing and sitting problems, I'm up only 2-3 hours a day, mostly, using a motorized cart in stores.

The isolation and struggle to handle my home and personal stuff is, mostly, all i can handle.

Vacations, last year, left me sick for a month, each time, afterward (visiting my kids).

✨Wish me well with any progress, as I do you. ✨

Hi. My name is Tami and I have all the same symptoms.weakness in my legs and is hard to walk.sometimes I have to concentrate to take steps.I also have did in my spine.its weird when it happens.I am going at normal pace and all of the sudden my legs just get weak.I don't know if it is due to my back or something else.I've already had surgery on my neck twice.

I have CFS and Fibromyalgia among other things & I have leg troubles as well but not as severe as you do. I am so sorry you have to suffer so! I've been told more than once by different DRs that I will be in your shoes and possibly worse in time. So I can relate to you somewhat a???ay. Other than the waking up each morning and feeling like I had been beaten with a bag of doorknobs in my sleep & that was years and years ago B4 hardly any Dr or Insurance would even recognize Fibromyalgia I was told of My Fibromyalgia diagnosis however My PCP back then didn't want to right it in my chart for fear of my insurance and preexisting conditions for when she retired etc. I was already being treated for anxiety depression and it can resemble that pain. Then later on a??ut 8yrs or so ago the way My legs would hurt and give out on me was the main reason I knew that I had something else going on. Trying to find a good Dr and then a good specialist Etc took some time. So I did the best I could until My legs we're getting so bad I could not walk normally or very much then I would be walking & BooM!! They would give out without warning and I would be on the ground. Not able to get up alone because my legs wouldn't support ME! So I had to crawl in the house or crawl out of the way. Because it happened everywhere. So I was finally diagnosed with CFS and Officially Fibromyalgia. Same time and same rheumatologist. He told me they go together most if not all the time and either one or both were affecting my legs. Gosh! Sorry for the war & peace long version! But I just wanted to answer your question. I hope it will help you!

Hi David, I am terribly sorry to hear this, I have experienced leg problems in the past myself with CFS, not diagnosed but my doctor highly belives I have it. I have had heavy leg and stiff leg. I last year I had a few bad episodes riding the mowing lawn mower, I keep my feet up because of snakes. I had my feet up for 30-40 minutes and when I got off my heart rate shot to over 170, before CFS I never experienced this. If I squat several times my legs get tried, and muscle soreness sets in quick, I feel like its over muscle use.

Hi I am facing some kind of thing which is very weird. These days daily I am feeling dizzy smokey effect in my eyes . Severe pain in my back and extreme pain below the knees and in knees as well I can't walk properly while walking I feel heavy weight in my legs . My blood tests are normal MRI was normal but these days it's horrible now and while passing stool before that I had severe pain in my back . Doctors are not saying anything and not doing anything I am dizzy everytime . Is there any other person who is feeling this condition as well and how to get rid of these

hi David Ijust happened to find your post on this website I too have CFS well actually Fibromialgia which  Ihave had for 53 years It did not affect my ability to walk

What did affect me starting when I was about 66 was Spinal Stenosis Have you had your back check  by an Orthapedist I  too use acane and now a walker Ihvean electric commode lift which as a l ady helps me  e greatly Ihve a new Handicapped shower too shower whichwhich is very helpful Iwouls check with an orthapedist Good luck Rose